Cpnhelp.org

There have been many discussions about the Marshall Protocol on this site and if you want to find out what was said, do a search about it.

In the mean time one of the differences that we cannot reconcile here is that the MPⁱ avoids vitamin Dⁱ whereas on this site all our evidence suggests that Vitamin D is essential in much higher doses than usually recommended especially for people suffering from MSⁱ.

One other note of caution that we cite from time to time is that Trevor G Marshall Phd is not a medical doctor, and although without a doubt a clever and innovative thinker maybe not be in full understanding of the biology of the human body.

We, unlike the MP site, do not ban people who do not agree with the information that we present on this site, and you will find amongst us some who have followed the MP in the past and maybe a couple who still do now.

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Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse.

Good Morning Lance, I am sorry to hear that you have not found a source of treatment to start the CAPⁱ therapy with a Combined Antibiotic Protocol such as those related to the persistent intracellularⁱ bacterial infection Chlamydiophiliae Pneneumoniae which is the basis of the information provided on this site.

Our community does have it's share of converts that have spent years on the MPⁱ and found many challenges. 

On this site you will find research to support that the effects off D3 are anti-chlamydial in doses that bring lab values in the mid to upper range of what is considered the normal.   Some data suggests that even higher doses of of D3 are well tolerated, effective and safe.   Likely there may be some members that can provide these links for you within the site.  So the suppression of D3 in the body, is one facets of the MP approach that will be played down here and perhaps for well founded reasons.

In the matter of low dose Abxⁱ, you may find opponents here with facts in hand (links to research data) to caution the wisdom of such.  We start with respectibly accepted moderate dosages of several well time tested abxⁱ with safety records that stretch over years of clinical application.  Most of us  stay within these ranges as the therapy is a number of years in duration and therefore this results in less trauma to the body systems.    There are individual cases where the imperitive of aggressive neurological disease is so severe that more agressive synergistic abx are employed, yet this is done with much respect and deliberation of costs verses benefits.

What would I say here, from the perspective of my professional descrimination, and from my extensive reading of the depth of research material on this site, as well as from my personal experience of the Wheldon Protocol now into my second year?  Look deeper here and find a way to trial this form of abx therapy for persistent bacterial species for your partner (if I recall your name and situation from reading in the past?)

You may get some short and abrupt answers in the negative or perhaps not much response.  We have had this conversation around MP a number of times if you take the time to use the search engine within this site it should bring you to a number of threads on the subject.

Please read my signature, I have CFSⁱ with CPNⁱ documented and Bb documented and my functional level in life was spiraling downward steadily before and rapidly in the last 7 years.

Bone loss is one hazzard of low VitD level and there are more.  Antibiotic Resistance is a hazzard of sub minimal doses of abx. 

The Wheldon Protocol was tweeked by him to be an effective approach that requires less frequent supervision with labs and based on less toxic antibacterials.  It is also cost effective for those that need to payout of pocket all their expenses as they may find their own way through it.   This is a true gift to the world with compassion and wisdom.  I bless him for this sharing regularly. There are many ways to skin a cat as they say. The Wheldon Protocol has considered an approach that give high regard to safety, effectiveness with the twist of cost effective older generic forms of pharmaceuticals, supported by suggested supplementation to enhance healing which is also shared openly.  In my mind and I have said here before,this is simply brilliant and all given freely form a knowledge bases in microbiology without a personal thought to monitory gain.

Blessings to you Lance and your partner, may you find what you need to support healing.

Louise

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

In addition to lengthy discussions of MPⁱ you'll find by search you should definitely check out all the abstracts on Vitamin Dⁱ here and this cogent analysis of MP at the link on this page.

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CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 250 aithromycin mwf, doxycycline 100mg BIDⁱ, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral

Lance, When I was diagnosed with 'probable MSⁱ', I searched for a doctor to prescribe antibioticsⁱ so I could start the Wheldon version of the protocol. I met with resistance time and time again. But I DID find a doctor who would happily, nay, enthusiastically, prescribe Copaxone! That doesn't mean I settled for Copaxone just because someone was willing to prescribe it. I don't believe in it.

 I DO believe the concept of a bacterial infection invading my brain, though. Now, 33 months later, being on the full Wheldon version of treatment the entire time, I can say I'm healthier, probably 98% or more recovered and I know I was right to choose treating the cause of my disease, rather than treating or masking the symptoms.

I glanced at the Marshall Protocol three years ago (okay, MORE than 'glanced' ), when I was researching my choices, and I dismissed it pretty quickly. (If you read all the vitamin Dⁱ pages we have here, they explain my rationale better than I could do in this post.)  Vitamin D helps to kill the disease. I see no reason to deprive myself of it.

While cpnⁱ has a multi-stage existence, killing it is pretty straightforward. There's no reason to complicate it unnecessarily as the Marshall Protocol appears (to me) to do.

Best of luck to you, but I wouldn't choose the MP simply because someone offered it to me, kind of like I didn't choose Copaxone just because it was the one thing a doctor was willing to write a script for.

I'm pretty sure you'll soon see a post or two from members who have been on the MP in the past and abandoned it in favor of the Vanderbilt/Wheldon treatment.  (A couple have already reported improvements.)  I'm sure their perspectives will be helpful, 'cause they've been there and done that and probably have clearer insights that can help you in your decision-making process.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi Lance,

You can probably find many of my posts on the MPⁱ site. You can also find me on the conference DVDs for the MP as I was a volunteer there and was on the MP for nearly 4 yrs total.

The MP began to backfire on me severely (I felt I was relapsing) and IMOⁱ, there was never any good explanation to what was happening. I had an interview posted on one of the sites you mentioned and I asked it be removed because I was getting so much sicker last fall. There are others that had a similar reaction to mine so I was not an isolated incident.

I did alot of research and talking with the Vit D experts and can't find anyone that agrees with any of the Vit D theory or the explanations given there. Dr Donald Miller has a good article posted on Vit D HERE.

I can't find even 6 folks that have done the MP and are recovered and off of the meds and in better shape than they were before the start of the MP. (maybe there are but I can't find them)

Maybe some parts of the MP are helpful in that chronic infection will make one more sensitive to the light and so avoiding it and taking Benicar as an anti-inflammatory may help one feel better for awhile but I doubt it will make one well. I know it didn't me. I lost bone density that I had gained the five yrs prior. My thyroid became unstable and I had many other labs that got worse after 3 yrs time.

I feel after much research and personal experience and lots of time that the better way to go is to use NORMAL doses of antibioticsⁱ which have been studied for years, TRUST the expert Drs and clinicians and researchers that understand how the human body works and have been able to collaborate with one another and are willing to LISTEN to the patients to figure out how to make the protocol (ie: Stratton, Wheldon CAPs) better.

BTW, I feel I totally shot the D dysregulation theory to smithereens after slowly increasing my sun exposure up to 30 mins a day and by that alone being able to bring my 25D level up to a high normal level of nearly 50. This would not be possible to do by sun exposure alone according to the MP's theory of D dysregulation as I would be only making too much 1,25D and not making and storing 25D like a "normal" person would. In fact, I had a couple of episodes of sun exposure early on where my 25D level climbed dramatically and I was told it was something I ate although I couldn't imagine how or what. Apparently, it was the sun as I proved later on.

There are many of us that have been made "inactive members" on the site and we are no longer able to post or access the very forums our progress threads can (hopefully) still be found in.

Many of us (some you will find on this site) feel we may have caused ourselves more harm than good by depriving ourselves of Vit D and sunshine and are working on turning that back around now with nutrition and the CAP.

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NACⁱ 2.4g, Zithⁱ 250mg/MWF, minoⁱ 200mg, Tiniⁱ 5day/1g/5 pulses, Valcyte
Supplementsⁱ, CFIDSⁱ/FMSⁱ, Hashimoto's, Psoriasis, PA, IBSⁱ, Sec Addisons