2010 March - April Update
Pulse date: Mar. 29th - Apr. 2nd.I finally did my first 5 day tinidazole pulse since July 2009.
But first a refresher with a bit of my pulse history follows:
I had done several "testing the waters" type pulses between Mar. and July 2009. For example, Feb. 2, 2009 I only took one 500 mg. tablet of Tini and had strong reactions. Then Feb.16 and Mar. 06, 2009 I took two tablets of Tini one day each date and again had strong reactions. Next pulse, working my way up, I was able to do a 3 day pulse from May 4th - 6th and June 1st- 3rd , 2009. Finally I did my first 5 day pulse 6/29-7/3, 2009. Once again I had strong reactions followed by increased energy and less pain about 18 days after 6/29. It was incredible how well I felt afterward. I had some of my best days in July 2009 since crashing with this illness in 2002.
My life seemed to get complicated while seeking testing for Lyme Disease and following a LLMD’s advise. So therefore, I was unfortunately detoured from the full CAP from Aug. 2009 - Feb. 2010. I can tell you that it is clearly evident in hindsight that this was not a positive move for me. The gains I had made in prior months began to deteriorate while I was off the CAP. In Dec. the month long Biaxin treatment took a toll on my intestines from which I haven’t fully recovered to date.
Presently, I am quite pleased to report that after only two months and one pulse back on the CAP I am making good improvements now. Using a scale of the least pain 1 - the worst pain 10, presently my pain levels are most often down from 8-9 to 3-4. The horrid brain swelling pressure I experienced for months is down from 8-9 to 1-2. My energy, stamina and overall well being has improved 20%. The pain in my eyes and head has gone from 9-10 to 2-4.
I am having intestinal issues although I take three probiotics plus Floraster. I also avoid gluten and sugar in my strict diet. Recently I began using a product called DigestZyme. It seems to be helping considerably after only using it a week to date. I had noticed during the Tinidazole pulse my bowels improved but then worsened when off it. I am interested to see if that will repeat itself when I do my next pulse which I plan to start on 4/26. Perhaps I am fighting a type of intestinal infection? via leaky gut, etc. Typical CFS stuff?
Presently I am a itchy mess with multiple single insect like bites, red itchy bumps primarily on my legs which I have experienced while herxing on CAP in the past as well. Maybe a type of hives? These begin to surface after a pinching sensation in the area. They started after I had a fever one day two weeks following the Tini pulse. It seems I continue to add one or two each day so now I am up to at least 20 last count. The red spot takes forever to fade so I have all of them showing still but thankfully most of them don't itch any longer.
Recently for the first time in many months, I was able to prepare our home and a special dinner from scratch for our company last Sat. That entailed two days of almost constant activity to execute it. My chronic left foot numbness did worsen and then nerve pain ensued from being on my feet so much. I have had the typical CFS post exertional malaise afterward but at a decreased level from what I would expect prior to restarting CAP. Well, more importantly clearly I could not have even undertaken it. Also I cannot discount the fact that I was also much more clear headed during it all.
Wed. I had my yearly teeth cleaning which was about all I could do. Made a quick easy dinner and couldn't do much but watch a movie. By Sat. I had recooped so we visited my folks in another town. Today I have no energy to do much but feel great that I was able to go on the two outings this week. So much better than before I started CAP again. I could not go out for months. I am well pleased with my progress thus far and hope it continues. I clearly see the benefits of CAP for me so wanted to share my progress here with all of you. MM