Making progress

Submitted by Homina on Wed, 2011-06-15 22:41

Just wanted to let everyone know I am making progress

Still pulsing once a week with Flagyl

 

PEM is not as bad and I bounce back quicker 

Able to do more labor ,exercise etc 

Sleep comes easier even after a hard day 

This is not all the benefits

I think someone once called antibiotics a miracle drug  in this case I think that is a deserved title 

Thanks to all here who have given me so much feedback and helped me to feel I am not the only one going through the changes with Cpn  without you I may have quit the protocol

 

 

It's always good to hear how much this protocol is helping people. Especially that it has helped PEM and sleep. What was your experience like (in terms of herx) starting CAP?

Did you get headaches with the NAC? I noticed you're taking molybdenum which is supposed to help headaches caused by an increase in the methylation cycle. 

How long were you treating before you noticed improvements? (I'm new, obviously)

Thanks for sharing and congrats on the improvements.

Severe ME/CFS diagnosed 2007. Postural Orthostatic Tachycardia Syndrome, Bartonella, EBV, HHV6, Mycoplasma, and CPn IgG 1:1024; currently on Valtrex, Famvir, and slowly working my way up to full dosage of NAC. Will start CAP protocol when I can tolerate N

I got a little herx with azith and doxy a little stomach upset

I had a big herx with Flagyl including sore throat and flulike symptoms I am still herxing with flagyl but it is about a half a day of sleepiness 

I did not get headaches but did have a lot of abdominal discomfort when I started using NAC 

I noticed improvment after the first pulse of flagyl 

DAILY:  NAC 2400MG , DHEA sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections

Homina,

You and I have been on CAP about the same amount of time.  I think you are doing slightly better than me.  It's so encouraging to hear your updates.  Thanks!

Started CAP for Cpn on 11/14/10 - Per my doctor, paused Abx 5/18/13 - NAC, T3, St Johns Wort, B-complex, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Chelation with Alpha Lipoic Acid. Started Buhner protocal (2nd edition) on 8/30/16.