MediTest
27 Apr 2018
Author
she
Title

Lyme Disease / tick borne infections + CPN= help!!!

Body

Right now I am in excruciating pain and have been for nearly three weeks. I was diagnosed with Lyme in 2002 after being incredibly ill since 1999.

Comments

Boy, you are a tough one! Both directions - what you have and what you have been through and are still kicking. I almost hate to tell you that you are in many ways typical of paople here. I can't imagine that this protocol, if you doggedly pursue it, would not straighten out much of what you have. My position, except for the STD, when I started this almost 4 years ago, was VERY similar to yours.

The supplements alone would get you started - including ,of course, NAC, which I believe can be a cornerstone of the everyday support our bodies need just to begin this (almost fulltime) job. All of what I have said here can have other slants and is not to be taken as gospel but is my opinion. What is also my opinion is that you are salvagable and are not crazy; indeed, under the load you are carrying, you are obviously very intelligent. Welcome.

 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 50 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

She, Read the Getting Started module (Blue Tab at top of page)... It will give you an overview of what the Combined antibiotic Protocols are about.  

It appears to be quite common for people to be infected with more than one bacterium or viruses.   Luckily the CAPs can treat more than one of these infecting agents...

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

She-  [edited:  opps.  just went back and re-read some of your post.  I had missed the part where you said you are seeing the lyme specialist in Missouri, so I will delete my sentence about that.]

After reading from the tabs at the top, you might see if your current LLMD would look at the Physician's info. and consider working with you on this.

From what I've read is that this protocol may resolve some of the lyme issues.  other TBI's may need some adjustment, tough.  I assume you were evaluated (not just tested) for babesia, ehrlichia, bartonella, too during the lyme treatment.  If not, these should be considered as they are common co-infections with lyme.    

I hope your current LLMD will work with you on this.  He may be able to contact the doctors at Vanderbilt.

 Good luck.  

 Garth Nicolson, Ph.D., has a wonderful new article out regarding Cpn - and other chronic infections - that I am sure will impress your LLMD.  see link below..

Good luck.  This is a ton of stuff to sort through.  Be sure to pace yourself.  Take breaks away from all this, even if just to look at a travel magazine.  

 ---------

http://tinyurl.com/preview.php?num=64y3rv

Chronic Bacterial and Viral Infections in Neurodegenerative and Neruobehavioral Diseases

Garth Nicolson, Ph.D.  - May 2008 Volume 39 Number 5 LABMEDICINE   - American Society for Clinical Pathology 

if the tiny url does not connect, google the title.  He also has a web site.   

- and, pardon the changes in type size.  I don't know what happens when I cut and paste.  Tiny type seems to get a steroid boost when it's pasted.

 

Wecome She, I believe that I have had CPn much longer that Borrelia Burgorferi (Lyme) and am feeling stronger and clearer now approaching 1 year on the Wheldon CAP.   This is my first treatment and I anticipate being on some variation of this CAP for several more years continuously at least with my set of bacterial infections.   You are fortunate to have found this site just as I was. I will be looking for your posts.

Louise

CFS/ME.CPnPositive.BbPositive.

WheldonCAPbegan6/24/07. Now NAC,Doxy, Roxi, Full TiniPulses Cholestyramine at Bedtime for Phorphoria &l iposacaride Endotoxin Die-Off Experiences during post pulse cycle, generally for about 10 days.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

She,

welcome to our madness!  you are not alone, in fact, you are in very good company.  I believe, this is a ticket to wellness, otherwise, I wouldn't be hear in my 11th month of treatment.  I have had Lymes treated, but I am not sure if I have completely rid myself of it as I didn't improve after my 8 week treatment 2 years ago.

I do know this!  I am getting better, slowly.  It is going to be very important for you to go slowly.  In your journey through this falling apart syndrome, you are quite ill right now!

So, come on board our crazy train & get better as soon as you can.  Be prepared for letting some time go by!

Blessings

CFIDS/ME 26yrs, FMS, IBS, EBV, CMV, Cpn, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

She, hi. It seems pretty obvious to me that you have infected bra disease. If I were you I'd take out a class action on underwear manufacturers. Sheesh! The things some of these so called specialists come up with just beggars belief. And then to imply on top that you're insane! really gives you faith in the medical profession doesn't it.

You've had a heck of a time. There are others on here going through similar issues. As mentioned above, read through Getting Started (tab at the top of the page) and get a handle on what this involves. Nothing else has worked, this just might and given that you got improvements whilst on the abx, as I did when I was first sick, it certainly looks like CAP may be the route for you.

You'll also get the support and sympathy you need on here and none of us will call you insane. Welcome.

You might also like to have a skim through the info Keebler is putting together.

 

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April

she