Lyme and CPN - Throbbing hands, feet and veins... I'm in insane.
Here's my nightmare:
I've been diagnosed with Lyme disease and it's co-infections Babesia and Bartonella. I've been in treatment for roughly 2 months and seen great improvement in my symptoms.
My symptoms included fatigue, joint pain and inflammation, heel pain, random shooting pains, light tingling, testicle pain, muscle twitching, chest tightness, pain and discomfort, shortness of breath, visual floaters and visual static field, peripheral loss, chronic sinus infections, hives and rashes, easy bruising...
I started with Minocycline 100mg and pulsing Zithromax 600mg every other day from each other. I started taking Plaquenil 200mg twice daiy a few weeks ago.
I've had no real problems with treatment since, except for a feeling like my legs are cramping a little. Until yesterday, when my feet were tingling pretty hard, and I noticed the sensation was becoming more like the feeling of cut-off circulation.
I tried to lay down to go to sleep, and the feeling traveled into my arms which has never happened before. I noticed my veins were bulging and they were painful. I felt pain even in my head, which made me think blood was reaching my brain. I was able to sleep for a few hours, and when I awoke I was covered in red lines from my mattress (like I slept hard), but it was apparent that it must be because circulation is tight.
I already share my problems on a public Lyme forum, and was given the opinion that I likely have CPN, because of the vein issue, spider veins, and chest discomfort, tightness and trouble breathing -- which only adds to my nightmare.
Reading a bit through the site, I noticed that my current treatment for Lyme is much like what is used to treat CPN.
I'd like to know is the symptoms I experienced last night are familiar with anyone going through treatment. I do not have insurance and cannot afford any more hospital visits to be told I am fine.
I understand through Lyme treatment I will have what are called herx reactions, and am wondering if I have CPN as well, can I expect last night's experience to be a part of the process...or should I be worried and need to stop treatment?
Thanks for reading,