I've been quiet the last couple of months mostly connecting to family, work, and a diagnosis with the Lyme MD's. I've been under the care of a great Dr. in Dallas and I finally feel I don't have to fight to get a diagnosis. I ran the iGenix lab along with some other test including Cpn and some other bacterias and viruses. Results.... Negative Lyme, Bart, Erch, Babs, EBV, and Cpn. Positive Mycoplasma Pneumonia and HHV6. Do I have Lyme? I have test that show negative but the two bands that were positive is speculation with my MD. Another person I know from the Lyme Support Group is seeing a Lyme MD and the MD says two bands are good enough for him. I don't know, but I know what I'm doing now feels good to my body.
Mycoplasma, how far I thought I was away from it and here it is, probably the cause of my issues, along with vitamin defiecientcy, poor diet, stress, etc., etc. First thing I did was google Mycoplasma rash and sure enough that is what my whole body is covered with. It looks just like it.
I haven't done much research on it but understand it's kinda similiar to Cpn. Intracellular is the most important piece I found and how it steals your energy. I think that's why the creatine monohydrate and beta alanine have worked so well for me, a hypothesis based on the research I did here at this website. It can cause arthritis, vasculitis, etc., etc.
So, what am I doing to cure it???? Azithromycin. He took me off the Doxy, which scared me, and the Septra. Azithromycin 500 mg once a day. He mentioned Flagyl in our last visit and I think it's what in store for me in the next few weeks.
This part is cool. Aside of trying to elminate the stealth infection, he wants to balance the hormones to help fight the infections. Test concluded my Thyroid was running fine but I was low in testosterone and pregnenolone. So I supplement with both. We have probably heard of testosterone but pregnenolone was a new one to me. It's the memory hormone. I was a 2 on the test when normal is well above that. He said,"I don't even know how you remember your name!!!" It's funny, I don't sometimes.... ;-) So doing the pregnenolone has helped tremendously and you can buy it in a vitamin shop but i suggest to confirm low levels with a test of course. The testosterone is awesome too. I feel like a teenager, something that was short lived for me through my late teens and 20's. Maybe that's why it took 7 years to concieve a child; serendipity had it's last laugh on that one. He also added Ginko biloba which I understand helps blood flow to the brain. I'm definetly quicker with my thoughts than I was before.
I will leave it at that. I wanted to throw out there that this stuff is real when it comes to a MS diagnosis and you have to find the root of the causes and try to either cure or manage the causes, not the symptoms! It might be a bacteria, it might be a virus, heck it might even be your diet, but you can't give up looking, experimenting, analyzing, and making your conclusion of what you have found. I have seen 10 or so MD's in this short 2 years and only 3 actually wanted to agree with fighting the cause of it.
Also, I have found great strength in joining the the DFW Lyme Support Group. We have speakers come and talk to us almost every month. It's a wide variety of intelligent speakers all the way from nutrionist, nutropaths, artist, MD's, and survivors. Plus you meet people that have very similiar symptoms or issues and people offer support. If anyone is local to the DFW area an is interested to coming, email me and I will let you know more info. We are a non-profit so it doesn't cost you anything to come but we do ask for donations if you are willing and happily except anyone, Lyme or not.
Lastly, I know it's tax season and want to make sure everyone is making the most out of medical expenses. My family (just 3 of us) has spent a lot in medical expenses only in 2011 due to having to pay COBRA, insurance, mileage, overnight travel, visits, labs, etc. This is tax deductible!!! Like you, I would rather have that money in my pocket but our health insist otherwise. Just make sure you don't overlook anything medical that can help reduce your tax bill and get some of the medical expense back. Make sure you have documentation. I like to call all the medical people I have seen and ask for thier accounting on my account. Go from there and watch your tax bill decrease and increase the money in your wallet.
Until next time, I bid you all well.