Looking for help/protocol - rheumatoid arthritis. Please and thank you.

Submitted by luckypenny on Sat, 2015-08-01 21:17

Good morning.   For years I have said that if my diagnosis had not been MS, it would have been RA.  I have done this protocol for a month short of eleven years, most of it on a full five abx regimen.  My arthritis was very extensive, invading knees, back, neck, shoulders, hips.  It is entirely gone.  I am now seventy-five years old (how did that happen?  - I blinnked!).  NOTHING hurts!  I am incredibly fortunate - this was entirely unexpected - my doctor agrees and says we must look into arthritis as bacterial...

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hi Rica...Good to hear from you once again.

I was dx'd with RA when I was 26....got rid of it when I was in my forties by taking 100 mg  minocin daily for 3 years...I was given it by my dermatoligst for rosacea...I learned about the Road Back Foundation a few years before that..they maintained that using any tetracycline type antibiotic 3-7 times a week for at least 48 months would give some measure of relief, all the way up to remission. The blame mycoplasma infections for RA.  I went into remission, although my rosacea stayed with me until I completed the Stratton protocol in 2004.

My Ra is back minimally and my cpn is back..I have recently begun the same protocol once again and added in minocycline for the RA. This time I will take Rifampin when I am ready (last time took only INH and the protocol has been changed since then)..last time I never took Rifampin or flagyl because i was allergic to it 

But guess what?  My rosacea is GONE! I had that for about 10-15 years before I took the CAP and it was a pretty severe case. I am 66 now. 

Diana

Hello.  I was introduced to the Road Back Foundation in the 80's.  You can find info on the antibitoic protocols used for rheumatoid arthritis and other realated illnesses at www.roadback.org .  I know a man who had crippling ankylosing spondylitis since he was a teen...it caused horrid pain and degeneration in his spine during some very important formative years and he couldn't even go to school. He finally got on the protocol at Road Back and was healed as well as can be expected ..he is now in his 50's and working a full time job at a hospital. I believe Dr. Brownstein in Michigan prescribed the protocol for him..he has one of five sisters, who was also healed of a rheumatoid related illess with the protocol. I know several people who had RA (me included) and a few years of low dose tetracycline, minocycline or doxy has gotten rid of it for them. Many take it only 3 x a week. There is a lot of info on that site.

There is a book about this which I have and I will post it here when I find it and give you the correct title and author.  RA is thought to be due to mycoplasma infections..both my sons have it. One took minocin for several years and he completely got rid of all pain and traces of arthritis..he had been consdering a knee replacement before he began the protocol. He had his first problems with his knees at age 14 and was told to take an aspirin every night. He is now 48.   Although we often have co-infections - more often than not - the protocol for RA involves only a single antibiotic.  But you must take it for a minimum of 48 months.  Both sons also had ASO infections, systemic strep - but no cPn thank heavens.  I had (and now my titers are up again) both cPn and mycoplasma...so does my hubby.

any help I can give you, let me know, and remeber it might be important to test for co-infections.  People who are sick with this often have other ilnesses which compound the problem.  this is why I believe we don't always get completely  well on a protcol.  The RA protocol did nothing for my cPn, but my rheumatoid nodules and RA symptoms disappeared..even the RA factor seemed to disappear! 

Diana

My Mom died of rheumatoid lung..the RA  also infected her heart sac.....so I understand this..she took gold shots for her RA (they don't do those any more) - they provided some relief,  and then it went into her lungs..they thought she had pneumonia or maybe even TB that had never been detected in her.  it turned out that her inability to breathe was nothing that they could point to,  other than "rheumatoid lung" after much testing and sampling of what was in her lungs.  She was given blood thinners due to her age (over 80) while in the hopstial and they were also feeding her 22 aspirins a day for inflammation..so she came home and had a massive brain bleed that night. 

I wish I had known of the Road Back foundation when she was going thru all of this.  She died in '89.  Her doctor had begun to prescribe a sulfa drug which she never had the chance to begin...so, when Rica mentions that the cPn CAP seems to have cured her RA, I think that there is a real possiblity that many other antibiotics than only the tetrecyclines can help with RA..in any event...I hope your friend gets help..there is certainly enough out there!

Diana

thank you, Linda.  People die, and we get that, as much as it saddens us...but when later you understand it didn't have to happen that way, it is hard.  When they diagnosed my Mom with rheumatoid lung, the doctor said that we needed to have oxygen on hand for her and that people rarely live beyond 2 years once diagnosed.

I honestly believe that, even at that late stage, she could have come back from it had we known about a CAP to get rid of the micoplasms.  She got home from the hospital after a two week stay and lots of tests which led to her diagnosis and didn't make it until the next morning, and in a way, it sounded like she at least went before she became very ill...because she had always been a very health,vital person despite her RA until her last year or so and would have become very depressed at not being able to be active and pain free.

Diana

Diana

Diana, I think sometimes people want to be allowed to die because their life would be totally miserable otherwise.  I think your mother was one of those people from what you say, so try to be thankful that she died at the right time....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Yes, dear Diana,

Things happen as they will, but I am so with you in that it perhaps did not have to happen that way or then. And, that is why we try to spread the information asap, as you are doing here. And, in doing this, you are helping a friend of mine! Who will helps others! People do get depressed in thinking that there is no help, so it is just awesome to spread the word! Bless, Linda

Thank you sooo much - all of you - sadly my friend is not accepting this information - prefers to go the regular route - you know - suppress the symptoms. And actually, has stopped talking to me over this.

But, I have put this information out on Facebook for her - or whomever to see and I am grateful to all of you for this info...

Bless,

Linda

Sorry to hear this, but we each need to go the way we think best.  You can lead a horse to water but you can't make him drink.  Bless you for trying to help her anyway. I am sure she knows that if she changes her mind, you are there to help or lend support any way you are able. 

A good friend introduced me to the Stratton Protocol...I wasn't sure I wanted to even try it..money was very tight and I was too darn sick and tired to even contemplate starting something else which would overwhelm me and might give me only a small amount of relief. But between my friend and talking  with my family, they eventually made me realize I had nothing to lose and everything to gain from at least trying it. It took me a few weeks to decide to go forward with the protocol, one step at a time.  maybe she will mull it over and come back to the idea at some point.

Diana