MediTest

The site is about to be upgraded - BEGINNING THURSDAY, 26 April - and may be unavailable sporadically for up to a day.

Please be prepared for occasional outages and exchange email addresses or other info now, if there's someone you need to be in constant contact with.

Our web guy will put up a post when it's in process.  

We'll be looking for your feedback, once it's up and running.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

the "www" of this site returns an error of...  The provided host name is not valid for this server.

is this DNS error?

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

i don't seem to be able to create a new post and am asked "Forums field is required." but none are selectable

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

Want to make sure everyone's seeing this....

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Is anyone having issues using the new 'improved' site? I'm hating the 'brown and blah' format.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mac, my previous comment has now appeared.  Strange!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi All,

I'm the developer for CPNHelp.  Please notify in this thread any problems you encounter using the site.  I've fixed the problem with the comments not showing hence, Sarah's 'strange' observation.

There will be other issues that need fixing and we can deal with these as we move forward.

Thanks

Kent

To change the colors of your personal theme on cpnhelp.org go to My Account, edit, and select Mayo. Then choose a color scheme!

Briefly, neither David nor I can get to tthe site at all using our desktops  I am writing this with my phone. All week see is the 'The provided host name is not valid for this server.' 

Sort this out for first then I will tell you more....;....Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

There's no way to see a list of recent posts, chronologically.

I detest the brown, boring, antique format and can't find an alternate selection.

Personal statement and how did you find this site seem to have merged and the responses appear as one (illogical) comment.

There's no preview for comments, so most comments appear in the recent activity column without a hint of what they're about.

Photos attached to stories and posts are not opening when one views the post.

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Next  comment, after chopping off 'www,' if you click on a lot of things, like 'patient stories' you just end up back at the home page....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sorry: that was using 'www' on my phone: it does work with it chopped off, but certain servers automatically add 'www.'

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

WHY are even the shortest of words being chopped in half, making posts impossible to read?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Forum post problem fixed. You should be able to select the forum you are posting in on the pulldown menu.

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Hang in there and keep letting us know problems as you notice them. Will be improving I promise!

We will be looking into new themes that are better look/feel for the site. That will happen after the bugs worked out on the upgrade first. 

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Actually,  I have made and run three sites but always checked everything before I made a them live.  Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jim K

If you continue to plough on regardless, keeping faith with the notion that it will all work out in the end, all that will come is an inglorious end.

We all make mistakes. Stop and back away from this unfolding disaster now. This is the place where people come to learn how to get well. This is not the place to learn the difference between fortitude and stubbornness.

G.

​​​​​

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Glenn,  he can't just go back because the old site was too  full of spam errors. I would hope that the new site has the appropriate filters to stop this happening again.

We do need larger windows for posting though, to  stop words getting chopped in two.  

 

 

 

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sorry, but none of this is working for me and I feel as though a lifeline has been snatched from us all at the moment.  Not fit for purpose.  I realise an upgrade was needed, but no site should ever be launched until every single issue has been resolved.

We need to be able to see recent posts, in one place, regardless of whether they are blog or forum posts, as we have always done.

I get an error message if I click on 'my account'.  Same for clicking on other members' names. Can't find a list of members.   Can't find a way to communicate with other members anymore - and all previous messages lost.

Can't access my own blog.

There's no menu or navigation at all on mobile (iphone) - 'show primary links' isn't really a substitute, especially for the brain fogged.  No navigation on ipad mini.

Of the four foreign links on the homepage, only Czech works - others go to UK site.  Pictures of EBs in blood not showing.  All things I'd mentioned before.

Given trying to look at any more of it, as it's all too depressing!

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

Doesn't look as though there is any way to amend posts either.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

EDITING - I was just about to say the same thing, Bo

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah,

You say that we cannot go back. We are sinking in quicksand here. If we cannot go back we are going to sink and go under. 

If anybody believes that we can go on existing in this state for weeks on end, they are delusional. A few old-timers will keep faith for a little while but even those will soon realise the futility of it.

Full steam ahead! Full steam ahead!

Really, we would have been better off with just a closed Facebook group.

G.

 

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Things do seem to keep changing, but not EDITING yet!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Well, so this is Drupal 8 now.  (It's no use decrying the upgrade; software like this is built on quicksand, and one has to upgrade every couple of years just to have a version that gets security updates.)   Hopefully once the Drupal modules that the old site had are added and configured things will be back to usable.  But at the moment, I don't see a list of recent posts, and without that I'll probably find it difficult enough to follow the discussions that I'll drift away.

(With Facebook, though, you'd also lose me; I don't do Facebook.  Facebook is already cracking down on "fake news", and it's likely that at some point they'll crack down on "fake medicine".)

MHW

This is MacKintosh, by the way, not MHW, and I've no idea why it's posting me as someone else. 

I'm not about to use facebook for medical issues, either, Norman.  I'd advise everyone to take a breather for a couple of days and check back in here to see if it's gotten better or if another solution has been found.

Ditto!  Please keep checking back because things are not all lost...........................

Ah hah!!!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you all for the feedback.  We are actioning fixes.  I've done the following:

  • You can now edit your own comments
  • Words in comments no longer being chopped off
  • I'm not able to find a preview yet, but with editing enabled that means you can correct any mistakes quickly
  • I've removed the left column to allow more space.  Those items have gone into the main menu at the top
  • The module that enables users to change themes is not yet ready for Drupal 8
  • I've added recent content block to the top of the right sidebar which shows on forum and blog pages

To change the colors of your personal theme on cpnhelp.org go to My Account, edit, and select Mayo. Then choose a color scheme!

Thank-you Kent!

Now, what else can anyone notice?

I really dislike the colour!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.