hey everyone... first, i am still a little confused as to if i should post a blog or comments... whats the difference? i am still trying to get use to navigating this site... i do appreciate all the feedback..
my question is, is there ANYONE that has been on CAP treatment over a year with NO benefits? i sent e mails to some members (in the state of california) to ask questions about their current physician. well, out of the 10 e mails i only got ONE response.. i am assuming (since its been well over 2 weeks) that theyre NO longer on the site.. it just seems if they had major benefits from treatment they wouldnt permenantly leave the site. i am just reallllllllly curious if there are current members that have NOT seen any benefits after a year of CAP? i ask because my current physician, after she re-balanced my hormones, said i would ONLY need 3-6 months of antibiotics.. though i dont think she is really competent with CPN or CAP, i am just really trying to figure out if i need long term antibiotics.. i know my fatigue is still present and i know my immune system is drained (low WBC, low CD4, eczema)..
well, i made an appointment with Dr. Powell in sac (mid march) and i am really hoping he can help make me feel more confident about CAP since holorf in Los Angeles never mentioned i had CPN.. though my titers were high in mycoplasma, they were confident that restoring my hormones would decrease any pathogen titers..
can any current dr powell patients send me a private e mail? i'd love to hear a little more about his testing, protocol, etc..
i would also like to know if there is any permanent resolution to my skin condition? ive always had nice skin, but after antibiotics it left me with , what seems to be permanent, dark marks on my chest, back and upper arms.. i am pretty sure its die off, but how long until i see ANY resolution?
well, i know there are members with much more severe problems, questions, etc. and i truly feel like i am venting right now because this past weekend i had NO resolution to my fatigue and it also seemed to manifest into depression (which i never had pre antibiotics)...
thanx for everything, i appreciate any input..