LLMD visit update...DNA test results are in

Submitted by MunchMan on Wed, 2011-02-09 01:18


Here I sit waiting. Good news is that they found something in the realm of Lyme in my blood; bad news is that they won't tell me over the phone what they found. I'm not worried or anxious, I know I'm on the right track and can wait a few more weeks before I make the 12 hour automobile journey. I have enough abx, I'm having more better days than bad, and plenty to do in the meantime.

I am curious of what they found though. I think for sure Bartonella, maybe Lyme, and a far distant something else. I wish they tested CPn, I know upper respitory infections have plagued me since I was 10 or so.

I will let you know more when I hear more. 


Christian, I'm so glad they found something, I wish they could have told you over the phone. Let us know.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Christian, Thank you for keeping us posted on your lyme quest.  I am so glad to hear you are having more good days. It's appears you are doing the right antibiotic combo.

started Wheldon cap 4/21/08 for Cpn, CMV, EBV, CFS. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplements,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 


There is hope for the respiratory infections.  I, too, had them for decades after my initial pneumonia at around ten.  Every year I developed deep and painful coughs that lasted for months.  They are all gone - just never stop your "stuff".  These bugs hate what we are doing to them - but we are finally getting our revenge!


3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thanks everyone for your comments. I've been reading tonight about Lyme and I just want to say,"This all sucks." We are fighting bugs, bad doctors, IDSA, ILIADS, insurance, and sometimes ourselves. I know Lyme is specific, but with chronic bacterial infections it all bleeds together(excuse the pun). So anyways, I had to let that out.

Quick update,

I filled my new LLMD scripts this morning and found that he wants me to take Doxy 100mg bid, Rifampin 600mg qd, and Azithromycin 500mg qd every day. To say the least, I'm in shock about the new regimen. The Azithromycin has doubled in size. Rifampin is doubled just once a day. I'm not looking forward to the herx living inside that dark pinkish pill or the punch from the red Rifampin. I have enough 250's to keep me for another week or so and I'm keeping my Rifampin at bid until I see him on the 28th for an explaination.

I've been feeling good most days, but remember I haven't been hitting the cyst. Today I tried Sea Salt and Vitamin C. 30 minutes later I herxed, like some of my symptoms I felt on the first few days on abx's in July. I've been supplementing Vitamin C at 2000mg bid with no bad results. However add the sea salt in and strap in to go for a ride. I think I'm going to wait on this one until after I graduate in July.

Everyone, have a great Valentine's day. I will talk to ya'll later.




Started CAP on 06/29/2010 for RRMS. Dx w/ Brevundimonas Vesicularis in Jan '11 hiding in #20 tooth with root canal. Extracted 04/04/2011. Clinically dx with Bartonella at the same time. Recently found MPn.

Abx: 100 mg Doxy bid<

Hey Christian, at least you know the enemy now. I have also had good luck with the sea salt and C combo. I mix up a big glass of it and drink it in the sauna. Seems to clear the toxins and kill off some of the weak cells at the same time (this is just my speculation). After that, another big glass of water with some toxin removal formulas my naturopath recommended.

Pekana Basic detox and drainage kit: http://www.modernherbalist.com/pekana.html

Hits all three areas: liver, kidneys and lymph system.

Might want to look at the Byron White formulas for Lyme. I wanted to do them at the same time as the antibiotics, but my naturopath said it might hammer me too much.


I'm currently taking the Byron White A-BART formula for Bartonella and had some significant reactions (headaches, head swelling, night sweats) from it.


Good luck,



Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath