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List of my previous difficulties which have "disapearred" on 2 years of CAP

Submitted by Zdenicka on Thu, 2008-03-27 23:29
herpes virus condylomata accuminata mycosis acroceratosis/tetter sight setback trichismus, hair and nail fray white nail spots painful muscles, bones and joint head aches painful teeth, very sensitive enamel abnormally sensitive skin bad wound healing Sun allergy pollen allergy furry animals allergy feathers and dust allergy fungi allergy metal allergy asthmai painful heart arrhythmia "jumping" heart pulse and blood pressure fainting feeling like going to faint physical and mental exhaustion (I could not step up even 3 stairs only) terrible tiredness (even 16 hours of sleep was not enough) feeling like having lack of oxygen feeling like having something really heavy on my chest lungs burn infancy of disseminated sclerosis stammering, I could not finish my thoughts, I simply forgot some words and could not control myself really terrible memory forgetting of even simple things brain smog feeling of "falling of small stars/snow flakes in front of me" something like small "transparent" worms swimming in my eyes fever, feeling like having a cold fever of 37,2 Celsius degree joints tingle feeling like everything is running from me (PC on my table, books,...) bile stone pain of colon area painful sex and then a few hours of pain very often a tooth decay depression, still fear of "something", feeling of helplessness, aggressiveness being ill very often permanent sore throat (for many years) sometimes arms paralysis joint distortion (knees, hip, shoulder) feeling of vacuum in front of me, like no anchorage in front of me (like being still drunk) stamping over "fat"/swollen face and body (legs especially) "wet", red and painful eyes, still "tired" eyes pale skin stomach complaints (pain like having sores) still having "blocked" vertebras pins and needles sticking in all of my body painful heels still being tired of everything "twitch" in eyes permanent urinary tract infection painful lump in armpit, adenoids,...... painful pustule behind ears swollen vulva lips fetid fluor albus yellow-white fur of tongue (Candida?) feeling of having "something" in throat algospasmus pain in legs when sitting swollen and tough fingers and feet sweating pain in spleen area lack of sexual libido pain in navel area "fizzing" and "cracking" in my head ovary cyst permanent need of having something sweet (biscuits, chocolate,....) painful period ...... Nowadays still on CAPi, but for a few months without pulses because of my school. Pulses make me terribly tired...... When I am graduated, I will continue for a year full CAP (Stratton) and then I will see ....... hope without any reactions.

Comments

Zdenicka, your symptom

Submitted by Tina on Sat, 2008-03-29 12:54.

Zdenicka, your symptom improvement is a great validation of the Stratton/Wheldon abxi protocal.  It helps me to hear of your success.  As far as candida goes I know if we don't stick an anticandida diet religously those little opportunistic varmits will come right back.  Good luck with all your endeavors

Tina-MSi 37 years;EDSSi 4.5   1/1/08 Wheldon CAPi; Azith 250mg 3 x a week; Doxyi 200mg daily, NACi 2000 mg daily

 Tina-MSi 37 years;EDSSi 4.5   1/1/08 Wheldon CAPi; Azith 250mg 3 x a week; Doxyi 200mg daily, NACi 2000 mg daily, started Flagyli pulse 4/14/08.

 

Yep, even I was not on a

Submitted by Zdenicka on Sat, 2008-03-29 16:37.
Yep, even I was not on a diet, Candida is over (I hope). Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Z- Your command of English

Submitted by MacKintosh on Sat, 2008-03-29 17:29.
Z- Your command of English is impressive. You're doing better and better all the time!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Haha, .... good joke :) I

Submitted by Zdenicka on Sat, 2008-03-29 21:32.
Haha, .... good joke :) I did not pass CAE!!!!! So I can not be better, I must be even worse and worse :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Wow! What a long list of

Submitted by Janice C on Sat, 2008-03-29 08:21.
Wow! What a long list of things cured. My list of things I want cured is much the same. You give me hope. I also used to have transparent crystal worms in my vision. The weren't really in my eye, not floaters, and I think something was happening in an optic nerve. Flagyl made it flare up. I want my tongue to turn pink, too. Combined Antibiotic Protocol minocycline, azithromycin, metronidazole for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, Lauricidin: muscle pain, insomnia, interstitial cystitisi, sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints

WOW!  congrats on all your

Submitted by padeyas on Fri, 2008-03-28 21:12.

WOW!  congrats on all your progress, it was a joy to read all the symptoms that have been alleviated from CAPi!   i will be happy with a cessation of 5 symptoms!  i too have a white tongue and pray for the day its pink again. 

keep up the hard work and keep us posted on your progress..  btw, your english is BETTER then mine!  thats not fair!  =-)

Doxyi 100mg 2X's/day; Zithro 500mg MWF; Flagyli Pulses; NACi 1200mg; Testosterone 200mg; Armour 1 grain; T3; Plaquenil;  Cortef 15mg; 4000 units Vitamin Di; life extension vitamin/minerals

 

 

Doxyi 100mg q12hr; Biaxin 500mg q12hr; Amoxicillini 500mg q12hr;  Armour 1 grain; T3;  Cortef 15mg; 4000 units Vitamin Di; Ursodiol; prescription enzymes; life extension vitamin/minerals

Thanks. But I still need

Submitted by Zdenicka on Sat, 2008-03-29 15:44.
Thanks. But I still need improvements, both in English and the symptoms :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Ah, wonderful news! The

Submitted by MacKintosh on Fri, 2008-03-28 23:18.
Ah, wonderful news!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thank you very much for the

Submitted by presacanario on Fri, 2008-03-28 18:09.

Thank you very much for the detailed info as candida seems to be one of my worst problems.  Do you remember at about what point it started to vanish and what were your candida symptoms

 

I had "only" a hairy

Submitted by Zdenicka on Fri, 2008-03-28 20:27.
I had "only" a hairy yellow-white tongue and permanent gynecological mycosis. It started to vanish when I was on CAPi for almost 2 years. Before it was still better and better but not ok. It vanished absolutely after 2 years on CAP... Nowadays it cmes back a little when I am no pulse and it does vanish in a few days after the pulse. Prague, The Czech Republic, on CAP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

So did the candida go away

Submitted by presacanario on Fri, 2008-03-28 16:30.

So did the candida go away on treatment alone or did you take measures to control it?

thanks

No, I did not take any

Submitted by Zdenicka on Fri, 2008-03-28 17:31.
No, I did not take any measurements of Candida. It went off during the CAPi ........ without any antimycotics. Prague, The Czech Republic, on CAP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

How are your viral titers

Submitted by presacanario on Fri, 2008-03-28 16:14.
How are your viral titers now?

ELISA 18.3.2004: anti

Submitted by Zdenicka on Fri, 2008-03-28 16:21.
ELISA 18.3.2004: anti Chlamydia: IgG 0,05; IgAi 0,16 .... negative according to the laboratory ELISA 5.12.2006: anti Chlamydia: IgG a IgA negative according to the lab anti Chlamydia cHSP60: 4,8 ELISA 14.4.2006: anti Chlamydia IgG 0,16; IgA 0,13 anti Chlamydia cHSP60 0,14 according to the lab always negative ELISA from 28.12.2007: anti Chlamydia IgG 0,14; IgA 0,05 anti Chlamydia tr. IgG 0,02; IgA 0,12 anti Chlamydia pn. IgG 0,34; IgA 0,10 anti Chlamydia ps. IgG; IgA; IgM negative anti Chlamydia cHSP60 0,31 also everything negative according to the lab Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Z, I have no surprise at

Submitted by katman on Fri, 2008-03-28 15:23.
Z, I have no surprise at your list. It is great that all those things have gone. You have a good plan - continuing after your graduation. I still have strong reactions after 3 1/2 years. One of my concerns for the future of patients here is going off too early because they feel better. Your plan to do the WHOLE protocol for a year or so is what is recommended and should be done by us all, even though we are tired of taking pills. I am sorry for the people who are ridiculing you for doing this - unfortunalely many of them will be where you were.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 50 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

I know, this is "a long

Submitted by Zdenicka on Fri, 2008-03-28 16:14.
I know, this is "a long trip" and there is no "cutoff" ... But not everybody is enough reasonable .... I was one year on CAPi, everything was "fantastic", I wanted to discontinue ..... but I started protocol according to dr. Stratton "for a while" and I was shocked how many reactions I had. So ... I am lucky I still continue :) Prague, The Czech Republic, on CAP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Z, that is an amazing

Submitted by ruthless1 on Fri, 2008-03-28 15:05.

Z,

that is an amazing improvement for you, & there are others not on the list.   I am very happy for you!  It is great news.

God Bless

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8th Pulse 2 X 375 mg 3day,375 2 d

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Yep, in Czech language it

Submitted by Zdenicka on Fri, 2008-03-28 15:14.
Yep, in Czech language it gives 4 papers of the difficulties :) Maybe I will try to write them all in the future :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 strongly positive
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Zdenicka,   I found your

Submitted by blackfoot on Fri, 2008-03-28 11:43.

Zdenicka,

 

I found your list of symptoms very comprehensive - adding them all up is quite sobering in terms of health ...

I am amazed they are (all) gone.  I am glad CAPi has been successful for you , You must feel quite different!   

 

Blackfoot.

 

P.S.  I know a Czech girl in London pretty well - and she is just about the most disciplined person I have ever met! Smile

M.E./CFSi 20 years, intermittent.  Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07.  First Flagyli pulse January 2008.

M.E./CFSi 20 years, intermittent.  Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07.  First Flagyli pulse January 2008.  Changed to Tinii in December 2008.  Stopped CAPi in February 2009 at pulse 16.

My cousin is in London, but

Submitted by Zdenicka on Fri, 2008-03-28 15:12.
My cousin is in London, but she is not disciplined at all :-) haha. And about my feelings ... U R right, nowadays I can not believe that I thought I was healthy when I was a teenager. Now I feel absolutely free without all the "difficulties". Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Zdenicka,your detailed list

Submitted by garcia on Fri, 2008-03-28 06:59.

Zdenicka,
your detailed list of symptoms shames us native english speakers. If I were to atttempt to write out such a comprehensive list I would have great difficulty.

Could it be the word "chlamydiae" which is bringing in the trouble makers?? At least the ignoramuses don't seem to know what Cpni is. I doubt that Czech speaking web users are any less disciplined than English ones. 

CFSi. Started CAPi 03-07.
Currently: Roxi 600mg + Doxyi 200mg . 10 Pulses done. Sauna every other day. D 7200IU

Hunter: Don't think - experiment

Of course that Chlamydia is

Submitted by Zdenicka on Fri, 2008-03-28 15:17.
Of course that Chlamydia is the cause of all the problems, especially of the bad English :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Brilliant!! good for you

Submitted by michelle on Fri, 2008-03-28 06:57.
Brilliant!! good for you  its amazing that when you read some one elses symptoms list  how sismilar they are to your own and some things  too that you knew were there but thought it was just you! good luck for the future michelle

Thanks, same to

Submitted by Zdenicka on Fri, 2008-03-28 20:28.
Thanks, same to you!!!!! Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

 Zdenicka- What a wonderful

Submitted by Jim K on Fri, 2008-03-28 06:48.

 Zdenicka- What a wonderful detailed list. I just realized that I never posted your patient story. So sorry, you worked so hard on it and I think some family crisis hit about the same time you sent it to me. It's on my computer somewhere. I'll do a search and then add this list to it. I'm so glad you are continuing to do well.

I think any discipline here is because people really understand the protocolsi, and help others know what they are. In addition, perhaps it is because a number of us have educated doctors who are guiding the protocol. It certainly isn't "fear of Jim!"

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

It made me laugh to read

Submitted by Zdenicka on Fri, 2008-03-28 15:01.
It made me laugh to read about the "fear of Jim" :) but I did not believe that :) of course. On the Czech webside, there are many people trying to claim that CAPi is not working and that homeopathy or herbs are the best way ant that we, me and my father, are foolish and lying people ... It is really difficult.... And to edit my story ... I am still on the CAP (according to Stratton) but I do pauses with pulses because of school. It makes me terribly tired and I have only one month to be graduated ..... than I plan to have half a year or one year of full Stratton's protocol and than discontinue :) Prague, The Czech Republic, on CAP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Zdenicka, Great list of

Submitted by wiggy on Fri, 2008-03-28 06:10.
Zdenicka, Great list of improvements - you must be thrilled! On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs biaxin, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Zdenicka, great to hear your

Submitted by Michèle on Fri, 2008-03-28 02:22.

Zdenicka, great to hear your improvements after two years.   It seems that two years  of the complete protocol is a turning point for some of us.   I too am beginning to see some good results in my body after two years.

I don't know what it is about this site which makes us disciplined, probably Jim K, we are all (<scared>) of him and behave ourselves.   What do you mean though in terms of undisciplined?   What are they doing or saying which is making Jan nervous.  

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Zdenicka, Wow! A very

Submitted by kitkat2 on Thu, 2008-03-27 23:41.
Zdenicka, Wow! A very impressive list indeed. Amazing that so much of your discomfort is gone...wonderful news. This is good for all of us to keep in mind--that the improvements do come and are often surprisingly good. I have been on the CAPi about as long as you and am finally noting some huge improvements this month. How is Coufal doing these days? -kk2 :)

 

On Wheldon regime [Doxyi, Azith, and Flagyli]  for rrmsi since October '05.&nbsp Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5.  United States.

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

In fact I had more of

Submitted by Zdenicka on Fri, 2008-03-28 00:34.
In fact I had more of discomforts, but I do not know how to express them in English :-( Jan Coufal is ok, only a little nervous because of many undisciplined users of the Czech webside www.chlamydie.info .... You could not imagine how many "foolish" people are visiting our webside ...... pfffffff. How come that here, on cpnehelp.org is everybody so disciplined and in Czech not? :-/ Anyway, good to hear that U feel improvements as well ;-) Congratulations!! Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

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