MediTest
27 Apr 2018
Author
Kundali
Title

L.gasseri instead of L.acidophilus?

Body

 Hello everyone,I'm 20 years old and I live in germany. About half a year ago i got the result that I have CPN and I'm still searching for a doctor to treat me. Probably I have been infected with cpn for a longer time because I suffered from some cpn-typical symptoms for years. But they weren't very strong, so I never went to a doctor. 2 Years ago I moved to a new flat and about a year later symptoms became worse. An explanation might be that mold was found in my flat a few weeks ago.

Comments

Welcome, Kundali

Your English is perfectly fine - we understand what you wrote.

I have taken only acidophilus, but if what you are taking are "bugs" that are part of our digestive tract, and, most important, you feel better, by all means, take that.  If you have the aciophilus, add that  some time and see if you still feel good.  I don't think we can overdose on gut bugs. 

If you already know that you have cpn, you know you will be on abx for a long time, and you do not want c. diif.  Have you begun NAC and the supps?

If I have not been correct with my commentary, someone will clarify, I hope.  This is an important topic.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hi~

I use 3 to four different probiotic brands, and I rotate them.  And I always take a Florastor (saccharomyces boulardii) capsule daily.  The reason I take a variety of different probiotics is because I want lots of different "good" bacteria in my gut, and just in case one batch or bottle is not as potent, or even for some reason "dead"...then I'm not relying on any one bottle for my gut health.

Obviously, in your case, you don't want to take something that makes you feel poorly.  Perhaps you can alternate between the brand you take (which is more expensive) and then find another brand which doesn't make you feel as bad, but does cost less.

Best wishes, Timaca

on valtrex 500 mg tidhttp://whispersfromthefather.me/   

Timaca, would you be willing to share the brands that you have chosen as well as the concentrations and strains of the probiotic bacteria that each of them contain.  I spend a lot of time reading labels when I get a bottle in my hands.  And sometimes when you order on line the specifics of the order are not so easily available from the write-up on the website.  It seems that you have already done a lot of work on this topic.

Thanks, Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Haven't found another brand until now. But I have to admit that I didn't really search for it.

As far as I understood you acidophilus aren't the only bacteria which help against cpn.  

 @katman

Haven't started using NAC. Simply don't dare it without a docto. In terms of supps I'm only taking magnesium,calcium and probiotics.

Which supplements are the most essential ones? The list so damn long that I don't know where to start ;)

 

Acidophilus is not the only good bug; many other people take other things and know more than I about that.

About the supps... yes, the list is long, but I cannot stress the importance enough.  But, of course, I was very, very bad, whereas you are early.  However, there are several that are really, really important:  Vit D3 is the first that comes to mind.  NAC is ONLY an amino acid and WILL NOT AFFECT YOU unless you have cpn, which you have already said you have.  If you get a reaction (flu feeling, achey joints), you can rejoice because you are slaying the beast. 

Rica

 

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Kundali you can find the most essential supplements to start with located at the following link  look at the ones in Bold Type.  http://www.cpnhelp.org/recommended_supplements

In fact the pages linked in the Getting started tab at the top of this page are a great overview of early treatment.

Welcome, Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Okay, I will try to get the ones in Bold Type. But as far as I know Vit D3 should not be taken without a doctor or am I confusing it with s.th. else?

If everything works fine for me I will try out the other supplements if they aren't too expensive. 

 

But what about this list which is a a few million times longer than the one you posted? http://www.cpnhelp.org/publicimages/allsupplementschart.html

 

Only some additional supplements or neccesary when being treated with ABX? If I buy all this stuff there probably won't be any money left to buy food :-P

Kundali, see the recent topics on VitD3    avoid VitD2 read your labels

Vit D3 is also known as calicalciferol

Vit D2 is also know as ergocalcierol

Is some countries both are available you have to read your labels.

This is the latest list with consideration given to what is most essential for situations where finances are a deciding factor. 

We all need to become informed participants in our healthcare and understand options and have discussions with providers or

As many may do leave it all up to the provider of your choice or assignment.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

I got a simple question concerning supplements.

When there is written:

 Vitamin b12 | 4000 micrograms | several times a day

 

Does that mean I have to take 4000micrograms 2 or 3 times a day or does it mean that I should take 2000micrograms in the morning and 2000 in the evening. 

 

In general: Does the recommended dose describe the overall dose per day or per a single intake?

 

 

"As far as I understood you acidophilus aren't the only bacteria which help against cpn"

Acidophilus doesn't help against Cpn, it helps restore bowel flora eliminated by the antibiotics in the CAP which are killing Cpn. 

Your reactions to acidophilus suggest that the probiotic you were taking has not been working to balance your gut flora. Your reaction sounds a lot like candida (yeast) die-off, something I am too familiar with. The gut has a whole ecology of different bacteria, and it really helps to supplement with more than one kind of bacteria. I also use the  saccharomyces boulardii which does not implant in the intestines but is directly anti-yeast.

Hi Louise~

The probiotics I take include:

Flora Q  (lactobacillus acidophilus, Bifidobacterium, Lactobacillus paracasei and Streptococcus thermophilus)  One capsule is 375 mg

New Frontiers Probiotic Quattro (from a local Health food store called New Frontiers):   (LA-5 Lactobacillus acidophilus 840 million cells; BB-12 Bifidobacterium 840 million cells; Streptococcus thermophilus 220 million cells; Lactobicullus delbrueckii ssp. bulgaricus 100 million cells)

Nature's Way Primadolphilus Bifidus...a probiotic blend containing 5 billion CFU:  (Bifidobacterium breve, Bifidobacterium longum; Lactobacillus rhamnosus; Lactobacillus acidophilus)

Culturelle Probiotic: Lactobacillus GG 10 billion cells

Florastor:  (a beneficial yeast)  Saccharomyces boulardii 250 mg

Theralac:  (I don't have a bottle on hand, I just used up the last capsule)   See:  www.theralac.com

This is a good site for purchasing probiotics:   http://www.newtimrx.com/probiotics.html   If you purchase the Florastor, then shipping is free.  They also get it to you fast.

I take one Florastor daily and one other probiotic daily (rotating which one I take).  I had C. difficile for 11 (long) months, and I hope to never see that again.   I take the Florastor in the morning with my doxy (as it should not be affected by doxy) and take the other probiotic a couple of hours after my last doxy in the evening.

Best, Timaca

 

on valtrex 500 mg tidhttp://whispersfromthefather.me/   

Kundali, Yes, you can take Vitamin D3 without a doctor's advice. Start with 1000iu (international units) a day and don't be in a hurry to add to the dosage. If you feel okay, you can slowly add another 1000 iu per day. I would wait two or three weeks to add more. D3 can have a strong effect on cpn in some people. I am taking 10,ooo iu/day, but I worked up to this dosage over many months.

NAC will not harm you. It is liver-protective, and is given to chemotherapy patients to help their livers tolerate and flush the poisonous cancer drugs. It will also help your liver tolerate and flush the toxins created by killing cpn bacteria. I will take NAC daily, for the rest of my life, now that I've discovered its benefits.

If you take ONLY the NAC and Vitamin D3, you will be doing a very good thing for yourself while you attempt to find a physician who will prescribe antibiotics for you!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

At the moment I am more worried about Candida because I have been suffering from a mix of constipation and diarrhea for a few days. Just informed myself about it and found out that this disease is quite hard to detect and to cure. Somehow I am becoming a bit desperate at the moment. Maybe another disease doctors do not know much about. And the methods which give a reliable result are damn expensive.

Any advices what to do? How did you find out wheter you have candida or other things causing gastro-intestinal problems. (I read that stool sample analyses done by a usual labs mostly give negative results in terms of candida.) And how did you cure it?

 Furhtermore I am worried that I will not be able to do a CAP because of it.

Makes me damn angry that health issues are dependant on your income :-( . If I had more money I would simply contact such a lab and let them do some tests. But in general I should be happy that I live in Germany. People in the states probably pay much more.

I really like Garden of Life Primal Defense.It contains Saccharomyces boulardii as well as soil organisms and other good bacteria.

http://www.iherb.com/ProductDetails.aspx?pid=3161&at=0

Also use plain yogurt once a day. Olive leaf extract seems to settle my system if I feel some rumblings I make licorice tea and add a dropperful of OLE to the tea.

I would look for a probiotic that contains S. Boulardii and as Timaca says, mix it up with various types of probiotics.

Raven

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

But I read that this will not kill candida. A diet and medication over weeks or months seems to be neccesary.

At the moment I am taking l.gasseri,b.longum (Omniflora) and Enterococcus
faecalis(Symbioflor 1). 

Seems as if I have to buy some more stuff and spend a lot of money on it to become healthy again.

 

edit: Forgot that Timaca said that it is directly anti-yeast. That means it should help greatly against candida, but why isn't it mentioned on the german website www.candida-info.de

On another side it is written that it helps to regulate your intestinal-functions when you have candida.  But can it cure it without typical anti-candida medication?

 

Propolis (a honey-bee product) is very effective against various Candida species.

It's not a drug, so you don't need a prescription:  start taking it gradually just to make sure you are not allergit to it (it may contain pollen).

< SPMS - EDSS 7 > < NAC 600mg X 2, Doxy 100 mg X 2, Azith 250 mg MWF, Flagyl pulses, green tea, curcumin, flavonoids + all the supplements listed on Wheldon's Protocol (and possibly more) >

Does anyone know if the shops you mentioned deliever things to germany and how much it costs?

 

>I take one Florastor daily and one other probiotic daily (rotating which one I take).

 

Even when cl.difficile was in an acute state? Sounds pretty few to me.

I am taking "2 pills of Omniflora(l.gasseri/b.longum) and 2 doses of Symbioflor1 (enterrococcus faecalis) / day"  and I am still having serious trouble. Maybe I should really try a probiotic mixture with a more diverse choice of bacteria etc. Maybe 3 bacteria are not enough.

Kundali~

Those are the probiotics I take now, when I am C. difficile free.   I took LOTS more probiotics when I had C. diff.  Problem is, it didn't work.  I needed lots of meds for the C. diff to make it go away.  

Are you having C. diff now?

I would think you'd have to contact the shops individually, perhaps by e-mail to see if they deliver to Germany.  It would probably be a lot cheaper to find some sources in your own country.

Best, Timaca

on valtrex 500 mg tidhttp://whispersfromthefather.me/