LDN books and Websites
LDN - I have been on this medication since Feb 17,2009 4 1/2 months now.
I have viewed the speakers whose talks from past LDN Conferences are
available on the internet,
the weblinks are posted here on the CPnHelp website for anyone who is interested and viewing them.
This spring I order several of the most recent books on the topic.
Mary Boyle Brandley's book Up the Creek with a Paddle; Beat MS and All Autoimmune Disorder with Low Dose Naltrecone (LDN) 2009 edition. I found this book a captivating read. She writes from the perspective of the marriage partner of a Primary Progressive MS individual. I liked her writing style, she grew up in Ireland and settled eventually in the US with her husband. They were supported in the use of LDN by Dr Bahari and she shares the details of their visits with him. Eventually many in her family went on LDN therapy including herself. I loved the human interest perspective and learned a lot about working for a cause that one believes in and the specifics of LDN application.
I also got the link to a helpful website for those that need to go it alone in adding this to their treatment plans.
One of the websites that explain self reconstitution of an LDN tablet is; http://goodshape.net/HomemadeLDN.html
There is another and I may have added it previously in a post months ago so look around under the Back Porch which is were I have posted any comments on LDN. Apparently, I do not have MS, although in conversation with Rica, she said I sounded like her personal early years of disease and I would agree with her there is MS in a cousin who eventually went to coma and died so it is possible.
Frankly, after 4 months I have begun to dream in the morning, something that I have not done in literally many years. Nothing scarey and sometimes insightful, a change that for me is postive. For me the addition of increased endorphin production has made Louise a smoother, less reactive gal. Many folks would consider this another plus. It certainly is doing me no harm, I have added an extra abasorbable form of magnesium, the brand is Calm and it is powered and aded to water, my thought is that this may be helpful to those that get spasms. I did get more foot spasms after a time on LDN so I put this out for anyone with MS it might be helpful in decreasing the potential for increased spasms.
I talked with the pharmacist Skip about a month ago regarding adding a second dose of LDN for the diurnal phase of endorphin production. I found him to be a wealth of information and above all accessable. I order from Irmat in NYC as that is where my MD called in my Rx. They do run the insurance and although my plan wants me to pay more they charge me only there $38.00/month post paid which is re-embursed by my health insurance plan to my surprise. Skip's charges a small mailing fee which in total comes to 12.00 less per month. However, I did start with self med from across the pond and reconstitution as the instructions on this site suggest and it worked well; http://goodshape.net/HomemadeLDN.html Of all the stuff we take this seems fairly benign and just a few people find difficulties such as sleep disturbance which if perservered will settle out and those muscle spasms that I noted.
The other book I ordered and am making my way through much more slowly is; The Promise of Low Dose Naltrexone Therapy; Potential Benefits in Cancer, Autoimmune, Neurological and Infectious Disorders written by Elaine A. Moore and Samanth Wilkinson.
You mght see from the title that the list of potential diagnosises impacted is growing. The forward is by Yash Pal Agrawal, M.D., Ph.D. I believe that the talk that he gave to the 2008 LDN Conference is available on the web and it does explain some of the proposed mechanisms of action for this rather benign medication.
The liquid does not taste that bad. The capsules are convenient. I fall back on the liquid if my capsules are caughtup in the delivery system.
LDN was the first question I asked here, I did not think it was for me and it was one of the last addtions to my combination of adjuncts that support my primary treatment CAP, without which all the others would not have been as effective.
Those who have actually contributed suggestions here and answered my questions over time have contributed to my comeback to life. I am in great respect and gratitude to all of you who have contributed to my improved health. Louise