It ain't over til Sam plays it again

Submitted by katman on Wed, 2009-05-27 11:55

Jan 11, 2009 was a day of celebration followed by several months of very near (old) normalcy. I had done four years and four months of protocol and finished with weeks of the supreme test. Confidence and well-being reigned.

Then - in the way known to each of us - the stealthy creeping began - a little fatigue (it was the middle of kidding season), a little functional deficiency (it was the middle of kidding season and LOTS of hard work), some brain fog and lots of fatigue and foot drag (it was the middle of kidding season - though approaching the end - lots of hard work, long hours, and clipping and packing for the show).

Something is going on. We veterans can fill in the blanks - I AM NOT DONE! My protocol now is from the original horse and includes all the supplements: I am for six months on basically the original. It is Doxycycline, 100 mg bid; Rifampin, 300 mg bid; Amoxicillin, 500 mg bid; Azithromycin, 250 mg MWF; flagyl 500 mg bid.

Yesterday, several days after beginning the whole thing, I spent the day as a zombie - the culmination of several days of almost-zombiehood. Today is much, much better. I compared it to a trash crew strike: the trash accumulated in the streets, the strike ended, the crew came yesterday, and now there is only the usual amount. BUT - with the environment being improved and recycling coming into full swing, there will soon be NO trash being deposited - at least that is the six month plan of total extermination of these incredibly crafty creatures. Where were they hiding? They wasted no time, the few that were left, in setting up their little factories and spewing out their poison. I could feel it coming - we here learn to listen to our bodies - in the end that will save us.

For the last week, I was afraid the whole six months was going to be like the first few days; now I realize I have not regressed four and a half years but caught this very, very early. Already I am back physically and mentally to where I was in January.  I can do this.

Rica

Go Rica, Go!  Go Rica Go!  Kick them critters right where it hurts! :-) I have no idea where they were hiding but regardless of that, they aren't hiding anymore!

best, John

RRMS/EDSS was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
nac 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazole 3x400mg/day then 3x500mg/day

Rica, good luck in killing all cpn once and for all. You can do it.

 I wish you all the best and a great summer with no more cpn!!

, Maria 

Cpn since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid.All classic cpn,porphyria and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NAC, high vitamin D3. CAP for over 3 years. Back to work and life

As ever your story gives us a blue print for progress in the treatment.   I do hope you can get rid of these last few critters and get back to what you had achieved a few months ago.   I am rooting for you.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Rica, lead the way girl, we are all behind you!

RRMS since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyl Copaxone, Avonex, Novantrone, Provigil, 5gm NAC, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

Rica, So sorry they crept back but glad to hear you got them! Hang in there!

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Another zombie day. I believe this is a result of all abx together. Both times it has been the day after Azithromycin - last week I felt so rotten I couldn't have differentiated. Today is not as bad as two days ago so maybe it will continue to lessen. We may need to increase our "supreme test" to this very strong protocol to enxure complete success for those of us who have been incubating this infection for so many decades. I could not have done this at the very beginning.

Rica

 

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hey, I hope you feel better and that this is temporary and that you get the miracle eventually. Have ypu considered taking a few heavy few pulses of a quinolone before tapering right off?

 

 

 

 

 

 

&nbs

Rica, Sorry to hear about your temporary downturn of events.  Can I ask how many rounds of intermittent you took after January if any?  I was not clear back then if you were planning to go intermittent but it sounded if you were taking a full stop after your Rifampin months.   Have you considered a short course of cholestyramine for the potential to clear the zombie effect?   It has generally worked for me to clear my bouts of brainfog.  Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Louise,

I did two series of intermittent, and thought I was successful.  Now, I look back and think I wasn't paying close attention.  I thought I  was clear, maybe a little tired and logy, but now realize it was more than that.

Rica 

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, I can't help wondering how much of this is due to excess of kidding, since it is the first time in donkey's years that you have done it without the help of abx.  All the same, it is better to be safe than sorry and six months will be gone in a flash..............Sarah  

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Rica, I'm sure that your husband and your doctors have reviewed all possibilities, but all the same it may be worth considering Ella's experience.   A couple of months after stopping the protocol she was plagued with constant and recurring bladder infections and each one made her feel as though she was relapsing.   In hindsight it may have been some deep seated bug that the protocol kept at bay but got free reign when she stopped doing it, as it was a bladder infection that would not go away that precipitated her devastating relapse.    Just a thought.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

I can't find my old notes from Dr. P, but as I remember, niacin kills cpn at the dosage of 2500 mg. I turn red as a beet after I take it. This is not time released niacin. I think regular niacin is the one that works, and it's easier on the liver. If someone has more up to date or accurate info, please jump in.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

We don't know the 'how' of it, but niacin is one of the things Stratton has tested against Cpn, and found to be effective. In particular, other antibiotics have trouble clearing Cpn from white blood cells (monocytes and macrophages), but niacin is effective at it. This is not a big surprise, since niacin is a proven agent against atherosclerosis, in which Cpn is strongly implicated.

Yes, extended release niacin is to be avoided, as it's much harder on the liver, and probably not as hard on the Cpn.

Isoniazid (INH) is the antibiotic that was found effective at clearing Cpn from white blood cells.  I was on it continuously last year for 2 months.  I got to the point where it was too much so I backed off on it.  It might be worth doing again, perhaps combined with Flagyl pulses.  However, if Niacin is as effective, it certainly will be an option as well.

best, John

RRMS/EDSS was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
nac 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazole 3x400mg/day then 3x500mg/day

I find it so amazing when the things Ive discovered on my own through trial and error are actually the same as the things that Dr s has concluded through his ongoing research. I knew niacin worked to make me feel better but i just figured it was because it thinned my blood and allowed more abx to get to necrotic tissue sites. I didnt know it actually kills cpn in wbc's! And ofcourse this makes so much sense since im deficient in neutrophils, well at least i was anayway:) This is good news because i really respond to niacin. I hope someone can find the literature.

 

 

 

 

 

&nbs