Hello, and thank you for taking the time to read this post.
I was not able to locate information referencing contraindications to my Rx topicals.
Please pardon me if this is covered elsewhere.
I'll start with a bit about where I'm at and have been.
I'm a graphic designer who works from home. I have a happy homelife and a positive worklife. I believe that i am a healthy person, I just do not physically feel like one. I have long suspected that everything I experience is tied together, so am really happy to see this Web site. I want to live my life again: I want to go outside into the sunshine; ride a bike; shop in a store!
I am a 44 y/o femaie
Chronic generalized eczema since infancy
Unmanageable list of allergens: food and environmental
High potency steroid ointment usage, full coverage +/- 2x weekly, since age 2.
First adrenal insufficiency episode in late teens, load monitored since
Periodic doses of oral Prednisone
Rarely catch cold or flu
Only immunized once in infancy, and never again in school or when traveling abroad, due to reaction
Regularly have a prolonged mild fever with flu-like symptoms
Have chronic, generalized pain, where a touch feels like a hard blow
Skin bruises/bleeds easily, is very thin and heals slowly (due to topical steroid use)
Have been diagnosed with CFS and FM at different periods of my life.
Trigeminal Neuralgia since early 20s, bilateral in 30s.
Have been diagnosed with MS, because MRI showed lesions on brain and I have TN
I do not believe I have MS and suspect lesions are due to inflammation, same with the TN
6 abdominal surgeries to remove ovarian cysts and larger sized uterine fibroids in my 20s.
Chronic sinusitis (with maxillary sinus cysts)
My skins stings and burns at various (changing) parts of my body, shows no visible indication
I have (independent) hot spots under both sides of my jaw (but not in mirror locations). When triggered by something they will glow red and the redness will spread until the affected side of my face, or my entire face, is inflamed. The spot will be quite warm to the touch and clearly demarked, while the skin adjacent remains cool and clear.
My upper chest and arms are often red and hot, as are the tops of my legs
I have swollen lymph glands scattered throughout my body and occasionally my armpits will swell largely, same with below my ears which swell quickly and disappear just as quickly – determination: idiopathic.
In my late 30s I was told that all my physical problems were due to a somatoform disorder, it was all in my head. I immediately searched out psychiatric facility that conducted evaluations so I could be definitively assessed by a team of professionals. I thought that if this was all in my head then at least I could focus and work on healing that. Two weeks of testing and interviewing and I was told to believe myself, listen to my body, and find better doctor. While this went a long way for my self-confidence, I was no farther ahead. My trust in physicians was completely gone. I was just going to have to fix myself! I took the bull by the horns, moved to a sea-side location where there was minimal air pollution, began an organic lifestyle, worked with a naturopath, removed all my fillings, had the entire house redone in non-toxic, natural materials and came away feeling the same as I did going in. I then accepted that this would be my life forever and so made the necessary concessions permanent.
Then I got rosacea. I am a regular blusher and flusher with more telangiectasia than normal skin colour on my entire face. The rosacea took away my last bit of willpower to face the world. I hid myself, and fell into a depression.
But, getting rosacea was serendipitous. Here's why:
I started Doxycycline -- It calmed my base redness when the Doxepin I’d used off and on for years was no longer helpful.
I learned about Red Light Therapy -- I found relief for my TN!! (this was by far the most limiting condition I've experienced), it works on my aching joints, it helps to clear intractable rashes, and, with regular use, I experience a lessening of facial sensitivity, reactivity and edema
I started using Metrocream – It works so well that I believe that I will never have to put steroid on my face again (just need to keep up with the RLT as well). And since it was working on my face I thought it would be helpful elsewhere too, so began twice-weekly (60gms/wk), full body applications of Metrocream mixed with vaseline with good results. I am not tolerant of creams in general but the vaseline dilution lessens irritation. I am left with soft and mostly clear skin. As a result of Metrocream I am able to substantially decrease my Clobetasol steroid use to once weekly, most weeks.
I go through periods of eating very well, almost vegan, then get overly busy at work and eat poorly. I have an unmanageable list of food allergies, and so am often eating things that will cause inflammation. Some items are carefully avoided though -- these create such uncomfortable or prolonged reactions that I am mindful even when I am weak-willed. There’s no ‘just a little bit.’
As I age the instances of oral allergy grows.
I experience terrible fatigue after most meals -- my blood sugar is good, it is my blood pressure that falls. In my 20-30s my pressure was 80/50 for extended periods and is generally now 90/60. As I age, I have reached the normal levels occasionally.
I have elevated good and bad cholesterol, not tied to diet, and my ratio is acceptable. I have chronic GERD with some minor splash scarring.
Diet is a complex and oftentimes confusing challenge of me. Sometimes I'll eat healthy -- faithfully -- and feel like crap and have inflammation reactions, other times I'll eat junk food and feel great. Overall though, a good diet does wonders for my stress tolerance, general well being, and waistline.
Topical steroid and metrocream.
I stopped my oral meds a few years ago. I was in a mental fog that I knew the drugs were causing -- especially the Gabapentin. While I am still in a mental haze the majority of time, it's different, and the drugs weren't really helping me anyway.
I tried to go completely drug-free but my sinuses are always really bad. I use OTC antihistamines and decongestants daily.
I take Advil some days and every night and sometimes I Hydroxyzine when I have intense prolonged itch (the older antihistamines work best in this instance).
I take a daily shot of 1000mcg cyanocobalamin, the SL methylcobalamin did not benefit me. Occasionally, I double the dose.
I think that's it. I didn't capture everything but it pretty much comes down to: I have allergies and chronic inflammation.
I am discussing the treatment protocol with my doctor tomorrow.
My two questions are regarding my topicals:
- Will my Metrocream interfere with/adversly affect my treatment?
- Will my steroid use with/adversly affect my treatment?
I hope someone gets through all this and is able to answer those questions.