General Forum for discussing Cpn issues and questions.

13th Pulse Completed

Submitted by Jan Figtree2019 on Sat, 2020-02-08 16:11

I finished my 13th Pulse yesterday (Friday, February 7th).  This was a regular 5-day pulse. 

No noticeable reactions except for some unusual moodiness the first day of the pulse.  Usually, if I've had any moodiness it is about the 3rd or 4th day of the pulse. 

I had thought about extending the pulse for a day or two, but I needed more energy for the weekend, so just stopped on Friday.   My energy seems to rebound quickly after stopping the Tinidazole--- but a quick note for all, this does not mean I have huge amounts of energy, just more than when I take the Tini.

Food and infections

Submitted by Zdenicka on Thu, 2020-01-02 15:31

Hi all, I got some private messages if I am still alive (you can see my story in the Patient stories as http://cpnhelp.org/a_young_woman_comes_back_) . I am spending no more time here, so it may seem that I have died already because of the CAP treatment as many doctors predicted :)

So beacause many years passed and many things happend in my life, I would like to share something what I see very important for all of us.

Pain below Right Rib

Submitted by asarvar2 on Mon, 2019-12-09 08:36

Hi I did Weldon protocol  for 4 months then left it for 2 months due to liver issues. After two months started having irritation in the area of heart.

Therefore  again started Weldon protocol, it has been almost 4 months now.

So in total I have done total of 8 months.

I think my liver is getting  affected, since now I have slight pain below right rib cage, my bilirubin is also slightly elevated. Should I reduce medicine. ( I dont want to ) or is there a lighter protocol.

David in Blickpunkt: a quarterly journal for people with MS.

Submitted by Sarah on Mon, 2019-10-07 13:38

The third quarter of this year, 2019, had an article by Dr Kathrin Gruner, a Swiss lady from Mumpf, right on the border between Switzerland and Germany, on the river Rhine.  Having developed MS herself, she contacted David and she and her husband, another physician, decided she should be treated, with some success.

She asked David if he could write an article for MSK Blickpunkt, which he did and Kathrin translated it into German.

Here is some very good news...

Submitted by Sarah on Thu, 2019-08-29 13:03

Here is some very good news, and though I can't prove it, I believe it.

Well over two years ago a Northern European girl wrote to me. She had MS and was reasonably newly diagnosed. I joined her to the site but she never posted. I thought she was one of the many people who decide not to do the protocol. I was wrong: two days ago I received the email saying that she had been following the protocol for the last two years and three months. She gave me the result of her latest head and neck scan.