General Forum for discussing Cpn issues and questions.

New Patient Stories.

Submitted by Sarah on Sat, 2019-01-26 14:39

"Patient Stories" is vastly out of date.  It seems as though Jim had not put anything new up for years.  Many people have come, got better and gone without having their stories told.  Now we have much more spare space, so please send me your story and we will put it up.  People still part-way through treatment are as welcome as anyone, maybe more so. 

Let's start this year as we mean to go on!

Fampridine versus biotin

Submitted by supaguy on Wed, 2019-01-16 09:37

Has anyone with MS tried Fampyra (fampridine). From what I have seen, it looks like exactly the thing that I need. I saw a neurologist today and she explained that they can't prescribe it because it's not cost-effective in NICE guidelines. It does indeed seem to cost a lot of money ... but nothing like the sort of money that they are spending giving people  Tysabri. it is basically just a potassium channel blocker that speeds up impulses down the axons.


This drug is another one of those (like to Tysabri) that is made by Biogen.



Submitted by Sarah on Mon, 2018-12-24 15:06

temple window

Rather than starting a new thread, I thought I would edit my window painting!

I want to ask whether people would like a permanent chat-facility with a public room and several private ones.  


Pinky has been working hard....

Submitted by Sarah on Sun, 2018-11-25 13:24

Pinky has been working hard over in Panjab this evening saving all the data before making the new messaging module live. The site is so heavy it always takes a long time. When the new module is installed, all the existing messaging data will be lost, so please make sure you save anything that has been built up since Kent dumped the first lot.  David and I have been trying out the new messaging on the clone site and it is much, much better.

The forum and everything else will be left untouched, so don't worry!