General Forum for discussing Cpn issues and questions.

17th Pulse Completed

Submitted by Jan Figtree2019 on Sat, 2020-05-30 12:40

 

I finished my 17th Pulse yesterday:  Friday, May 29th, 2020.  Again, a five-day pulse of Tinidazole.  This pulse was a mix---most days I had very mild fatigue, and one day included some very intense pain down the right side of my body.  

--This past month I have continued to rehab from the fall I took.  My knee is almost back to normal.  Two things helped enormously:  KT/Kinesio Tape and Comfrey Salve.  Rebounding is soft/low but I need to do it to help with low back aches.

16th Pulse Finished

Submitted by Jan Figtree2019 on Sat, 2020-05-02 16:18

I finished my 16 Pulse yesterday, Friday, May 1st, 2020.  Again, a five-day pulse of Tinidazole.  This was a more difficult pulse, with greater periods of fatigue than the last several pulses.  

Pain issues this week:  I had more pain + stiffness + soreness in right leg ---I think much of this is largely due to a fall I had prior to the last pulse.  

Need doctor in Ohio

Submitted by reve on Mon, 2020-04-27 14:10

Is there anyone who knows where I can go in Ohio for a doc?  I left TN and am having NO luck...getting laughed at...blown off.  Or can I get ABX from Canada?  Who are the docs still doing this?  I haven’t been on this site for 10 years and I’ve been doing an unorthodox thing of only taking the first two abx for about 10 years.  I need to get abx and need to finish the protocol.  Every time I go off abx I get flu symptoms.  While on two abx for ten years I felt fine...not the protocol, I know.

Delayed metro

Submitted by tuftyone on Sat, 2020-04-11 16:45

Hi everyone, just thought I’d check in as I haven’t posted for quite a while. I’ve been taking azithromicin and doxycycline for about six months now and was aiming to start metronidazole after Christmas but I had a load of work to do and couldn’t  risk any adverse affects preventing me from working. Anyway, the whole Coronavirus thing kicked off so I’ve postponed it again until after lockdown.

14th Pulse Completed

Submitted by Jan Figtree2019 on Sat, 2020-03-07 20:50

I finished my 14th Pulse yesterday, Friday, March 6th, 2020.  Again, a 5-day pulse with no problems except some fatigue the first day again.   This is weird. Up to the last few pulses, the “pulse fatigue” was usually the last couple of days.  I have no thoughts about why it has switched up.

No pain for a few weeks now.  Nice. My rebounder continues to help strengthen muscles and keep lymph flowing (as well as the herbal tinctures I take for thinning lymph fluid:  Red Root (Ceanothus americanus), Cleavers, and Prickly Ash (Zanthoxylum clava-herculis)).

 

Children

Submitted by jayellelayne on Tue, 2020-03-03 14:54

My son is 13 months old and has been diagnosed with Chlamydia pneumonia and mycoplasma pneumonia. To get this diagnosis we sent his blood to Germany to the Armin Lab. We are from Canada and they don't know how to react this infection. He is always sick and can't breathe very well. And he doesn't sleep because his breathing is so bad. Sometimes he even wheezes. Is there a protocol for children? He is really struggling and the doctors here just say its viral even though he has had it since he was 2 months. I have cpn and am on doxycycline and azithromycin and I am slowly getting better. 

Can I leave pulse for few months.

Submitted by asarvar2 on Tue, 2020-02-18 02:25

I have been on CAP (weldon) since Aug last year. During this time, owing to liver issues I have shifted from Metro to Tini and from Azithromycin  to Roxi. Most of my issues have been resolved  however two issues still persist.

1.  Continuous tightness  around forehead

2.  Tightness  in area of chest with slight pain in heart.

At the same time I am very worried  about my liver. Is it ok to leave pulse for few months and continue  with Roxi , Doxy and NAC.?Or should  I reduce it to two days instead  of five.

13th Pulse Completed

Submitted by Jan Figtree2019 on Sat, 2020-02-08 16:11

I finished my 13th Pulse yesterday (Friday, February 7th).  This was a regular 5-day pulse. 

No noticeable reactions except for some unusual moodiness the first day of the pulse.  Usually, if I've had any moodiness it is about the 3rd or 4th day of the pulse. 

I had thought about extending the pulse for a day or two, but I needed more energy for the weekend, so just stopped on Friday.   My energy seems to rebound quickly after stopping the Tinidazole--- but a quick note for all, this does not mean I have huge amounts of energy, just more than when I take the Tini.

Food and infections

Submitted by Zdenicka on Thu, 2020-01-02 15:31

Hi all, I got some private messages if I am still alive (you can see my story in the Patient stories as http://cpnhelp.org/a_young_woman_comes_back_) . I am spending no more time here, so it may seem that I have died already because of the CAP treatment as many doctors predicted :)

So beacause many years passed and many things happend in my life, I would like to share something what I see very important for all of us.