General Forum for discussing Cpn issues and questions.

Toliveagain Update 090820

Submitted by toliveagain on Tue, 2020-09-08 11:50

Hi All,

I thought I would post an update.

To recap: I started Wheldon protocol on my own in late April, a little over 4 months ago. I went in hot and heavy and did 3 flagyl pulses in the first 2 months. I had horrible pseudo-porphyria and ended up going off antibiotics for a week. Felt better and started up more slowly the second time.

Hello

Submitted by Darren on Mon, 2020-08-31 03:43

Well..... it’s been a few years since I posted .... just to let ye know still doing well... no issues other than age (:      No symptoms still feel good and doing day to day stuff with ease.... hope everyone is keeping well in these times 

D

19th Pulse Completed

Submitted by Jan Figtree2019 on Sat, 2020-07-25 12:04

                                 19th Pulse Completed

I finished my 19th Pulse yesterday:  Friday, July 24th, 2020.  A pretty easy pulse this time.  Some extra fatigue the last few days---just slept a bit more.
 

Updates:

Scleroderoderma:  Skin is continuing to soften and excess collagen is still receding.  More flexibility is returning--this was almost impossible before starting CAP.   Looking forward to restarting yoga and trying pilates when I can move better.

One Year to Dr Wheldon's protocol-when to stop?

Submitted by IXN_2019 on Fri, 2020-07-24 10:48

Hello everybody,

It is the first time I am writing at the forum. Last year I lost my vision on my left eye around 85%. I did a lot of tests (lumbar puncture- negative). It was a Clinically Isolated syndrome but after having an MRI with more than 10 lesions the doctor said that it was RRMS the diagnosis. Everything started with a virus that would not let go. Blood test showed Epstein Bar IgG antibodies. I always had several pains but thought everything was related to my lower  back pain (slip disk).

one year of protocol ending next month. Should I switch to 14 days gap in protocol

Submitted by asarvar2 on Wed, 2020-06-10 09:50

 

Protocol from Jan 19 to April 19  = 4 months. Restarted from Aug 19 till date.   = 11 months.

Cpn load in Aug 2019  2.47   Cpn load in May 2020 - 1.03. 

There is still headache and tightness in heart, chest..

Had liver injuries due to pulse. Shifted from Metro to Tini and from Azithro to Roxi. Now have given up Tini pulses

SHOULD  I switch to 14 days on and 14 days off. But Cpn load still remains. May 2020 Cpn load  1.03 down from 2.47 from Aug 2019.  

one year of protocol ending next month. Should I switch to 14 days gap in protocol

Submitted by asarvar2 on Wed, 2020-06-10 09:47

 

Protocol from Jan 19 to April 19  = 4 months

Restarted from Aug 19 till date.   = 11 months

Cpn load in Aug 2019  2.47   Cpn load in May 2020 - 1.03

There is still headache and tightness in heart, chest.

Had liver injuries due to pulse. Shifted from Metro to Tini and from Azithro to Roxi.

Now have given up Tini pulses .

one year of protocol ending next month. Should I switch to 14 days gap in protocol.

Submitted by asarvar2 on Wed, 2020-06-10 09:32

Protocol from Jan 19 to April 19  = 4 months

Restarted from Aug 19 till date.   = 11 months

Cpn load in Aug 2019  2.47   Cpn load in May 2020 - 1.03

There is still headache and tightness in heart, chest.

Had liver injuries due to pulse. Shifted from Metro to Tini and from Azithro to Roxi.

Now have given up Tini pulses .

One year is getting completed should I switch to 14 days on and 14 days off. But Cpn load still remains. May 2020 Cpn load  1.03 down from 2.47 from Aug 2019.