27 Apr 2018

Should I do this? confused


i have a long history of chronic lyme with repeated courses of antibiotics. I really like my LLMD, but I thought with all the antibiotics over the years i should consult a holistic physician for candida, weight loss, generally boost my immune system etc. well this doc did a million and one tests, scared me to death, and now i don't know what to think. my cpn test was IgG 128, IgM 80, and IgA 16. my lyme is okay right now.


Dear Blues,It is easy to feel overhelmed by all of the info being throw at you. It seems that you have been dealing with multiple chronic infections for some time now.  I am not a doctor, just a patient who is also dealing with this situation.The physicians you are seeing appear to be on opposite ends of the spectrum in medical care. Your pulmonogist is quoting you treatment guidelines from 20 years ago. Any doctor who has read the medical literature from the last decade knows that these protocols are outdated. On the other hand your holistic practioner seems to be adding more stress by ordering everything under the sun before systematically narrowing down which issue is causing your symptoms.The NAC test is a good idea. Followed by the addition of NAC to your daily routine if you have a reaction. You can also add Chorella pyrenoidosa. I have found that it helps with clearing away the endotoxins of Cpn, adds B vitamins to combat fatigue as well as being a detoxifying agent to work on the heavy metal toxicity. From what I have read, it is important to treat Babesia before going after the other infections. Usually your LLMD will diagnose and treat this based on your clinical symtpoms and not just lab results. The following info on Babesia is taken directly from Dr. Burracano's ADVANCED TOPICS IN LYME DISEASE DIAGNOSTIC HINTS AND TREATMENT GUIDELINES FOR LYME AND OTHER TICK BORNE ILLNESSES from 2008:SYMPTOMSClues to the presence of Babesiosis include a more acute initial illness- patients often recall a high fever and chills at the onset. Over time, they can note night sweats, air hunger, an occasional cough, persistent migraine-like headache, a vague sense of imbalance without true vertigo, encephalopathy and fatigue. The fulminant presentations are seen in those who are immunosuppressed, especially if asplenic, and in advanced ages. They include high fevers, shaking chills and hemolysis, and can be fatal.DIAGNOSTIC TESTSDiagnostic tests are insensitive and problematic. There are at least thirteen, and possibly as many as two dozen Babesia forms found in ticks, yet we can currently only test for B. microti and WA-1 with our serologic and nuclear tests. Standard blood smears reportedly are reliable for only the first two weeks of infection, thus are not useful for diagnosing later infections and milder ones including carrier states where the germ load is toolow to be detected. Therefore, multiple diagnostic test methods are available and each have their own benefits and limitations and often several tests must be done. Be prepared to treat based on clinical presentation, even with negative tests.· SEROLOGY- Unlike Lyme, Babesia titers can reflect infection status. Thus, persistently positive titers or western blots suggest persistent infection.· PCR- This is more sensitive than smears for B. microti, but will not detect other species.· ENHANCED SMEAR- This utilizes buffy coat, prolonged scanning (up to three hours per sample!) and digital photography through custom-made microscopes. Although more sensitive than standard smears, infections can still be missed. The big advantage is that it will display multiple species, not just B. microti.· FLUORESCENT IN-SITU HYBRIDIZATION ASSAY (FISH)- This technique is also a form of blood smear. It is said to be 100-fold more sensitive than standard smears for B. microti, because instead of utilizing standard, ink-based stains, it uses a fluorescent-linked RNA probe and ultraviolet light. The Babesia organisms are then much easier to spot when the slides are scanned. The disadvantage is that currently only B. microti is detected. Best of luck to you,Marianne

Misdiagnosed with RRMS 2010. Dx CPn and multiple viral infections in 2011. Dx Autonomic Dysfunction 2012. Did Wheldon protocol for six months 2011. Currently taking Valcyte, Famvir, Equalibrant and supplements.  

Thank you. I think it is very possible I do have babesia based on symptoms, but my LLMD doesn't think so. I would like to find a knowledgeable cpn MD (new jersey/new York) because I just don't think I feel a sense of trust in the holistic MD. I think I am also freaking out because while the tests that were done might be useful, I don't think I want to continue with this doc. Please PM me if anyone has docs to suggest.