27 Apr 2018

Recovering strength


i'm asking early, this is only day 2 of pulse 3, but the question has bothered me for a while. I'll keep taking the protocol for at least, 18 months and, continue as long as long as i have reactions, (and I do!) but should i be ecercising?  I never did before, but I was very active and extremely strong,  but the cap will kick out cpn,but,  won't restore strength.  I realised, early after MS DX, that the kindness of others, who always try to fetch and carry for me, has made me weaker. I don't feel ready, or able,  to do too much solo walking but want to  walk my guide dog, on my own, asap!


Jane, you must have exercised! Walking a dog counts as much as anything you might do at a gym!  I have never belonged to a gym in my life and I don't think I have ever been particularly strong,  but I was always very active, cycling twelve miles return jorney to work, carrying the bike up two floors and often fighting with strong Atlantic storm force winds on the Fylde coast.No, cap won't restore your strength but there are two things that certainly will; the first is exercising on an elliptic trainer, which will give you a whole body workout but gently: I have one in the corner of my studio; then the second is to take at least 300mg of biotin a day.  The first thing you will notice is that your nails and hair grow stronger but after a year or more you will notice physical strength returning.  300mg might sound like a lot but it is only 30 tiny tablets.  I can swallow ten at once, so just have some three times a day!If you think it might be a good thing to buy an ellipse, don't get tempted with a combined ellipse end exercise bike: the seat on the bike is excruciatingly uncomfortable......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks Sarah,i'll look at the trainer, but i doubt i'll get one! I have a terrible aversion to gym equipment! Which is probably why i've never been a gym member either! But, i'll definitely increase biotin! I take 20 a day, but will increase that to 30, at least!oh! You're right, a dog walk is exercise! My GP would disagree! But, he doesn't believe in the cap, so what does he know?Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Hi Janet!My opinions on exercise are rather different from those already expressed. I would have absolutely no hesitation in proclaiming that the best exercise for people like us is in water. Exercises in water is damage and strain-free. You won't fall over in water and any strained muscles are completely supported. The problems arrise when you come to get out of the pool. You weigh nothing in water but when you no longer have the support of the water on your body, it can feel like you weigh a ton.I used to be a member of a health club. They m a good gym but I didn't waste my energies on it. Rather, I opted for the little pool that they had. It was warm and ideally suited for hydrotherapy exercises. Other people would go in there to carry out strange exercises too. Only occasionally would there be someone going in there to swim up and down. Managing myself afterwards there eventually became rather too much.I did have a six week hydrotherapy course at the hospital. That was great and helped a lot. That was ended over 18 months ago now. I know that there's no way that I would be able to climb the stairs to that pool these days; my MS has progressed. They do have a hoist to hoist people like me in. The same is true of my local jacuzzi.I don't know what your current level of fitness and mobility is. If you are fit enough to get yourself to and in and out of your local pool: do it. I think that you mentioned that you have a husband. If you need help, then there's a job for hubby.As I say, my MS has progressed. I am still up & down at various times. In my case, I know that when I am on an up, things just seem to work anyway ... though that seems increasingly rare.The biggest danger for all of us is falls. You won't hurt yourself from a fall in water. You are more likely to fall or injure yourself when fatigued or stiff. I had a fall only a few days ago. I had just gotten out of the car after sitting for long periods. I got to a very tiny step before the house and my left leg just didn't have the power to sustain lifting me ... and I fell backwards.Earlier, I had spent hours and hours sitting in A&E (emergency room) keeping an injured friend company. There really isn't much to look at there. The other people waiting there are a real collection. None of them were a pretty sight. I am a people watcher. I confess that I sometimes used to look a women with chunky legs with both admiration and a twinge of lust. These days, when I see a pair of chunky legs, my feelings are that of envy. Anyway, whilst sitting with my friend in A&E waiting area, I saw a rather small, late middle aged lady. Her legs were more like pins, with no meat to speak of at all. My legs we far chunkier and healthy-looking than hers. Later, I saw her get up and leave. Her walking was absolutely fine. Those little pins of hers carried her petite body away from there just fine. If our nerves work, our muscles will follow.By the sound of things, you are far less disabled than I. So long as you're dog doesn't pull you over, your dog walking is great exercise. Always make sure that you can be located. If you carry a smartphone, you can share location with a carer using Google location sharing.G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Hi Supaguy,it's so strange to see bodies that really shouldn't work carry out their duties with ease,  when i think of how well i used to walk, and for so long, it seems terribly unfair! You're right, my disability isn't too bad, my sight isn't great, but i CAN see and 'see' better, in that I look more carefully! An old friend, a musical director and very funny actor, was diagnosed with ppms, in the last couple of years and is, already, very disabled, making me realise how lucky i am, but walking my very loved dog, alone, has become difficult and, sometimes, dangerous now and only happens occasionally, but I go out with my dog and husband every day, often leaning very heavilly on Paul to get home.Anyway, as ridiculous as it sounds, I swam competitively as a teenager but hadn't considered it to be exercise!  But it is! Sometimes the most obvious can be the most elusive! so, thank you for putting me right! And try not to fall again! The medication really doesn't need to be shaken Up!  Isometimes wonder if alcohol is the best way to deal with an illness that causes falls, unsteadiness and slurring!Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro