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Tufty, you haven't not been taking them for that long, so just restart and then start pulsing again after three weeks.

I'm glad you are restarting!

Sarah

What did I miss?

The herbs haven’t been making feel well and it doesn’t really feel like die-off as the ill feeling is quite quick to occur. Deciding to get a proper diagnostic test from a German lab before moving on and may have to combine abx with herbs if positive. 

Tufty, have you re-started the abx or are you waiting for that diagnostic test as well? Wait too long and you will find that you are no longer relapsing-remitting, like happened to me.

This site currently has a whole clutch of new people taking CAP antibiotics, two of whom are English and have just finished their second pulse, having bought the stuff from the same place as you, in India.

I’m really waiting to get the diagnostics. The gp previously agreed to take the bloods for me so have just written to him again.

I'm not too sure about those abx as they previously gave me terrible arithmia 

I’d be really interested in other people’s experience with the Indian abx 

Tufty, if you look at the small print of what on abx from English pharmacies, many of them come from India.

As for the arrythmia, did it happen with just one or did they both cause it?  You can't just not use something because it comes from India: you might have a sensitivity to one of the abx, but also it might just be caused by having a nervous disposition: I have been through such things myself.  The disease doesn't help!

I believe that a potential side effect of azithromycin is arrhythmia. May I suggest that you consider Roxithromycin at 300 mg per day instead of azithromycin thrice a week?

G

Oh, solved the problem! I have only used roxithromycin so I didn't know that.

Tufty, order some tonight and get it sent by EDS and you can restart in about a week or 10 days, or if you have some doxy, start with that tomorrow then add roxi when you get it!  when I gave up on my GP and started buying it myself from Thailand or India, it often was a nice sky blue colour, made by Abbott, one of the biggest supplier of generic abx, now based in India.

I guess it could have been the azi causing problems and actually it was tachycardia more than arrhythmia. My heart rate went up to 170 at one point. 

I’ve found  someone to take my bloods now I so should get the lab test back in a week or so. I’ll wait to order the other ABX following a positive result. I simply can’t afford to waste any more money unnecessarily! Thanks for your comments 

That's just what I was going to say Bo! A man called Red, from California I think, got completely better with the treatment.

Yes I’ve read that too but I think it’s typically used in a lot lower dosage. I wonder if some of us detox through our skin, and in my case the skin on my nose!

Tufty, the typical 'lower dosage' used is not CAP, but just doxycycline, as used for excema. Red decided he would try CAP and hopefully get rid of it once and for all. It worked.

I can't put you in touch because this was years ago and he seems to have deactivated his account to get on with his life, , which is something I sometimes wish I had done! But I didn't, so now please listen to me! 

My MS first developed when I was in my mid twenties, but each relapse didn't last long and in the periods between relapses I thought that I was so unaffected, it wasn't so bad after all. 

However, by the turn of the century I was unable to walk even four miles.  Suddenly things all started getting worse as my MS became progressive. In 2002 I had a big commission from Cunard to work on, doing six big oil paintings for the new QM2 cruise ship.  Throughout this time, my intelligence took a nose dive: the sketches I did for the designs were fine, but each painting became successively more difficult.  I just about got them finished although it took me two weeks to sign them.  David had to go to London to buy me some non-toxic spray varnish, but he had to varnish them for me.

two weeks later I got my diagnosis of SPMS and  overheard Fat-Face saying to David that I was so bad that he should put me in a nursing home and get on with his life.

Well, David  did get on with his life, though not as Fat-Face meant. A few days of research in his laboratory and he brought me back my first pack of doxycycline.

Now, I don't know if your MS has turned progressive yet, but the longer you leave it, the more difficult it will get to pull out of it.  David was worried that it might be too late for me. but it wasn't.  It is only my walking that still leaves something to be desired.

So Tufty, please be brave!

As always, thanks or your encourage and enthusiasm Sarah, but  for me it’s not about being brave now. I've taken so many risks and made so many commitments to various treatments which have cost me a lot and just ended up actually making me a bit worse. I've had my jugular veins ballooned, I've done a three year orthodontic treatment and another three years of a strict Candida protocol. I've always tended to enthusiastically jump in feet first. 

I was reading Buhner's book again yesterday. He was writing about Porphyria. I've just followed his CPN protocol for over a month and throughout this time I felt like I was herxing and could barely stand at one point. Periods of die-off should typically last for a few weeks and he warns that any more than this could imply Porphyria and he even gives a link to your website, so I guess I really need to ensure that I don’t have this before proceeding with the CAP.

My plan now is to get the diagnostics done and then move forward from there.

Thanks again

I understand Tufty, and sometimes my enthusiasm gets the better of me. It's just a pity that you came to CAP after all the other, costly and unlikely to work stuff.

When you say 'your site,'  I presume you mean David's site and not mine!

Tuftyone - you mention secondary porphyria. I had an horrendous time with secondary porphyria the whole time I was taking abx - six and a half years. I still have occasional flare-ups of porphyria now, which can be debilitating for a few days. It didn’t put me off treating though. Extra carbs/glucose always helped, plus extra detoxing such as liposomal glutathione and Alka Seltzer Gold (the US version).

Wow, this thread takes me back to when a bunch of us were starting this protocol, pretty much 'flying blind' back in 2006.

People, this isn't the two-week course of antibiotics that makes you progressively better every day. it's the several year long treatment that has ups and downs and sometimes they're pretty dramatic.

I'm packing for a trip, so I'll make this brief. You have rosacea? Well, when the antibiotics work on the cpn in that area, you're going to have a BATTLE going on. Abx are fighting cpn in that location. It's no cakewalk. The cpn is fighting hard for its very existence and that creates massive inflammation (and inflammation is the underlying issue with most of our so-called 'autoimmune' diseases). You have balance issues? Boy oh boy, are you going to have BIGGER balance issues, while the abx and the cpn battle it out.

The areas affected by cpn are going to feel worse, look worse, exhibit bigger symptoms, before it turns around. I'd be more worried if this DIDN'T happen. This is the strongest indicator that the antibiotics are, in fact, doing their job.

If you keep backing off in fear of the 'worsened symptoms;, the cpn will win. Accept the fact symptoms are going to flare up during treatment and plow through it.