MediTest
Author
Agatha1
Title

Relapse

Body

Hello everyone

I haven't been on the forum for some years as I have been getting on with having a happy and active life after doing the Wheldon protocol for MS back in 2009-11. My MS (which was becoming quite aggressive in 2008) has been in total remission since then - no new symptoms and no new MRI lesions.

Comments

Agatha, are you taking your supplements every day? And how is your Vitamin D level? I plan to take 2400 units of NAC twice a day every day for life.
I have been off of abx for years now - I will look at my blogs to see when exactly, but my MS symptoms are gone and I limp only a little. My right side is weaker than my left, though a little of that is my left-sidedness.
Staying with it is the main thing.
Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Agatha, are you taking your supplements every day? And how is your Vitamin D level? I plan to take 2400 units of NAC twice a day every day for life.
I have been off of abx for years now - I will look at my blogs to see when exactly, but my MS symptoms are gone and I limp only a little. My right side is weaker than my left, though a little of that is my left-sidedness.
Staying with it is the main thing.
Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thanks for your reply Rica - I remember your struggles and I'm so glad you're doing well - do you still have your goats?
Yes, I have been totally faithful with my NAC, probiotics and vitamin D - except for a few days three weeks before my recent new CPn infection - my husband was gravely ill and I forgot them. I haven't been able to afford the other supplements with any regularity though I do my best.
I can only guess that I stopped treatment prematurely first time round and that remaining pocket of infection in my brain have been quietly re-growing. This time round I will be relentless and plan to do a month of anti chlamydial treatment once a year for life. I note the Stratton and co are doubtful whether CPn can ever be truly eliminated so I guess it depends on how good the body is at controlling it.

It is a great bore but I am grateful for you and this site - makes it all feel a little less lonely.

All the best

Agatha