MediTest

1.  When I look for 'recent posts', I am not looking for the beginning of that thread, which may have been posted (originally) many years ago.  I am looking for the most recent posts at the top of a list and the rest of the 'recent' posts listed in order of most recent at the top, second most recent below that, etc.  We're accustomed to seeing the newest posts first .

2.  Original posts, such as the one I am now initiating, should clearly show on the original post, WHO authored them. It's confusing when you can't identify the author of a post unless you leave the post and go look at a 'recent posts' list.  (I am MacKintosh, by the way, everyone.)

3,  Kent, if you look at my post announcing the site upgrades were about to be made, you will see (at the present time) three pages of posts attached to the announcement.  Many of the responses don't make any sense, including a couple of your own, because the 'organizational tree' of those responses isn't logical.  RESPONSES to a specific comment should appear below that comment, not in a running list of all comments.  "I fixed that" is one of your comments, yet it isn't clear what you fixed, or who you're answering.  -- I might say "I hate that" in response to someone, but it will appear later, under an unrelated comment and it won't make sense or it will appear I hate someone's Aunt Matilda, because she was referenced in a comment in the queue somewhere else.

4.  Can't the Conversation label simply say Private Messaging or Member Messaging?  We aren't accustomed to 'Conversation' and if the label can be changed, it should be changed, so longtime members don't have to learn new tricks.

5. 'Improved' is far better than 'new and improved'.  People who use this site come here addle-brained, hampered by cognitive issues, often panic-stricken and in time-sensitive situations with doctors and medications.  They need the simplest, most straightforward, visually clear site that can be created.

Pages cluttered with more information, more columns, more typefaces, more of anything and everything, is NOT desirable.  Keeping the site similar to the old one and familiar for visually or cognitively impaired people IS desirable. Blocking fictitious members is desirable, changing the organization and presentation of the recent posts list is not desirable.  (I am no longer brain-fogged but I am certainly finding navigation of the site confusing and unrewarding.

6.  Can you please publish a brand new post, outlining what has been done thus far and what you still anticipate providing to us?  Members of the site will likely be more patient if they are told what's going on.  We have a number of members who are web designers.  They might be able to offer constructive advice if they were told where we are in this process.

 

I've replaced the default search with Search API which has indexed the content much faster.   This is now working.  Feedback welcome.

To change the colors of your personal theme on cpnhelp.org go to My Account, edit, and select Mayo. Then choose a color scheme!

Search is now fully indexed and searching on blogs, forums, pages and comments attached to those.

I've also located the legacy emoticons and made those come back to life.  Do we need emoticons moving forward, since I found a module for that.

To change the colors of your personal theme on cpnhelp.org go to My Account, edit, and select Mayo. Then choose a color scheme!

Kent, I don't really care about emoticons: I am just glad that the site is becoming usable, because there are a couple of people that I can now suggest become members.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

People have become accustomed to using emoticons on facebook and elsewhere, so a simple group of the basics isn't a bad idea.  They were used infrequently before, but it's nice to have them available.  

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Things are far better and less of a joke than they were. Gone are those silly, stips and narrowing collums running down the right hand side of the page. And yes, we can now put headings to title our posts.

I use a mobile phone for everything. It is still not possible to paste in my text.

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Due to popular demand, smileys are in place.smiley

To change the colors of your personal theme on cpnhelp.org go to My Account, edit, and select Mayo. Then choose a color scheme!

Things are definitely improving here, which we all appreciate. Thank you!

I still have concerns though, that new posts do not make a thread jump to the top in recent content. The problem is that we'll only see a recent post if it is in a thread which is already showing in recent content. The nature of things here, though, is that very old posts can have invaluable info in them and people do post in old threads, with either questions or comments.

I've just posted in one of our old threads about biotin. I'm not sure how visible that post will be to others though. Let's see. I'm just concerned that others might come along to the group and post something in an old thread, which we'll miss and not respond to, because it's not showing up in recent content. If a new post bumped the thread to the top, we would spot it straight away.

Hope I'm making sense! I'll shut up now! smiley

 

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

Thanks, Norman. Yes, same for me. I would prefer new posts on old threads to show up in Recent Comment, because we often have people commenting on old threads, but I starting to feel it is not looking hopeful. Have to remember to keep checking the active forum topics sidebar too, as you mention. I've just found and replied to a new post about Elispot testing there too, which isn't showing in recent content, as it's a new post in an old thread. I think this is a problem, but others don't seem to.

 

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

TLC

Hi everyone!

This is the first day I have been able to post. So glad for the new site.

I have been on CAP since October, 2017. Azithromycin and Doxycycline. I was also taking NAC, ran out, and have not restarted. I felt well starting in March of 2018. Many of my symptoms have returned (but not the chronic fatigue or severe asthma). I am being seen by Dr. Wagshul in Ohio. He has switched me to Clarithromycin and Minocycline. I asked for Flagyl, but he told me not yet. I am anxious to rid myself completely of this pathogen. Should I press him about the bacteriacide? I didn't see the harm in just starting a light pulse.

David Wheldon, I was very interested in reading about your symptoms. My disease progression followed the same path, and I had the vertigo. I caught a virus that was going around at work 3 weeks ago, and the vertigo and dizziness and feeling off balance has returned!

Tina

Glad we've found you, Tina. I had to start very slowly and it was quite a few months before I could tolerate the abx enough to start thinking about flagyl, but it definitely sounds as though it might be time for you to gradually start pulses, so that all the life cycles of the bacteria are targetted. When your doctor says 'not yet', has he given any idea of why not and when? I'm wondering how familiar he is with CAP for Cpn. Perhaps it would be worth you sharing the info from DW's website with him. I'm wondering whether he is a Lyme doctor, as they tend to treat quite differently, with different doses and swapping abx around a lot, instead of the more steady approach of CAP. Perhaps have another conversation with your doctor about it.

 

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

Hi Kent!

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I still cannot paste in text into this box (I use an Android mobile phone) I suppose that I should be grateful that at least I can use voice dictation.

It seems it is possible for us to edit our text but on this new website will it be possible for us to have a delete button just like everywhere else on the internet?

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G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Hi Kent!

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Yes I can see the smiley icon in the formatting editing box above. Clearly I don't need it anyway because I found a way around it but others may find it useful.

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My question was not about emojis or smileys, it was about pasting in text into a blog post or forum post. It doesn't allow me to do it. When you try it for yourself, please do try it from a mobile phone and not from a PC. Remember that PCs are becoming very much yesterday's technology.

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G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Don't insult PCs!  You try using Photoshop or building websites using just a phone!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Photoshop? What's that? Oh, I remember now; that's that hugely expensive software suite that they did college courses on in order for people to be able to use it. No, I never liked it. I used to use the far cheaper and easier-to-use Paintshop Pro on my PC. These days, most of my pictures are taken on my phone; edited on my phone and then posted on media directly from my phone in real time.

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Anyway, getting out there and taking pictures is a secondary thought. I have taken to to practicing my falling over skills. I am pretty damned good even if I do say so myself. I have some work to do on my getting up again skills though.

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

I've no idea what criteria it is using to search, but I'm not having much success with it. I wanted to find Irene's post about Roquefort cheese. A search for 'roquefort' gave me nothing at all, but a Google search for 'roquefort cpnhelp' showed the post straight away and more past posts about it too.

 

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

This is the wrong thread for me to mention Roquefort chese ... but here goes.

???????

From memory, I don't think that Lucky Irene was actually the first to mention that particular cheese on these pages. Apart from my jokes, I'm not really a cheesy person and have never been big into eating cheese. However, Lucky Irene is indeed an extremely knowledgeable person as well as being pretty shap. On that basis, I thought I'd give it a go. I have been eating it in small portions over the previous few weeks. I have a wedge in a package in the fridge right now. I find it goes down nicely with a German wine.

??????????

Has it made a difference? I think it has. It is in the gut that we are expecting to see a change ... and I think that there is.

Sorry that I can't help you with the search box Bo.

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G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Right on all counts, Supa. There were, indeed, other references to the magic of Roquefort before Lucky Irene's post. You wouldn't realise by using the search function here though.

I love cheese, so it didn't take much persuading for me to give the Roquefort a go. I have a small portion every day now and it's certainly the tastiest medicine so far. I'm hoping my gut will be happily enjoying that, along with the kefir, kombucha and sauerkraut!

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

The "#new" URL extension, which tries to send you to the first new post in a thread, still doesn't work.  All that it takes, on the HTML level, is an <a name="new"></a> or <div id="new"></div>  on each new post, right where the word "new" shows up now.  But if that's too much for Drupal, it would be best to go to a flat format so that all the new posts would be at the end.

New function implemented.  There is a nice scroll to and the New tag is highlighted in pastel red.  I hope that is good.  BTW it navigates to the first new comment.

To change the colors of your personal theme on cpnhelp.org go to My Account, edit, and select Mayo. Then choose a color scheme!

Kent, I can't access my messages!  It has been like this for at least three days...………..

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

We seem to have lost all means of supporting in this support group. No way to send or receive messages or look at old messages and no member list or way to search for members. Also, new content only appears in 'recent content' if it happens to be posted in a relatively recent thread - anyone posting on an old thread, which does happen frequently in this group, will need to hope someone will spot it elsewhere.

 

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)