27 Apr 2018
Author
Markus83
Title

Lumbal puncture for Cpn diagnosis (urgent)

Body

Hello together,the last weeks my tingling sensations worsened significantly. I have also muscle twitching now and a beginning numb feeling in the face, arms and legs. And fatigue of course. My neurologist wanted to do a lumbal puncture in the past, but I refused to let it do.The symptoms are so strong now that I have to see a neurologist, and I think he'll insist that a LP must be carried out. I will ask the neurologist to look for Cpn, but I'm not sure which tests are needed. Can someone help me? I know a PCR for Chlamydia pneumoniae has to be done.

Comments

BatGirl

5 Oct 2017 06:58 am

The spinal tap is to check the CSF for signs of MS (oncological banding or something like that). But the IgA being positive indicates an active or recent CPn infection... good candidate for CAP!!!

We find consultations, we learn tricks with which we deceive ourselves, but the essential thing - the way - we do not find. Listen to the river...

Markus83

5 Oct 2017 07:24 am

"The spinal tap is to check the CSF for signs of MSi (oncological banding or something like that)."There are quite a few studies which looked for signs if Cpn in CSF. But I'm not sure which tests make sense and if a "normal" lab can do this. I'm afraid of getting back false negative results.

JaneK

5 Oct 2017 12:40 pm

Hi,i really don:t know if you should have the LP, all i know is that i did have one, days after my positive MS diagnosis. The dx didn’t change, the lesions, shown by MRI, confirmed my MS.but, the LP made me sick, more sick than ever before, but i didn’t ask why it was needed. What extra information would it give?all i could suggest is that you should ask, always ask why and  give yourself time to decide. Maybe your Neurologist will have a good reason for performing this, potentially, tricky procedure.good luck.Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Sarah

6 Oct 2017 11:39 am

Markus, a lumbar puncture is just one way of showing that someone has MS.  Jane had one and hated it, I didn't have one because my neuro didn't think there was any point in wasting hospital time and money and his precious time on my lost cause..You have already had a c pn serology test which showed a much higher result than mine, so I would just get on with taking all the abx and supplements and concentrate on getting better.  Maybe you don't have a positive MS diagnosis, or maybe you do: I can't remember, but maybe it doesn't really matter.  What matters is getting healthy once again............................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Robert777

7 Oct 2017 10:35 am

Hi All, can anybody tell me what these readings are, high or low etc     chlamydia psittaci 1;32, chlamydia pneumoniaei ifa titre 1;512,, chlamydia psittaci ifa titre 1;512, it also said consistent with recent c.psittaci infection,  can anyone give me their views on the above results. much appreciated. thanks. Robert.

Markus83

11 Oct 2017 07:14 am

Hi Sarah,I don't have a MS diagnosis. In the meantime I had a MRI brain scan (native) and everything was normal. So I think it makes no sense to let a LP be done. Symptoms are still strong, but maybe the brain is not affected and the tingling comes from ther peripheral nerve system.By the way Sarah, are you still on ABX or are you completely off?

Sarah

11 Oct 2017 11:53 am

Markus, no I haven't needed abx for c pn since 2008, but I did take oe five day course of roxithromycin a few years ago, to cure a septic thumb.....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

5 Oct 2017
Markus83