27 Apr 2018
Author
unsure
Title

joint/tendon / connective tissue problems

Body

I've had CFS for 29 years. Last June I started getting swelling of joints and the tissue surrounding them (possibly the tendons). In July I got acute lyme (with rash) and was treated with doxy for 3 weeks. But the joint pain, and swelling have continued and is progressive-- more and more joints are affected-fingers, wrists, elbows, ankles, shoulder and feet so far, and the ones that are affected stay affected.In addition to the swelling my affected joints hurt.

Comments

Unsure, I am certain that Cpn caused my joint problems at various times: painful swollen knee joint that lasted for months and very painful hip joint. In both cases it came on rather suddenly and lasted for months then went away. My first year on the CAP, those areas flared up. My hips were so painful if I sat on the floor I would have to crawl a bit before I could stand up.

Later, after I began treatment, I encountered a new infection with EBV. This caused joint swelling too that looked and felt like RA (even though my RA factors were negative). I took Valtrex for 5 months and lost the pain at about 6 months. You may also want to get tested for EBV and HHV6.

After I had been on CAP for about 3 years, I had a bout of achilles tendonitis in both feet. I wore a night boot to stretch the tendon for a while and avoided flat shoes (seemed to help) But I can't help think it was die off of Cpn because it has been a long time and it has completely disappeared (even though I am on my feet all the time)

Have you started on any treatment yet?

Raven

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath