Cpnhelp.org

1. Do you have a doctor willing to prescribe the abx protocol?2. Did you test positive for cpn at some point?3. If not, have you done the NAC test?Just tonight, I had a conversation with someone, speculating on why a person would NOT do the antibiotic program, when it's so cheap and so straightforward.  If one has cpn, or there is strong evidence they have it, why choose to gamble with your health?  Kill the bacteria, end the disease (instead of treating its ever-worsening symptoms) and get on with your life.p.s. I'm glad this community is here, and thriving, and able to be a resource to you five years after you first found us. ;-)

Thank you...it is so strange, but I tested positive for Cpn about 8 years ago, but recently have not. I am not sure why that is. I feel like I have a pathogen, especially because of the health decline and additional diseases and because I tend to get worse at certain times of the year every year! I have one doc who is convinced it is Lyme, but I do not test positive to that.  My guess is that I still have Cpn.I guess I didn't do the protocol because I was scared to. I react so strongly to drugs in general.I take NAC on a regular basis and have for years and it always thins my mucus as it is supposed to I think.I have a rheumatologist who wants me to take Doxy at very low doses, which I am doing now 20-40mg per day, which I know is too low for this protocol. She is going to tell me if I have AS or Reactive Arthritis next time I go, but I think it is AS. So no...I don't have a physician who believes this. My neurologist says everyone has bugs, so won't agree to help.As I am bedridden today and was not before the Solumedrol, I am rethinking it all and would like to get an answer, get treatment and move on as you say...what to do from here to get some relief from this right now is the question. I have severe spasms, weakness, muscle twitches, constant sweating, itching and on...Thanks again...

Have you been in touch with Dr. Michael Powell, in Sacramento?   He treats several people who post here.

The dose you are taking of doxycycline is way too low to do anything: make an appointment to see Mike Powell straight away then hopefully you will start to improve: you couldn’t find a better person so don’t waste the chance .................SarahA Journey through Light and Shadow

Thanks, I will call Dr. Powell.  I saw him some years back, but at that time what he was proposing was not what I could do.  I would like to get retested for Cpn and for Lyme and other viral activations and I think he will do that for me and then set up a doable protocol if I am a candidate.I am still wondering how the steroid pulse could cause me to be so much worse than before the steroids. I spent the night sweating all my muscles are so fatigued they feel clogged. I am shaking and the sides of my head are on fire.  My muscles are twitching constantly.  Also, I feel like I can't breathe enough air in and that my muscles in my core are tightened down all the way like an MS hug kind of thing. Weirdly enough, my joints are all stiff and painful and that is after steroids! On top of that my husband brought me outside and I am so photosensitive that I can't have any sun touch me. I feel pretty well educated a lot of time, but I am at a total loss.My body feels like it is at war and just a few days ago all I had wrong was a weak leg...I could get out and feel more or less norma...just limp a bitl. Puts it all in perspective now that I cannot move and am in intense pain.

What to do to calm the flare then? Ideas? I realize a lot of my symptoms are mitochondrial dysfunction at this point along with other hormonal issues. I've upped my CoQ10 to 300mg. and started to take apple pectin to mop up toxins alond with hydroxytyrosol (olive leaf). Any ideas are appreciated and thanks so much...so much!

So I made an appointment with Dr. Powell, but since it has been 3 years since I 've seen him I have to wait until September.  I hope that my body can make it. Today, I woke up with very little use of the left side of my body and some issues with the use of my hands in general, plus burning pain on both sides of the head...I had NO idea that the body could produce such weird symptoms...truly bizarre. Thanks everyone...

It looks like your Dr is into Antibiotic Protocol (AP, Mc Pherson Brown) which could be a good start (actually open to the idea that chronic infection is behind arthritis, Mc Pherson-Brown resisted the idea of autoimmunity for half a century, only to fail to identify the right pathogen--he died in 1989 of prostate cancer, an illness not unlikely caused at least in part by Cpn). Perhaps your Dr can be educated, with material from this site. If you want to prepare some disease-specific material for your Dr, consider the papers by Dr John Carter, University of South Florida. E g:http://www.ncbi.nlm.nih.gov/pubmed/21864020http://www.ncbi.nlm.nih.gov/… fact that you are HLA-B27 positive (as I understand it) would normally get you a quicker diagnosis (we who are neg don't escape the illnesses of the spondyloarthropathies, they just advance more slowly, and with less structural damage, a good thing, but worsening the odds to get a proper diagnosis). It does play a definite part in the fusion you've suffered, regrettably (and you didn't have the "benefit" of making your illness more obvious to your Drs).http://www.ncbi.nlm.nih.gov/pubmed/17899306http://www.ncbi.nlm.nih.gov/… info on imaging (diagnosis) of the SpAs: spa-imaging.orgCompare that to Carter's papers (he essentially suggests that they are all the same illness, caused by chlamydiae).As steroids suppress the immune system, there is potential for ALL present infections to excaberate, including chlamydiae.My own joint symptoms improved greatly on the bacteriostatics (dox and rox then) in just a few weeks (they are also anti-inflammtory). Still reacting to pulses after almost two years. HLA-B27 neg, hence no signs on plain xray (and a slow disease progression somewhat fooling myself, as well). Very difficult to get Drs who understand this and  Lyme Dr (foreign, as none here) only somewhat knowledgeable of Cpn. I tested negative to chlamydiae in March 2010 and then positive in August, with no signs of acute infection in the meantime. Tests are not reliable signs of absence of chronic infection.  There antiinflammatory alternatives that do not mess up the immune system, some of the natural ones are even anti-microbal. Try different, as different people seem to react differently. Turmeric, Silymarin, Ginger, Garlic, etc.There is always the self-medication route ;-) Apart from it, one can do otc stuff that has some antichlamydia effect (NAC, D3, B3, herbs..).Good luck