27 Apr 2018

Help with peripheral neuropathy


Just new to Help with Cpn. I'm having multiple problems and don't know what to do. Have been sick for thirty years. First bout of profound fatigue and brain fog was 1984. Developed multiple chemical sensitivites in 1994. Tested positive for Cpn in 1998. Started high dose doxy back then, which failed to maintain any improvement after two years. Discovered Marshall Protocol around 2005 and gained some improvement but stopped antibiotics after four years as i couldn't get reliable medical information on the treatment.


Hi DingoBlue2,I don't have MS - my Son Rick does.  He's started his protocol just about 8-10 weeks ago.I do however have Peripheral Neuropathy.  Given your description - this may or may not help - but is probably worth a try.My Peripheral Neuropathy improves significantly when I go GLUTEN FREE.  It's not easy to be entirely gluten free, but it can be done.  Gluten is found in wheat, rye, and barley - and sneaks into foods too - such as Soy Sauce.Gluten is also implicated in Gluten Ataxia - and for Rick - his "Non-Celiacs Gluten Sensitivity" means he gets significantly weaker fairly quickly after eating even a tiny amount of gluten.The good news is - a Gluten Free trial is fairly easy - 3-6 weeks of being gluten free should be enough to tell if it's going to help.  If I were to start Gluten again - my feet would be "burning" in about 3 weeks time - and those symtoms take about 3 weeks to dissappear once I cut it out again. I know - because I've confirmed it by trying it both ways several times.  When you are gluten free - going back on gluten is known as a "gluten challenge."I would definitely encourage you to try this out - as the cost to you of doing so is small (sacrificing those doughnuts or crouisants you might love, etc.) - but the return could be pretty high if gluten is causing any of your issues.  It could be a cause of more than one issue. Seems some folks here had their gluten sensitivity disappear once they'd been on the Wheldon / Stratton protocol for some time....Best & Highest Regards - and my sincere wishes and prayers for as smooth and complete a recovery as possible.Tom

Proud Parent of Rick - R started CAP in Nov. 13. Small measurable improvements as of 7/14, more by 10/14.  Holding Steady in early 2017.  "I will leave no stone unturned, no theory unexamined, to help my son." Tommi

I started having peripheal neuropathy when i contracted cpn but about a year after I was diagnosed. My mom told me about metanx and it started it.  It helped me but I also went all organic, non processed, gluten free foods.  and I was on abx and flagyl pulses.  Hope this helps.  

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

I'm not sure if you are asking me or Tom, but my b12 were fairly normal.  I'm not sure about my folate levels.  I did the genetic genie testing and I have the MTFHR mutation. I believe it's the A type.  

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

R-lipoic acid helps ( ALA ) alot, but you need to make sure you either get the R-lipoic or supplement with Biotin as plain ALA will deplete your biotin causing hair loss and lots of other stuff. Linda