27 Apr 2018
Author
Pink
Title

desperate times....anyone with CFS ever used prescription amphetamines?

Body

Hello Friends,I just had to choose this new category......"Generally Falling Apart".......oh my goodness, nothing could ever ring more true......Guys, this will probably sound like a really really bad idea......has anyone here with CFS ever used prescription amphetamines (prescribed and monitored by a doctor!).  The reason I ask is that I am facing a very long, stressful, drawn out insurance battle.  I have been on LTD with my workplace insurance for over a year.  But, I am obligated by that company to apply for the government disability insurance (so that they don't have to pay me as much)

Comments

Oh, Pink how I wish I could be there to hold your hand and help you through this difficult time.   Having been through the process of form filling and medical examinations for financial support from the governments with my daughter, I know how demanding this all is for you and we did not have to go to court.

I cannot give you any advice about the amphetamines or the battle you face, I'm not qualified by knowledge or experience in either; but I can listen and encourage you in the dark times as can many others here.   Maybe someone will have had experiences similar to yours and will come forward with some useful hints.

Four months on the CAP is not long enough to show any marked improvements, you don't say whether you are doing the pulses yet and whether you feel any different on or off them.   I think that I noticed some changes in my hair growth after about 3 months, but it was a very slight improvement, that I might not have noticed if it had not been visual.   Ella (MS) was four months into the treatment of the two bacteriostatics before she became stable, by that I mean that she was no longer getting worse.

Hang in there... you can do this, this is just a phase you are going through, it will get better. 

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy, also spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Pink- I know of a number of CFS/FMS folks taking Adderall, Ritalin or Provigal to very good effect in terms of brain fog and general energy to function. While there are a lot of folks who think these meds are poison, I think they can make the difference between being able to work or being on the dole, between living a more functional life or being mired in dysfunction. You can PM me for more, but I would not hesitate to use them, especially in the situation you are in.  Our diseases are bad enough, and I don't think there is any virtue in suffering or being "pure" in one's treatment. I think there is much virtue in being able to function in life despite disease! Whatever can help...

The differences: Provigal is the most selective of these medications, and seems to act almost exclusively on the wakefulness center in the brain. It is used to treat narcolepsy (falling asleep) and helps mostly in CFS to keep people more alert. Some people feel "weird" on it though.

Adderall is an amphetamine stimulant, and used commonly with ADHD. Ritalin is used similarly, and is a non-amphetamine stimulant. Both increase alertness and cognitive focus, while Adderall has more physical stimulating effects, so useful also in the fatigue of CFS. Both also come in time release formulas, or are taken two to three times a day. Some people respond better to one than the other. You are likely to feel "speedy" from either, but this tends to wane as you use the medication over time.

If you have sleep disorder, you have to be careful not to take these too late in the day, and for this reason also some people don't do well with the time release versions as it last too long for them into the night (depends on your digestive time I guess).

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 150mg INH, 300mg Rifampin, 200 Doxycycline, 500mg mwf Azithromycin, plus 500mg Tinidazole 2x/day pulses every two weeks. Whew! That's a lot! about 60

Thank you so much for your support Michele - it means alot !  I haven't done a Flagyl pulse yet, it has taken me this long to work up to the (almost) full Doxy dose with the full Zithro.  I hope I will be able to get my doctor to prescribe it (the Flagyl) - I think he has forgotten it's to come, and isn't really all that committed to me/the protocol.  Hopefully in the next month or so, I'll be able to join the Flagyl Club.....or the "Flagyl-ants" (a modern day version of people indulging in making themselves feel worse in order to feel better!!!!) hahahaha

And Jim, thank you so so much for the info on stimulants/amphetamines.  I take to heart your words of wisdom.  Suffering with such debilitating chronic diseases is no picnic, and steals life away from you.....Sometimes, desperate times, call for desperate measures.  I often wonder if EBV has been shown to damage the centres in the brain responsible for wakefulness and perception of pain, maybe other pathogens do too, or exacerbate that.  It was interesting to read how these meds wake up those same centres that are somehow on permanent snooze bar mode......

I'll introduce this possibility to my one doctor this week and see what happens......

Thanks again, guys!

Pink

FM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.
37 yrs old, sick since age 26 and still trying to find a way back to health.....

 

PinkFM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.37 yrs old, sick since age 26 and still trying to find a way back to health..... 

I normally sleep ~10 hours now, about 90 minutes more than I did before getting sick. But last summer I had a real bad problem with somnolence (apparantly heat-dependant) and was looking into stimulants... I didn't get very far because I was so tired.

My main concern was the question of long-term outcome... i.e. would there be any chance of ending up back at the same place, or even at a worse place, due to tolerance etc. So my goal was to find some really long-term studies. If you turn up any of those, for (dextro)amphetamine or methylphenidate (Ritalin), I'd love to know about it, and would gladly email your the full text.

I know a CFS patient who loves modafanil. Not sure how long she's been taking it. I tried adrafanil; I found it extremely effective for a couple days, then it lost all effectiveness despite using the max recommended dose. Then I trialed another catecholaminergic drug called amineptine (not FDA-approved); it launched me on a totally blissful superintellectual mania for 36 hours, after which my brain felt like a frayed, unravelled circuitboard baking in a steaming dumpster in full sun on a humid 105 degree afternoon. This persisted about 4 days, so I quit taking amineptine and was back to normal after a night's sleep. YMMV... monoaminergics just don't do well with me; e.g. during my period of severe CFS I tried ~10 different antidepressants which all made me feel horrible.

Modafinil (Drug name) Provigal (Trade name) is used in MS fatigue and other types of fatique with good results and documentation to support its use.  I suggest you try this before any older drugs.  Amphetamines have well known side effects which I am sure you have read about.  Good luck with your battles ........ Mark

Mark Walker - Oxford, England.
RRMS since 91, Dx 97. CFS from Jan03.  DW Patient-Feb06, started emp CAP(DW) in Mar06, with Copaxone. Pharma Consultant (worked til Jan 03).

Mark Walker - Oxford, England.RRMS Nov 91, Dx 97. CFS Jan03. Copaxone + continuous CAP (NAC, Dox, Rox) Feb06 to May 07. Met pulses from Jun06. Intermittent Abx from June 07 onwards.

Thanks guys.  I am going to ask my doc for Provigal tomorrow.  Wish me luck......I'm sure I'll come up empty handed though:(

I've read good reports on the internet of its use for CFS.  The only bad thing I read is that feeling more alert etc during the day, a person can "over-due" it.  Chance would be a fine thing!!!!!!!!!!!!!  I've also heard that the positive effects can wane over time.  Still, a respite would be nice......

I just honestly can't take this hypersomnia anymore.  Eric, I can relate to "not getting very far".  It's a real shame most of us are all out there in our conditions having to dredge the canals on our own, for any modicum of relief.......... 

Pink

FM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.
37 yrs old, sick since age 26 and still trying to find a way back to health.....

 

PinkFM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.37 yrs old, sick since age 26 and still trying to find a way back to health..... 

I take concerta er which is a time released stimulant for ADHD which I did not have until I got sick and my mind was all over the place and I thought I was crazy. I take it in the morning (6-7am)and basically it allows me to function until around noon or so. I was also given ritalin to take noonish when the concerta wore off but usually dont take it due to would just rather rest. The good thing about the concerta er is that you get dosed every so often so you dont feel to much at once. Also I think Jim said ritalin is a non amphetamine but it is. There is straterra which is a non amphetamine and I have not tried that one. The concerta is supposed to last 12 hours and the ritalin is supposed to last like 4 and I believe is cheaper being that they have a generic (i think),

 

Dizzy

 

 

Started caps for cpn 10/10/06. 

CPN, FM,CFS,EBV, and some other mycoplasma pnemoniae

Starting back on zith M,W,F 125mg

CPN,MPN,EBV,CMV,CFS,FM,PARVO B19(think that is the number),
HHV6, TO BE CONT........
NOW ON A CLINICAL TRIAL FOR CFS THROUGH STANFORD FOR CFS, EBV, AND HHV6 STARTED AUGUST 1ST.

Hi Pink! i am not on the protocole but my father is. I have beean in investigation fora long time. The eurologistes say that they know i havesomething but they cant put there finger on it. I was recetly diagnos with dysautonomia wich mean "nervous systeme autonome dégénérative" (that is king of half french half english (hope you understang) and maybe chronique fatigue also. Anyway, I have bean taking dexedrine 30 mg in morning and 30 mg at noon (witch is the maximun dosage 60 mg a day). It is thru that if you take them late, it mite keep you awake at night. The right dosage for every person. I do see a realy big difference, without theme i can not make a day, i need to sleep all afternoon and I could sleep all I want. It give's me energy to moove. I personnaly dont have side affects that batters me but like I said I am not on the protocole. I do not like to take medication, I would rather find another way, but i'm just 31 years old and have 2 kid's that are young and I need to be there for theme. And right now, this is the only way for me to be abal to go thru the day. Hope you got some good advice and answers from your doctor. I am no expert but I wanted to answer your question and Just wanted to let you know how I felt taking amphytamine. Maybe one day we will find something more naturel??????

Good luck!

karen b

karen b

Dizzy, et al.- Ritalin is indeed a stimulant, but because it's chemical structure is somewhat different it is called ") is an amphetamine-like prescription stimulant" (Wikipedia). At any rate, the effect is the same. Concerta is simply a time release Ritalin. My patients who have used Strattera have mixed results. Some find it very effective, others not at all. Studies keep showing that it's effect for ADHD is the same as the stimulants, but the clinical observations aren't as consistent. Strattera acts on the norepinephrine system rather than dopamine system, and therefore has no potential for addiction or abuse. The time release formulas of both Ritalin and Adderall do have a smoother action for some people, as dizzy says, less of a rush and a jangle.

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 150mg INH, 300mg Rifampin, 200 Doxycycline, 500mg mwf Azithromycin, plus 500mg Tinidazole 2x/day pulses every two weeks. Whew! That's a lot! about 60

Hi Guys,

My doc denied me............I am so disappointed.  I will push for it again at the next appt in two weeks, and if I cannot get something, I will have to try to figure out where I can get someone to help me.......At first she said no way to the Provigil, then she considered Dextroamphetamine, then she changed her mind on that.

I have ZERO quality of life here.  I cannot even stay awake to watch TV, or do anything.  Every evening after supper till bedtime is spent on the couch in a semi-sleeping state (followed by 12 - 14 hrs in bed).  And during the day, even for driving to appointments etc, it would be beyond helpful to be able to keep my eyes open.  Especially now when I have this legal battle over insurance, and I cannot even function to prepare my case when my whole life is hanging in the balance here.  I feel so desparate, so frustrated, and so devastated.......... 

Pink

FM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.
37 yrs old, sick since age 26 and still trying to find a way back to health.....

 

PinkFM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.37 yrs old, sick since age 26 and still trying to find a way back to health..... 

Bah, I sympathize. Experienced similar in trying to obtain antimicrobials, analgesics, and antidepressants. I have no patience for it, being sadly underfluent in the manipulation of our fellow naked ground monkeys, as has been thoroughly demonstrated, and pretty short on testosteronish airs and postures... more the omega male, or upsilon at best I guess - but anyways why inquire, don't mind me, just quietly sitting here breathing a small amount of air.

I found out that (if you have money to pay) there are licensed, "boutique," patient-sympathetic clinics that prescribe opioids (in the US anyway). This information comes too late, as I am not in pain anymore. I don't know if corresponding clinics exist for stimulants. There are certainly more- and less-helpful doctors with greater or lesser interventionism with respect to CFS.

(As to whether stimulants, opioids, etc might hinder (or even help?) the attempt to kill bacteria, I have no opinion.)

"Boutique" medicine and what, "Production" medicine, or "Lowest Common Denominator" medicine?

Pareto's medicine? My primary care physician practices quite unapologetically as basically providing service for the 80% of complaints that come from 20% of medical conditions. He's really good at it, if that's what you need.

Kind of McDonald's style: in and out quick, gets you back on the street with a minimum of involvement and fuss. McDonald's is really good at that. If you need involvement and fuss, they'll give directions to the "Fine Dining" establishment down the road.

What's really dangerous is a doctor that's actually doing production medicine, but is unwilling to lose the business of people who need more. "The Big Mac made you sicker? Try TWO Big Macs! Try one of these fish sandwiches! That didn't work? You enjoy being hungry, don't you? You get a lot of attention out of being hungry, I'll bet."

Sheesh. Why not just admit, "We don't do a fluffy omelet with ham and spinach here, try _______ down the road."

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Currently: doxy & zith -- continous; metronidazole -- 4days on, 7 days off.

RonOn CAP for CFS starting 01/06 (NE Ohio, USA)Began rifampin trial 1/14/09Currently: on intermittent

Ohhhhh, thank you Ron and Eric for the chuckle - I so needed it!  You boys are fuuunnnny!!!

I am the same Eric, never having quite mastered the art of manipulation.  Besides, many doctors I've met are a little like snake-charmers themselves......they suck your brain in at the appointment, into their twisted logic, and you end up saying (for lack of a better option)........yeah.......yeah.......I'll take another Big Mac.............sock it to me doc, extra secret sauce please!!!!!!!!!!!!!!!!!!!!

PS.  I can almost hear the french fry timer going off at one of my doctor's......time's up!!!!!   

Pink

FM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.
37 yrs old, sick since age 26 and still trying to find a way back to health.....

 

PinkFM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.37 yrs old, sick since age 26 and still trying to find a way back to health..... 

D W

Overheard at the drive-in surgery] Keep taking the Big Macs, MWF, McNuggets 1 twice daily. In three months time we add in the pulses of fries. Maybe in five or six years we can make all this intermittent. No sunlight and plenty of hydrogenated fat. Nice vehicle you have there; I'll bet you don't get more than 8 mpg out of that. [Obligatory small talk.]
cash-till] Ping.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. Improved; normotensive.]

 

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

Of all the metaphors offered for the CAP, this one is probably the most hilarious. Would that the CAP were actually "fast food!" 

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 150mg INH, 300mg Rifampin, 200 Doxycycline, 500mg mwf Azithromycin, plus 500mg Tinidazole 2x/day pulses every two weeks. Whew! That's a lot! about 60

I've tried it and found the net result was a major crash. I got a short boost but the after effects were not worth taking the drug.  If you want to see how you might react, you can try taking Tyrosine supplements. It will have the same basic effect and you don't need a prescription to try it.

Your legal battles may be easier if you had a CFS doctor to support you. If you're in Ontario, try Dr Alison Bested in Toronto. She's helped a number of her patients get through the legal ordeal. If you look in her book Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia you'll find a chapter on legal support. You might find it helpful to read.  I've also heard others have received good info from contacting www.mefmaction.net/Patients/LegalIssues/tabid/168/Default.aspx.

CFS-2004

CFS-2005 CPN 2500mg NAC daily

Thank you sooooooooooo very very much CFS-info.

I have been looking for a doctor in T.O. as it would be only a 1 hour flight for me.  Her credentials look good.  I don't have alot of time to prepare my appeal and there is so much to do, so much to get organized, and I feel sooooooooooooo sick.  I don't know how I will manage anything at this point, much less just crawl in on my hands and knees into the Tribunal................

I contacted the Pres of ME/FM Action and she sent me some info re: the legal stuff this past week.  Nice to have two national CFS/FM organizations based in my own home town.

I feel like my main doc(s) just do not understand the scope and magnititude of illness of CFS, hence my considering trying to find someone in addition - I had not heard of Dr. Bested so thanks very much for the tip! 

Thanks for the thoughts on the amphetamines, IF I get an RX I will watch for that.  Does Tyrosine also work on the Thyroid somehow?

Pink

FM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.
37 yrs old, sick since age 26 and still trying to find a way back to health.....

 

PinkFM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.37 yrs old, sick since age 26 and still trying to find a way back to health..... 

Ohhh, and thanks DW for the chuckle too - much appreciated!  I still can't help smiling as it reminds me of when I was young (and healthy) and travelling/working in Britain.  I caught a cold and my kind and worried employers said they were going to call the doctor to come from "surgery" to see me.  I was AGAST!!!!!  I said no, no!!!!  I had this vision of the doctor leaving a patient on the operating table with his chest opened just to come and attend to my measly cold!

Ahhhh, the naivity of a young, healthy 23 year old!  I only later found out "surgery" means "clinic" in Britain I believe:)  I had many a similar foible while living there - who knew we didn't really speak the same language?:) 

Pink

FM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.
37 yrs old, sick since age 26 and still trying to find a way back to health.....

 

PinkFM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.37 yrs old, sick since age 26 and still trying to find a way back to health..... 

D W

Good, Pink! Your post makes me think of that quote: ''the English and the Americans are two nations divided by a common language.'' No-one seems to agree on who invented it; Oscar Wilde said something similar but uncharacteristically clumsy, and Winston Churchill probably neatened it up.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. Improved; normotensive.]

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

I'm not sure about all the impacts of Tyrosine. Another doc suggested I use it for an energy boost but it just made me crash afterwards.

Dr Bested is excellent. She helped write the consensus document you referred to in your original post. Here's her contact info www.thedoctors.ca.  I suggest you read her book. It may give you some ideas to help cope. It should be in your local library by now.  She is also speaking at the Women's Health Forum in Toronto Jan 20th if you feel up to a trip to TO. The lawyer that contributed to her book is also speaking with her. www.womenshealthmatters.ca/forum/docs/saturdayframes.html

CFS-2004

CFS-2005 CPN 2500mg NAC daily

have you had the adrenal gland tests and such? If your adrenal is low or some doctors treat it even if its anywhere near low, you might find thats half your problem. endfatigue.com is where I got the help I needed for the fibro/cfs as well as the cpn. The vitamin powder there helped me the most of anything ive ever taken energy wise. And the doc who makes it doesnt take a profit or anything.

Stress makes adrenal gland work harder = eventual burnout of adrenal gland= fatigue and crashing during stress it can even cause death in extreme circumstances= you may need adrenal hormones.

The fibro and fatigue center docs along with others on that site can show specific tests and studies for the "proof" you are looking for. Doc T himself has done excellent studies and has the best treatment protocol Ive come across, which includes testing/treating these chronic infections. You should surely get his book it explains a lot and will help you.

CAP- zithro, flagyl, plaquenil - CPN +, fibromyalgia, endometriosis, b12 deficiency

I have been diagnosed with CFS and tried Provigil a while back when I was having severe fatigue.  It seemed to help a great deal, but caused me to feel shakey and wired.  After being on Zithromax for a few months the fatigue started to be less severe and I started to have more energy so luckily I didn't need the Provigil anymore.  I would definitely continue to try to find a doctor who will proscribe it, as it might help you to function at least at a minimal level.  Unfortunately I don't know any doctors in Canada.

Best of luck.

Pink,

I am 46 and had suffered with FM/CFS for many years until I stumbled across a 47 year old appetite suppressant named Phentermine. It was the safe part of the popular diet known as Fen-Phen. While often described as one, Phentermine is NOT an amphetamine and it is NOT addictive. I have used it off and on for the last 12 years.

I was to the point of constant, total exhaustion when I began using it. Within 45 minutes of my first dose, my life changed. The brain fog lifted and I could once again think clearly. My memory returned as did my energy.

Over time my body had lost the ability to make and manage dopamine (the counter-balance to seratonin). Phentermine is a time released drug that provides the brain and body with a consistent level of dopamine throughout the day, thereby regulating the pain/pleasure regions of the brain. This alleviates a great deal of pain caused by Fibromyalgia while allowing more energy for the body. A side benefit to this amazing drug is that with increased dopamine levels in the body, overactive immune systems are brought back inline and catabolic damage to the body is reduced.

I guess in many ways I am a walking testimonial for the drug. I have no stake in it other than I believe it saved my life or atleast my quality of life. You can order it online and even speak to a dr. I have a great doctor who is cutting edge and is very supportive of patient research efforts. He has often allowed me to self prescribe (within reason) different drugs and protocols to help alleviate my problems.

I will ask him if he would be willing for me to post his name and information for members of this site. Keep you chin up, we have all been there and there is hope on the horizon. The sad truth is that if you want to get better, it most likely will be all up to you to do it. That is why support groups like this are so critical to our success.

I wish you well and will check with my doc about posting him here.

All the best,

Stewart

PS you can find out more about phentermine at   www.phentermine.com

 

Stewart: Former sufferer of FM/CFS. Current Metabolic Syndrome/ Syndrome X. HBP, Hyperinsulemia, Systemic Inflammatory Disease & Chronic Gout. Daily CAP for CPn: NAC 600 2x, Doxy, Azithro, Non-pulsed Metronidazol

Hi Stewart,
Thank you so much for the email, and your testimonial.
I agree with you that, unfortunately in our sickness, we usually have to take the ores of the boat and start rowing ourselves (because left to our usual doctors, we would just sink..........).

Why do doctor's not understand quality of life? I am on disability, for goodness sake, I have no quality of life that I should be denied any of the methods that are recognized as legitamite treatments for FM/CFS.

I do believe Stewart, that even in SOME cases (perhaps like yours) trying a treatment CAN reactivate, rebalance, etc some bodily symptoms and result in a cascade of positive domino effects (if you are lucky). All the more reason to give treatments that might help, and are no harm, a try IMO.

So far this year I have been DENIED:
1) Lyrica - for neuropathic pain which debilitates me and prevents me from leaving my house because it is triggered by heat and light
2) Antibiotics - for confirmed Mpn and suspected Cpn
3) Antivirals - for chronic EBV
4) Amphetamine type meds - for constant hypersomnia, severe brain fog and unrelenting chronic fatigue.

Thanks again, Stewart,

Pink

PinkFM/CFS, Celiac Disease, rosacea, Raynaud's, peripheral neuropathy, etc.37 yrs old, sick since age 26 and still trying to find a way back to health..... 

Pink,

Well, as far as doctors are concerned, I believe their egos get in the way. Chronic diseases remind them that they aren't gods and have limitations. So they try to rationalize away your pain or partition your symptoms into something they can numb, cut out or irradiate.

By the way have you had a recent blood panel drawn? It is critically important to find out what is going on within your body. You need a full battery of tests to check Lipids, CRP for inflamation, liver and kidney function, insulin, cortisol, and estrogen levels.

Here are some alternatives I have found over the years that may be more acceptable to your doctor. Also, certain herbs and vitamins taken in mega-doses can also have medicinal effects and generally, they are much cheaper than Rx drugs. It is worth doing research to find out. I had to use herbal solutions for many years just to survive. I still use them and would never consider going without them. 

  1. Try Cymbalta by Eli Lily & Co. for neuropathic pain AND damage. It is classified as an antidepressant, but also helps repair your myelin sheath that is so easily damaged. It also helps with hypertension and it doesn't cause weight gain.
  2. DHEA or Testosterone SHOTS - both men and women need testosterone in the proper ranges in order to rebuild, repair and heal the body. Shots greatly reduce the additional estrogen load caused by DHEA taken orally.
  3. For Antibiotics and Antivirals take Olive Leaf and Oil of Oregano.
  4. For Energy (rather than destructive amphetamines) try Guarana Extract or tablets. Green tea extract can give you a lift as well.
  5. Vitamin C is perhaps the greatest weapon against all dis-ease. Taking massive doses will flush out the toxins trapped in a slow moving colon.
  6. Proper elimination is ultimately the best place to start. If you can't process and eliminate the toxins in your body in a timely manner, the poisons will begin recycling through the blood stream.

For a more complete list and/or explanation, check out the supplement chart at

http://www.cpnhelp.org/publicimages/allsupplementschart.html

There is so much more, but I don't want to overwhelm you anymore. There are answers and solutions but they require, as you said, "taking the ores" ourself and rowing to the shore. I believe that the greatest weapon or tool in our struggle is simply hope. It gives us strength to carry on because tomorrow may bring the answer we are looking for.

Hang in there,

Stewart

Stewart: Former sufferer of FM/CFS. Current Metabolic Syndrome/ Syndrome X. Hypertensive, Hyperinsulemia, Systemic Inflamatory Disease & Chronic Gout. CAP for CPn or other systemic bacterial infection that causes inflamation. Be

Stewart: Former sufferer of FM/CFS. Current Metabolic Syndrome/ Syndrome X. HBP, Hyperinsulemia, Systemic Inflammatory Disease & Chronic Gout. Daily CAP for CPn: NAC 600 2x, Doxy, Azithro, Non-pulsed Metronidazol