27 Apr 2018
Author
lishka
Title

Could difficulty swallowing be related to Cpn?

Body

My recent bloodwork indicates that I have Cpn. I haven't begun any treatment protocol or supplements yet (this is too new and I'm trying to make sense of everything). One thing I'm wondering is if others have had difficulty swallowing and whether or not it has improved as you've treated the Cpn? In my quick search, I only found one post that suggested this. I've struggled with many issues over the years, but the main one that plagues me now is difficulty swallowing. My diet is basically liquid these days. Not fun for someone who loves to eat!

Comments

At the peak of my Lyme symptoms, I had a couple of occasions that the muscles in my throat went a bit numb making swallowing difficult. It scared the poo out of me. I had been taking only herbs as part of my treatment protocol up to that point, but immediately went home and started Doxy. It passed and I haven't had the problem since.

I can't say what the problem was for sure, nor can I say that Cpn or Bb would specifically be or not be the cause, but it wouldn't surprise me at all that swallowing could be affected directly via inflammation and swelling or indirectly via neurological impairment. Either way, when faced with a similar concern, I started treatment.

Tennessee, USA - Bb positive w/neuro involvement, suspected CPn

Doxy/Samento for Bb 2005-2007

Started CAP 4/19/08 - NAC 2400mg, Doxy 200mg, Zithro 250mg M/W/F

Tennessee, USA - Bb positive w/neuro involvement, suspected CPnDoxy/Samento for Bb 2005-2007Started CAP 4/19/08 - NAC 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F, Metro pulses @ 3x500mg

Bob's explanation makes sense.   You seem to have so many things wrong that it is difficult to decide what might be the cause of this.   Many of us here have oesophagitis, and many others MS.   Either of these groups might have difficulty swallowing for different reasons, but from both groups people have made progress with these symptoms.   We cannot say of course how the treatment is going to affect you, but if you start slowly enough you should be able to control your reactions to it.   And slowly enough will depend on your reactions.   You are probably well used to monitoring your reactions so you will know how much you can cope with.   Check out the Treatment Protocols and the Supplements pages in Getting Started Tab at the top of the page.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

I had some little problem in swalloing liquids but I never mentioned it, as nobody seemed ready to believe it would be related to Cpn. Now it is OK although I still have some Cpn.
At present I have no doctor following me; the one I had said I should stop abx in spite of IgG anti Cpn= 1:1024. I tried for a month but I have started again and will also resume tini or metro. pulses
Nino: French Riviera, Cpn pneumonia june05 (misdiagnosed). Self diagnosed-treated. Sept.06 found doctor who confirmed Cpn, prescribed Zit 500mg every sec.day.I added NAC, supplements, metron.pulses, 200mg Doxi.

Nino: French Riviera, Cpn pneumonia june05 (misdiagnosed). IgG 1:1024. Mino 100mg bid, Zith 250mg every other day, NAC 2.4g, Metro 500mg bid pulses.

Hi Nino nice to hear from you.  Would love to see your updated signature when you can get to it.  How did reintroduction of Abx go for you?

Louise

CFS/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxy, Roxi, Full TiniPulse#5 pulse cycle day 10 today.  Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences prevention and treatment days 5 - 14 of cycle, 1 to 2 packets.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

I have had difficulty swallowing from time to time over the years and in the last couple of years I have had the added (and alarming) sensation that I was being choked. It turned out these were symptoms of GERD.

EDIT: I just looked up "oesophagitis" and see that I need to learn the proper language. Sorry about that.

Corinna | GFA. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Corinna, there is no proper language here, we 'speak' (write) mostly English with different flavours (British english, Canadian Englsih, US English, English as a second language, Texan, Scottish etc) and somehow we all understand each other. This is a great community of generous and open minded people, you use whatever words you want, to say what you want to say... The only people who get in trouble here are the ones who are trying to get us to part with money on their products. Even those who occasionally loose their cool, are understood and supported, because we all know what it feels like to be desperate and ill, or to look after someone who is.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Corinna, I am the typo queen.  Constantly needing to correct my typing once my post is sent.  I really enjoy knowing that there is more than one way to spell a word.  And to note medications can have a number of names, genric then different names in different counties all meaning the same drug.

Louise

CFS/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxy, Roxi, Full TiniPulse#5 pulse cycle day 10 today. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences prevention and treatment, 1 to 2 packets with an extra glass of water afterwards..

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
lee

Yes
It was my first symptom. It kicked up with the nac and with the zith. It is gone now for the most part.

zero negative sjogren's diagnosed 2/03, 200mg doryx daily, mwf zithromax, flagyl every 3 weeks.

200mg doxy daily, 500 zithromax mwf,flagyl 1000 m-fri.rifampin 2x daily,chloestryramine 2x daily

I can sympathise with the problem swallowing it's horrible. There are a number of things that can cause it but they usually present other symptoms. My partner had none of them, just the swallowing which he said felt like the food got halfway down then got stuck on a shelf.

This resulted in one memorable occasion when I took him out for a birthday meal at a very posh restaurant and halfway through the starter, he went quiet, turned a funny colour and threw up all over the dim sum. Kind of put us and nearby diners off the rest of the meal.

He had a camera shoved down his throat and they found a few polyps which were benign but it was all put down to Acid Reflux (GERD). He now has to take a pill every day but it's sorted the problem out. Neither of us dare go back to that restaurant though. Image removed.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April