The other day I had my initial appointment with my new neurologist.
I had prepared a detailed history of my MS. I also wanted to make sure she knew that I had done the "Wheldon Protocol" (and give her the opportunity to say, "Don't come back"). Her response - after glancing at it for just a few seconds - was, "I don't know what to make of this."
She had just conducted a physical examination and found no significant deficit. She acknowledged this surprised her for a patient more than a dozen years in. The records I had already provided provided confirmed I had initially presented with 1) Speech, 2) Gait, 3) Visual and 4) Motor control deficits.
So, what happened to the missing deficits?
I also provided copies of MRIs dating back to 2009 showing a sudden cessation of disease progression co-incident with the completion of the CAP. Is assume that is treated as a chimera; a co-incidence in the data and thus best ignored.
I took pains to point out the neurologist who made my diagnosis delayed making any diagnosis for nearly a year so he could not only meet - but exceed - the McDonald criteria for diagnosing Relapsing-Remitting MS.
Confronted by the abundant clinical evidence and concensus of no less than four (4) other neurologists, my new neurologist rejected the weight of their knowledge and clinical experience to speculate they had all been wrong and I must actually have "Benign Multiple Sclerosis".
Yeah, over the course of two years, I lost my ability to:
- See color,
- See my thumb at a distance,
- Sign my name,
- Control my bladder, and
- (Briefly) control my bowels,
But despite all the exacerbations and periods of remission proven by MRIs and current absence of deficit, my new neurologist rejected it all in favor of recasting my diagnosis.