Cpnhelp.org

The effect of antibiotics on gut bacteria is a real concern.  Long term use of antibiotics is new to me (only on antibiotics for a short 5 weeks so far), but there are members on this site that have taken antibiotics for a very long time (i.e., >6 months).  So, I too am rather interested in the opinion/experiences of the seasoned veterans here.

When I could no longer walk or dress myself and I had lost all sensation everywhere, I was more worried about trying to save my own life than about wiping out my own gut bacteria. I had absolutely nothing to lose at that point by trying abx. To be honest, I never worried in the least bit about gut bacteria - though I did always take a good probiotic (at least 50 million) at least a couple of hours after abx, plus lots of kefir, kombucha, sauerkraut, natural yoghurt and bone broth. I also never worried about the future need for abx - if I hadn’t treated the infection I already had, I doubt there would have been any future to worry about. I’m afraid most GPs don’t have a clue about any of this, as their only experience is infections which they think can be resolved with a couple of weeks of abx. I took combined abx for six and a half years and don’t regret a moment of it.

Emilyn, my experience was much like that of Boadicea, although I only took the antibiotics for a total of maybe four and a half years. With taking probiotics every day, some live yoghurt and/or another prebiotic, I finished that time with a totally healthy gut.

I was able to test whether the abx I had been consuming all that time, still worked a few years back, by taking five days worth of roxithromycin to sort out an infected thumb.  After two days I had stopped oozing pus around the nail bed and before the week was out, the thumb was right as rain.

boadicea

Can you please let me know the name of the probiotic .

c

Emilyn, for the first time in my life, I must say that I don't know. Well, I don't know for certain, but am going to do a bit of hunting before dinner!

The trouble is that doctors and pharma companies seem to have finally got together and managed to stop people ordering antibiotics from abroad.  This was abut three weeks ago, although I had been thinking it might happen for years.  

All is not lost though, but I will now swap over and send you a private message!  Give me time to write it though.

Emilyn, good news: await my message!

I can guess Sarah what that good news may be. You are amazing persistent dedicated committed to your fans and those of David on this site.  

neena

Neena, it is only a realisation about what is probably happening in this country and other European countries andhow we can maybe partially get round it!

Hi Everyone,

I think there might be further improvement in my walking. BTW I'm in the middle of my latest pulse - number 5 or 6. It's all written down at home.

As a reminder, I started the Wheldon Protocol in January. My memory and mental abilities improved almost over night; my walking remained bad and in fact, even got worse. 

And then.

Over the last 3 weeks walking started to become a lot better (almost normal, if not going up or down stairs!) between about 930 am and 4pm. Then it would deteriorate and become as bad as always. Nearly.
However , yesterday when I got home at 1730 I managed the stairs really easily, and later, my right hand was working properly too. For the first time! All evening, the limping was not as pronounced.
This morning, it was a lot less bad, and here I am at 8am walking pretty normally. Caveat: walking down stairs earlier was bad, but maybe a little better. I'm not sure.

Amazing. I feel great.

Kiki, I am overdosing on Vit K2 and biotin, as well as all the usual. I take Metronodizole (sp?) for the pulse.

xx, Lizzie

This published by the BBC 2 days ago:

Drug-resistant superbug spreading in Europe's hospitals

https://www.bbc.com/news/health-49132425

This does not appear to be a problem in the United States (not yet anyway).  Curious why is this a problem in Europe (?).

Im so happy for you Lizzie!

Im not so fortunate yet. Seem to get worse and weaker myself even with all supplements, loads biotin etc. Tini for pulse here. I feel overloaded and on my knees most days and still wondering whether Im doing the right thing. Going as far as thinking I might have worse than MS actually as no physical improvements at all( rather opposite). Halfway through pulse 6 at mo.

But dont let me rain on your parade Lizzie- Im sincerely very happy for you

Kiki

You go girl... soon the walking will be strutting:-)

Jan

Hi Scott,

I did try NAC one night (1000 mg).  I noticed that I perspired a lot that night, but it could have been the glass of wine!

Is excessive sweating a symptom of cpn?

Hi Jean,

The NAC reaction varies considerably from one person to another.  My experience was excessive sweating and diffuse abdominal pain within 2 hours of ingestion and lasting for a few hours.  This was definitely a "positive" Cpn response for me (and it repeated about 4 more times).  Did your sweating come on shortly after ingestion (i.e., 1 - 2 hours) or many hours later?  Perhaps you should try again without the wine :)  If the sweating repeats again, then that would strengthen the probability of a "positive" Cpn response.  Be aware there there are some conflicting views about taking NAC without also taking antibiotics simultaneously.  This is based on a single publication that came out in the past year.  I would like to see further studies before I take a position in this controversy.

i don’t post much but am a warrior and spectator none the less. The protocol confines! Am now down 2 pulses... I felt better during the second pulse, I mean while I was taking metro... didn’t feel too good after it, almost as if the body missed the third antibiotic. But I soldiered it on and a few days later felt better. When I say better of course it is a relative term, relative to my permanent condition, which can be bad. But I tend to measure  my good days from the bad ones as the ones where I am strong in the head. When I want to take on the challenge, which means call the plumber because the bathroom sink is leaking!

thats just me, but it gives me endless pleasure when can get off the bed on my own, walk around with a walker, attend a family lunch smiling.. there are already days when my right leg feels lighter.. can sit on a chair for longer periods of time.

so yes , each body is different and the curve can’t be the same!

till later then...

Hi Kiki, Sarah, Lizzie, Jan and all,

this year is fast fading and I look forward to the new year, which I hope will bring health to all.

Kiki, you are lucky -- as also Lizzie -- to have found this site and started the abx before things got pretty bad with your bodies. Sonal deteriorated sharply since 2015-16 and I feel we found this site and the Wheldon protocol almost in the nick of time -- even if rather late -- . Her disease seems to have progressed rapidly in the lasty two years.

But it seems all will benefit , some sooner than others, because the nature of the disease -- I am talking of MS especially -- is so different for different patients, affecting them so very differently.

Take care

neena

Dear Everyone,

Well, now 7 months have passed and things are continuing to improve. I know I have a long way to go but I feel I am steadily recovering.
Yesterday I went for the walk with my husband that I have done for many months. Apart from the fact I'm not staggering along beside him, grabbing his arm to keep me from falling, I need to rest much less. There is a bench I always 'rested' on, that I easily walked past. 

Sarah, you and Dr Wheldon have changed EVERYTHING about my future. I am no longer on a slide to the bottom that you can't get off. 
My brain and memory are back (worked out 16% of £150K in my head) , my sore mouth and shoulder are better, my droopy eye droops no more, my previously very thin and horrid hair is thick (I had a bald patch I used to hide), I am far less tired, I can follow complicated plots in detective series once more... 

Sonal, I started noticing little, strange physical improvements from month 2, and it went from there. The things you talk about: "there are already days when my right leg feels lighter.." I had exactly the same feeling about my right leg. I could lift up the toes when I was putting on shoes. 

Best wishes,
Lizzie xx