Sarah
Submitted by Sarah on Fri, 2019-06-07 20:38

(Some of these pages seem to have been lost in Jim and Kent's time, but gradually I will try to retrieve them or put in something even better.   Sarah)

 

Research found by site members:

Coming very soon!

 

 

 

The pages below on research articles are now reorganized into separate pages for each category. Doing this has been needed for some time, but it is with some trepidation we do this because in some diseases the research is very equivocal and incomplete. While you may be on this site for MS, CFS or FMS, it is the pattern of ALL the research that provides the depth and impressive volume about CPn and how it causes chronic human disease that makes the picture clear. Don't make the mistake of thinking this is some new idea or that it has only a few studies just because it is relatively unknown in one field and the page on your specific disease includes only a couple of studies. This is as significant to human disease as understanding staphylococcus, only we are talking in this case about chlamydia pneumoniae. Information about the germ applies and transfers from one field to the next: the important thing is to understand the pathogen and how it reacts in the body. Of interest you will find the material in the general, chlamydia pneumoniae bacterial research, and the cardiac sections provide a very great depth. Read these sections in addition to the one related to your disease and you will be miles ahead. Of course I recommend reading all of this stuff it is interesting! And hey we can add to this with so much room now so send along anything you think ought to go in.... Marie

 

General information : read this section for general information on chlamydia pneumoniae

Chronic Fatigue and Fibromyalgia 

Multiple Sclerosis

Alzheimers and CPn Cardiovascular Issues and Chlamydia pneumoniae

Please do read THIS material even if you are here for something other than cardiovascular problems!

Arthritis and Chlamydia pneumoniae

Respiratory Issues and Chlamydia including asthma

CPn and other diseases Lots of interesting stuff here! 

Interstitial cystitis, prostate enlargement...…….check it out, but we seem to have lost the links!

Lab analysis of Chlamydia Pneumoniae This is an important read for everyone

Antibiotic research in CPn This section contains links and abstracts of research on how antibiotics affect CPn in different stages as well as research on how the antibiotics recommended for CAPs penetrate various tissues.

Porphyria and CAPs

Endotoxin Research Of interest to the person in treatment

Chlamydia Pneumoniae Bacterial Research Don't miss this section no matter what you are here for!

Supplements Research and monographs for Natural substances usd in the protocols

Vitamin D Vitamin d is now on its own page

Chlamydia Pneumoniae Miscellaneous related material

Polymicrobial Aspects /Research This section is for the curious and serious investigator and will be of less interest to those who just want to do the treatment. It has become clear that there are some important implications for the person infected with more than one pathogen and that this is common. The combination of one or more pathogens that live and "work" symbiotically may possibly be the key to how people can have something like MS.

 

 

Comments

neenavyas

30 May 2019 01:55 am

see if this fits the bill of research I found it on net a few weeks ago:

 

Potential antibiotic treatment for multiple sclerosis? - The Lancet

 

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(02)07248-3/fulltext

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Sarah

30 May 2019 01:08 pm

Neena, yes I will use this on a page I want to start on really new research, so could everyone post the links here, then I will move them!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah

30 May 2019 01:24 pm

Please, to make life a little easier for me, please post any new links on cpn or supplement research here, then I will move it to my new page.

Diseases thought to be caused by cpn wanted, but please no lyme, which is well dealt with elsewhere.  A different pathogen in any case!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jan Figtree2019

30 May 2019 01:58 pm

Sarah--

I will hunt for the first article link I posted (I did not save it).

Here is another article that just came out:

Satiating Effect of a Ketogenic Diet and Its Impact on Muscle Improvement and Oxidation State in Multiple Sclerosis Patients.

Nutrients. 2019 May 23;11(5). 

Benlloch M1, López-Rodríguez MM2, Cuerda-Ballester M3, et al.

https://www.ncbi.nlm.nih.gov/pubmed/31126118

 

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Sarah

30 May 2019 03:01 pm

Thanks Jan!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jan Figtree2019

30 May 2019 05:09 pm

I support my mitochondria via supplements:  Ubiquinol, PQQ, L-Carnitine Fumarate, trans-Pterostilbene, Alpha-Lipoic-Acid

 

"Growth of Chlamydia pneumoniae Is Enhanced in Cells with Impaired Mitochondrial Function."

Front Cell Infect Microbiol. 2017 Dec 5;7:499

Käding N1, Kaufhold I1, Müller C2, Szaszák M1, et al

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Jan Figtree2019

31 May 2019 08:20 pm

A bit old, but interesting:

"Chlamydophila pneumoniae Infection and Its Role in Neurological Disorders."

Interdiscip Perspect Infect Dis. 2010;2010:273573. doi: 10.1155/2010/273573. Epub 2010 Feb 21.

Contini C1, Seraceni S, Cultrera R, Castellazzi M, Granieri E, Fainardi E.

https://www.ncbi.nlm.nih.gov/pubmed/20182626

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Jan Figtree2019

4 Jun 2019 02:45 pm

High-dose biotin paper:  I would like anyone to read it and give feedback as I am on high-dose biotin.  Thanks.

"Severe transient myopathy in a patient with progressive multiple sclerosis and high-dose biotin."

Maillart E1, Mochel F2, Acquaviva C2, Maisonobe T2, Stankoff B2.

Neurology. 2019 May 28;92(22):1060-1062.

https://www.ncbi.nlm.nih.gov/pubmed?term=(%22Neurology%22%5BJournal%5D)%20AND%20high-dose%20biotin

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Sarah

4 Jun 2019 03:32 pm

Oh, a different one than the MS one! Good, I'll post it.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah

6 Jun 2019 08:24 am

Jan, of course they don't tell you what the transient myopathy is in the abstract and I feel unwilling to pay $39 to find out, especially when I have been taking it for a couple of years and feel nothing but improvement whereas this case involves just one person! 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jan Figtree2019

6 Jun 2019 12:30 pm

Thanks Sarah!  I've also felt nothing but good on N-A-C (also for a couple of years)... but just like other eyes on the research as I am don't have a science background.   

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Sarah

6 Jun 2019 01:22 pm

Um, Jan, I was taking about biotin, not NAC. However, I have been taking that as well, though not in super-high dose: just 2500mg to start with, now 1000mg.

Incidentally, my science background stopped when I was 18, apart from what I taught myself later and later again what I learnt from David!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jan Figtree2019

7 Jun 2019 02:22 pm

Sorry about the mix-up, Sarah!  

Sending some sunshine from the desert southwest.  Today, I am planting a tree... terrible time of the year to plant anything, but I have to get it out of the nursery pot before it boils.

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Sarah

7 Jun 2019 03:15 pm

Never mind about that: just get on and help your tree. Early June is still a good time of year for us to plant out trees, most years, whilst Mac in Chicago was still complaining about winter temperatures a few days ago!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jan Figtree2019

13 Jun 2019 02:48 pm

Sarah--

I'm putting this in the research section, but it could go elsewhere.

"New gene tests for germs quickly reveal source of infections"  By MARILYNN MARCHIONE

https://www.apnews.com/4586ee13876d41048ffa9d095b53fd23

 

This is one of the companies the article is talking about:

https://www.kariusdx.com/

I think the key thing is to look at the Pathogen List under the product link.  For patients who have not had a definitive diagnosis of Cpn, this test, if done correctly, should identify it.  I don't know the cost, but possibly insurance would cover it.

 

 

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Sarah

13 Jun 2019 03:13 pm

Interesting Jan, I'll get David to look into it!

We are accumulating quite a bit of new research stuff, but Drupal are also producing a lot of new updates, so Pinky is busy with those at the moment .  As soon as they stop I will set her on the research!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jan Figtree2019

14 Jun 2019 09:47 pm

Sarah--

Because I'm reading a lot about biofilms these days:

 

"Borrelia and Chlamydia can form mixed biofilms in infected human skin tissues."

European Journal of Microbiology and Immunology · April 2019

 

I got a free PDF of the document on this page:

https://www.researchgate.net/publication/332361852_Borrelia_and_Chlamydia_can_form_mixed_biofilms_in_infected_human_skin_tissues

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Sarah

17 Jun 2019 03:24 pm

I'll tell you tomorrow, Jan, why it probably won't work. You will kick yourself.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah

18 Jun 2019 01:55 pm

Jan, phage therapy won't work against intracellular organisms like C pn, only extracellular ones.

In the same way, C pn doesn't cause biofilms.  Elementary bodies might get caught up in them, but there they will stay, unable to cause havoc in their short life elsewhere.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jan Figtree2019

21 Jun 2019 01:34 pm

Sarah--

I would like to post the following link to a blog I follow.  It is primarily for people/parents with autism, but this link deals specifically with Myelination, Re-myelination and the use of Clemastine fumarate.  I take Clemastine fumarate (1/4 tablet every other day as I can't tolerate larger doses).  In this blog, there is some discussion that indicates even tiny amounts of Clemastine fumarate will be useful for re-myelination.  This blog post does discuss MS.

https://epiphanyasd.blogspot.com/2019/01/more-myelin-or-just-better-myelination.html

 

If you don't think it's appropriate I understand.

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

neenavyas

10 Jul 2019 02:18 am

very interesting post Jan -- Sarah what do you think? Has Dr Wheldon seen this?

this re-myelination thing sounds very good. Anyone?

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

jean2

9 Jul 2019 05:14 pm

Thanks, Jan.  I've read that it's one of the natural things that inhibits cpn.

I think I have a severe case of cpn,in the brain which I got about 8 months ago (Oct. 2018).  

I have a lot of issues with depression, balance, eyesight, ear and teeth problems.  Most important, I have brain shrinkage, and some strange symptoms of that. Does anyone share these issues?

Sarah

9 Jul 2019 03:03 pm

Gosh, Jan, what a find! I'll send it to David forthwith...………

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jan Figtree2019

15 Jul 2019 01:54 pm

Sarah--
I don't know if this is already in the Research folder:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5966473/

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.