23 Sep 2010 06:53 am
I have been struggling for 3 years to figure out what is going on in my body. I've seen Dr, after Dr. including Chinese herbal doctors with no improvement. I've always known how fortunate I've been to be healthy, but now I've been sick for 3 years. It began with a bad respitory infection that has never gone away. I attributed it to the air in Los Angeles but then, I've always lived in Los Angeles. Then I developed Alopecia Areata. It slowed for about a year but now it's progessing, freaking me out. I have joint pain, rosacea anda general feeling of being unwell.
23 Sep 2010 06:53 am
23 Sep 2010 07:59 am
We're really glad to have you join us. Dr Powell is wonderful, and after your first consultation, you can have phone appointments. A good local doctor would be more than useful, too. Your experiences are common to this group. Most doctors I have dealt with don't know and don't want to know. I have found some doctors that are splendid. I had continuous respiratory infections as a child. I think it was Cpn, and caused many of my problems. I lost my eyelashes a decade ago. I recently learned microscopic mites can cause Alopecia and rosacea, and these mites depend on bacteria. I started borax treatment for this, and my eyelashes have grown back to a normal length in three months. Coinfections are common with Cpn.Dr P found out I had lead poisoning, and this is common.
minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)
23 Sep 2010 10:19 am
AI3199, Welcome, I too, started out with a very bad respiratory infection and then it became a a chronic cough the doctors diagnosed as asthma. It is amazing how different infections are the true root cause of so many illnesses. Most of us have a similar stories and we are very fortunate to have this site to guide us in treatment. I would start by taking the suppliments listed along with vitamin D3. This is a good place to start and helps your body with nutritional support.Dr. Powell is a knowledgable physican on treating and testing for different pathogens. His office is very helpful and can help you with any questions you may have. I wish you the best.
started Wheldon cap 4/21/08 for Cpn, CMV, EBV, CFS. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplements, Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram.
24 Sep 2010 12:02 am
Bless your heart, Kate. You have landed in a good place. I also live around here (South Orange County) and 5 yrs ago I made the trip up to Sacramento to see Dr. Powell. My luck was on a roll. He saved me from ending up in a care home. You can read my story under Patient Stories at the top of the page. After you see him he does tests and phone consults. My sister is going to see him for CFS and I took my mom to see him too. I wish we could clone him.So if you can afford a ticket on Southwest, his office is a short drive into the city and easy to find even with brain fog. (I did get lost on the freeway a few times) He takes most insurance but not MediCal.Welcome,Raven
Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath
24 Sep 2010 09:33 am
Welcome Kate,i think many here had similar stories. Mine started also with something flu like that never went away and progressed into many things, such as joint pains, cardiac problems, neurological issues and a light rosacea. I went to several doctors, and non of them were offering help. Then i' ve decided to start with self medication and a have choosen the cap(CPN-Protocol) because the antibiotics are also usefull for other bugs. No i have a doctor who helps me. Since it is often not possible to proof intracellular infections( even a pharmacist told me so, but doctors seem not to now) i thought there is not much choice aside from giving it a try. No after a year into the treatment have a lot of advancements. Rosacea is gone, joint pains are only very light and i can open jaws again. I can work and don`t have to sleep all the time. I still don`t know if it`s caused by CPN, Strep,Mycoplasma or by borreliosis but i know for sure it is a infection.The progress of the therapy is slow and set backs will happen suddenly after several months. I still have some way to go but without the therapy i think i now would have been more or less disabled and probably in a weelchair. Good luck with everything i`am sure you are on the right track.(sorry for poor english)
Mino 200 mg / Azithro 250mg M W F / Amoxi 2000 mg / Metro 5 days pulse CFS/ME Fibromyalgia or whatever you like to call it.
28 Sep 2010 09:55 am
Yes Kate, Many of us early on, can recall persistent respiratory infections or contact with multiple people with chronic respiratory infections and breathing difficulties, sometimes this has been in our more distant past, past but once the C.Pneumoniae bacteria (and yes others that are sensitive to the same CAP combination of antibiotics) are established within our bodies they cycle and recyle and gain more and more of a hold over our cellular energy. It can progress over decades without much compromise of our energy or faculties then there is a critical point where the mass of them in our bodies outweighs our functional cells and the decline in functioning begins to skyrocket or plunge from wither the bacteria's or our persective.Your are fortunate to be close enough and in good enough shape to consider getting to Dr P. And for those that are not this can be done by sticking closely to the Wheldon Protocol, which combined with the Yasko Protocol began to add after my first year as a co-treatment and since applying it specifically to my testing done in Feb 2010 I am recovered. You might like to take a look at my blogs, see the link in my signature below at the bottom of this post.Above all yes, there is hope, I too, was very inspired by this website and the application of the Wheldon CAP has been 50% of the answer to my situation this website is a wealth of information on the combined antibiotic protocols. The Wheldon CAP I consider the safest I followed it closely. I was going down fast when I started CAP. Today I have a life which is so much more than when I started CAP. I am in the process of fine tuning my Yasko supplements and do keep notice of my progress so that should there be any setbacks I can address them with the intermittent phase of the Wheldon CAP however for myself the set backs have not occured at this point in time. I understand that Dr P eases folks into CAP, but either way, easing in or jumping into Wheldon CAP, there is certainly hope with a bit of endurance and determination required on the individuals part, as the body begins to heal.Please keep us informed and posted by starting your blog space to record your journey so that it may be helpful to those that come after us.All my best regards to you and hope for your progress.Louise
Hi A13199, & welcome.As well
Hi A13199, & welcome.As well as Cpn it would also be worth testing for Cryptostrongilus Pulmoni, a microfilarial worm. My UK private specialist GP often finds it present in his patients. I don't know how prevalent it is in Ca. There are some wonderful, knowledgable people here. I wish you the best in finding a specialist. Most of us if not all have gone through the frustrating trail of ignorance, denial, &/or dismissive attitude of most medics & health practitioners. For what it's worth, I was in Reno for the day on 2 separate occasions. [On holiday, not getting married.] It was mid-Winter, clear sky, bright sun, clean air & I felt absolutely fantastic while I was there. The best I've felt anywhere since I became ill Dec.1995, after acute bronchitis. As you've found this site reasonably early in your illness you stand a good chance of recovery.