I completed the Wheldon Protocol for MS several years ago. Since then, my follow-up MRIs have all been "remarkably stable". I don't hide the fact I did the Wheldon Protocol without medical supervision from my doctors - in fact I shave the documents and the MRIs under their noses any time they will let me. Still, only my primary care doctor (who is an O.D., not an M.D.) is willing to believe the treatment had any effect on the disease. That's too bad for the other patients who could be helped by it, but great news for me.
I just noticed that it had been a while since I was last here and posted anything so I figured I needed to just say, "Hi".In the winter of 2014/2015, I had several instances where I lost control of my legs (the most severe MS symptom I had when it started). This winter, I had no problems whatsoever.I assume everything is going along okay since I still get up every morning and go to work and my performance hasn't suffered.
I searched this site and I'm not sure I got an answer. Do we have any people (current or former) on the site that suffered from Sarcoidosis? And if so, what was their experience with doing the Wheldon or Vanderbilt CAP? I'm asking because my wife's best friend's daughter has been diagnosed with Sarcoidosis and the immunospressant treatments they are giving her seem to make the condition worse (which it seems to me is to be expected if the cause is an infectuous pathogen rather than autoimmunity)I need to know because if the CAP can help, I can't just stand by and watch a 20-something girl die of a treatable condition if I know something that can help.
Somebody once observed that when people do the CAP and get better they start living their lives again and stop hanging around this site. I am one of those people. I used to write some rather humorous blog posts but ever since I completed the CAP, the ability to do that seems to have left me. I guess it was a sort of "intoxication" brought on by the toxins the CPn were throwing off that provided my inspiration and now that they're dead, so is the muse. I do miss being jovial, but I'd rather be able to walk, talk and sign my name (all things that MS took away from me at one point).
I don't know how many of you are old enough to remember the 1960's movie about the life of Anne Boelyn entitled "Anne of the Thousand Days". Apart from the candence of the title, it has nothing to do with this post. As a young man, I did think Geniveve Bujold was one of the most beautiful women ever. I wanted to marry a woman that looked like her. Of course, as I grew up, my tastes changed and my wife looks nothing like Geniveve Bujold, but that's okay because so far I haven't had the urge to cut off her head.
We had an eventful winter. The weather just basically blocked the sun for weeks on end. I started to notice that if it was overcast so that noon looked like twilight for more than about four or five days, I would lose the ability to walk. An inability to walk was one the symptoms that came at the time of my first exacerbation, so I assume these are pseudo-exacerbations. They always pass in about 24 hours or less, but they are very annoying because nobody wants to be stuck in their car in the parking garage for twenty minutes pretending to be engrossed in the NPR story playing on the radio waiting for their legs to start answering the brain's commands again.
Well, my former neurologist retired. My primarcy care doctor referred me to another neurologist. The relationship didn't start well. On my first visit, the office staff, who I can only compare to a cabal of drunken lemurs on crack lost my appointment, couldn't figure out how to process my insurance (I have Blue Cross, so its not like its a provider nobody has ever heard of before - well at least nobody other than the lenur cabal) so that I ended up in the waiting room for four hours!The neurologist herself seemed okay.
He had always regarded that portion of his life spent in Texas to be a sort of exile; one he hoped would turn out to be temporary. He wondered how many Texans knew what "incipit" (not insipid) meant? The derelict catfish farm in Arkansas that he had once called "home" called to his mind with what seemed to be greater ferocity as each day passed, often blocking out more productive thoughts. He repented when it dawned on him that his children would forever bear the name "Texan", but he smiled when he throught about that the judges at San Jose State Univeristy might read his musings this year and create a new category for works celebrating the Lone Star State and "Bubba Clifford".
No, I'm not talking about children. If you can quiet your conscience, you can get rid of your chilren at age 18. You can even euthanize your cat or dog if you really want to be alone.But, you can't really ever get rid of the damage the CPn has caused to your nerves. Your body will try and repair the damage, but the repaired areas will never be as "good as new" and they will be susceptible to occasional malfunction.
It has been said by more than one person on this site that when people who are on the CAP get better, they tend to resume their lives and they stop posting. Guilty as charged. But I just got a notice that I hadn't been here in a while. I think there was an implicit threat that if I didn't back here, my account would be canceled. Of course, I can't lose the accumulated wisdom - and cautionary tale - of someone who played fast and loose with the CPn Handbook's recommendations and ended up in the Emergency Room because of it, so here I am.Looks like you guys are stuck with me.