27 Apr 2018
Author
bcb1200
Title

Best blood test for CPN diagnosis?

Body

Hello:I've been treating Lyme, Bartonella, and Babesia for 18 months and feel OK most days, although not completely well.I recently tried a round of Rifabutin (Mycobutin) which caused my WBC to plummet to a 1.6.  I have since read this could be an indication of CPN.I would like to get a blood test (recognizing they are flawed.)   What is the best test to use?  DOes anyone know the proper test #'s from Quest or Labcorp (or other). 

Comments

Timaca

9 Dec 2011 12:18 pm

Rifabutin can cause a low WBC in 1/3 of the people who take it.  See: http://www.maclungdisease.org/index.php?option=com_content&task=view&id=30&Itemid=0(Scroll down to the section on rifabutin).   So it is probably the drug that is causing your low WBC, not Cpn.The tests I use for Cpn are:http://www.focusdx.com/focus/1-reference_laboratory/search_frame.asp?searchOptionScope=2&S1=1&S2=1&test=&sp=23120&Keyword=23120#an_23120Focus lab is owned by Quest.  Your doctor needs to order that the tests come from Focus (if he wants them to come from Focus) and then you have to work with your local Quest lab to make that happen.Best, Timaca

on valtrex 500 mg tidhttp://whispersfromthefather.me/   

bcb1200

9 Dec 2011 04:43 pm

Thanks Timaca:Yes I'm aware that is listed as a side effect of Rifabutin.  But if you read Dr. Stratton's comments on this site you will see that he believes the low WBC could be due to Apoptosis after CPN dies inside the WBC.Thanks for the Focus Dx links.

Sarah

9 Dec 2011 01:59 pm

I think the best test for Cpn is really the NAC test: http://www.davidwheldon.co.uk/NAC.htmlYou can do it yourself and all you need is a container of n acetyl cysteine tablets........................ SarahA Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

9 Dec 2011
bcb1200