27 Apr 2018
Author
lizzie
Title

another one new to this

Body

Hi all,I'm kind of new to all this, been searching for some answers to ongoing health "issues" and this site seems to answer more than any other I've found... been to several doctors and specialists including gastroenterologist, rheumatologist and recently immunologist with joint and other pain (recently suggested to me as fibromyalgia), headaches, respiratory problems that don't respond to asthma medication or prednisilone, (wheezing, shortness of breath, constant infections)... um what else?

Comments

Hi Lizzie and welcome.  Reading the recent posts is great, but I hope you are also reading the CPN HandbookThis page is essential for understanding how a respiratory pathogen can lead to illnesses affecting other parts of the body.  Dr. Wheldon's site is a quicker and easier read if the Cpn Handbook seems daunting.  Stick with your GP unless that willingness should prove untrue.  In general, the specialists think they already know it all, but most of them are stuck on the unproven theory of autoimmunity.  Your GP's humility could serve you very well.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, antivirals, heavy metals chelation, LDN, Metanx, Lunesta, GF/CF diet, Lauricidin, oral IgG/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Hi Lizzie, the date header reads 2007 on my end. Check the date on your computer, bring up the calender which will come up if you click on the time at the bottom right hand side of your computer screen. Check the year.

You sound like you fit into the category of GFA (generally falling apart) which is where both Joyce and I fit in.

Her advice is good, check out David's site, it is written for MS patients but the treatment is very well explained. Below is a table comparing how to start the two treatments, later on when all the treatment is well tolerated there are some alternative available in the Stratton protocol but initially they are very similar.

 

Dr Stratton

Dr Wheldon

-Azithromycin 250mg, Mon, Wed, Fri

-Doxycycline 100mg x2 per day

-5 day Metronidazole pulses every 3-4 weeks, 350-400mg x 3 per day

-N-acetyl cysteine 600mg - 1,200mg per day

When the first part of the protocol is well tolerated

-rifampin, 150 mg BID

-INH 300 mg QD pulsed with Metronidazole

-Azithromycin 250mg, Mon, Wed, Fri or

Roxithromycin 150mg x2 per day

-Doxycycline 200mg x 1 per day

-N-acetyl cysteine 600mg - 1,200mg per day

-5 day Metronidazole pulses every 3-4 weeks, 400mg x 3 per day

Or 5 day Tinidazole pulses every 3-4 weeks, 500mg x2 per day

 

Michele (UK) GFA: Wheldon CAP1st May 2006 . Daily Doxy, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMS Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

thank you both for your comments - I will leave the technical workings of my computer to someone better qualified I think!

I think my GP would be more than happy to prescribe for and monitor (if that;s the right word?) any protocol, as long as there was some support for her as well as me - I will certainly be pointing her in the direction of this website. I have had a look at the handbook and some of the links too, I guess i am just feeling very underqualified to interpret some of the information... and as you say, the tendency of some specialists to "know best" has been quite frustrating, to say the least... but I am very hopeful that this is the beginning of something good. 

How would you suggest determining the most appropriate combination of antibiotics (along with all the other bits and pieces)? Or is it very much a 'try it and see' approach?

Yes monitor is the right word, and I have just realised that I should be monitored myself as I made a mistake in the treatment table I have put it right now, but if you have already copied it somewhere please note that Dr Wheldon's protocol calls for 200mg of doxycycline once a day not twice, although you can take it in a divided dose.

Michele (UK) GFA: Wheldon CAP1st May 2006 . Daily Doxy, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMS Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.