Submitted by boadicea on Fri, 2016-02-05 12:04

Ok, so to most people it was probably just be a meal out at a restaurant with friends – but, for me, it was a huge adventure which I want to share with you all, as I know everyone here will understand how huge this adventure was.  And I hope it will help anyone who might be struggling and wondering whether all this will be worth the effort in the end.The adventure was that the meal was in London and involved a 20 mile car journey, a train journey of 100 miles (I’ve not been able to travel on a train for many years) and three underground trains, going through the centre of London at the busiest commuter time imaginable.  So, lots of escalators, stairs up and down, with busy people pushing and shoving.  Straight to the restaurant for the meal – then travel home again!The other challenge was that I was travelling with a couple of friends who don’t know what it’s taken for me to reach the point of being able to do this – so I needed to be able to keep up with them.  And one of the things I still struggle with most is being with people, having to concentrate and make conversation, as well as trying to cope in an environment I’m not familiar with, and somehow manage not to appear too bewildered or crazy! One of the friends I was meeting at the restaurant was someone who I was close to before I became ill, but probably didn’t understand the support I needed when I became ill and, I think, struggled with me being ill for so many years – remember, this was the time when ME was still regarded by many as ‘yuppie flu’ and there was far less understanding of chronic illnesses and the likely causes.  All that is now reconciled completely, but we’ve missed out on quite a few chances to catch up over the past few years, as I wasn’t well enough to go to things.  So it was lovely to finally get the chance to do that.  And to do it whilst feeling OK – and feeling more ‘complete’ as a person than I did for a long time, now that I know what was causing all those years of being so ill.  I’m happy to have been able to do that.The other remarkable thing about this adventure is that I was able to do it whilst not especially feeling well, as I still struggle with the process of killing those bacteria!  I think that’s definitely progress! x

My goodness, you are absolutely right Bo, about this meal out with friends being a huge adventure.  For me, one good thing about these last few years is the expansion of the internet in the growth of online shopping, so I don't need to go up to London like I used to do regularly to stock up on art materials, which meant going to several different places most on deep lines, then carting everything back on the train.  If you go to Lodon for a day it is impossible to do it all at a quiet time, so I am in awe of you: there will be no stopping you now!...................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi there,

I am exhausted just thinking about all you had to do just to get to the restaurant!!!!!!!!!!  BUT also I am very happy to hear that that you DID IT!


You are an inspiration to all of us still struggling with mobility!


Well done Bo, I am so thrilled for you, I cannot even begin to imagine being able to do this!



Really great, Bo!

Stubborn is good and what it takes - as you know.  This was wonderful reading, and I understand exactly what you are saying.  Keep it up for as long as it takes.  You know perfectly well what it takes.



3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thats epic Bo, epic!


Optic Neuritis in teens. Diagnosed spms in 2001.

Started suppliments in Feb 2014 in readiness for ABX.

Started Doxy 17-04-14, Roxi 25-04-14, Full Doxy 02-05-14.

Started Tini 16-07-14

I just lost a long, heartfelt response to you, Boadicea, but wanted to at least post a loud, happy cheer for you.  I know what it's taken for you to get to this point and I'm ecstatic for you!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

When I saw this post come in some days ago, I cheered loudly. Yes, I’m sure it brought a cheer to everyone’s spirit. During this winter’s onslaught of never-ending rain, we all need a boost … and a boost is certainly what your post is.

As the weeks turn into months and the months turn into years, we forget just how many newbies come on to this site and become not-so-new. (Over on the right hand side of the page are a list of recently joined people). I was once one of those newly joined people.

I recall, in times gone past, a young Boadicea asking “Will I never get well?” That same Boadicea that would struggle to lift her legs off the bed. This same Boadicea that could not even make the short journey to the local shop to get food.

It was quite remarkable how this brave young warrior managed to turn things around. Whilst it may well have been a figment of my imagination seeing a sword flailing wench, hurtling down the M4 in a chariot bearing the registration marque “ICENE”,  it was no figment of  my imagination when she climbed the lighthouse at Dungeness or later, climbed the tower at the Eden Project.

Success breeds success. Your epic restaurant journey was an epic achievement in anyone’s money. Well done that brave girl!

Right: next goal. Ian Duncan-Smith’s head in a bag like the head of the Meducer. Go get him girl!

Image removed.


“Don't believe everything you read on the internet.”

―    Abraham Lincoln