27 Apr 2018
Tommi C

43% of Chronic Bronchitis Patients Tested had CPN....


Folks,Chlamydia pneumoniae and chronic bronchitis:association with severity and bacterial clearancefollowing treatmenthttp://thorax.bmj.com/content/57/8/672.full.pdfI found this article today - about cpn and chronic bronchitis.  In this study - 61 of 140 patients with Chronic Bronchitis had positive tests for CPN.  I would guess that given Rick has tested positive for CPN - as an initial step of getting his CAP treatment - this supports the likelyhood of my Bronchitis being due to CPN being 100%.  Either way, given Bronchitis ca


Hey, As I was reading your post, and before I'd reached the end, I was already asking myself, how come Tom's not already on this ... or at least taken the NAC test.Tom, give yourself a smack get on the NAC!Yeah, I know that you've had your work cut out looking after the welfare of your kids but you can't be helping them if you start to fall apart yourself.I look forward to reading about YOUR progress.Good luck.G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Hi Supaguy,Thank you for writing and for your concern - sincerely!I've been on NAC now for perhaps 8 weeks - maybe 12.  I didn't notice any really obvious symptoms when I started - perhaps a bit more scratchy throat now and then, or a bit more "lung grunge." Rick got very consistent and obvious myalgia or neck pain about 30 minutes after taking NAC - way more obvious!We've been "nipping and tucking" finance wise - and Ricky was absolutely the priority.  The good news is I'm catching up, and Q1 is right around the corner. I'll either get a prescription or attempt the route that others have gone - e.g. order them over the web.I have a Doctor - of Immunology - that has treated my beautiful Fiance' - for years for her Sinus issues.  He agreed to treat Rick on a continuing basis after he started with the Doctor in Sacramento - but we decided to keep Rick with the Doctor in Sacramento instead due to his direct connection with Dr. Stratton and his obvious long term expertise and experience.  Neither Rick's insurance nor mine cover his services - so I'm paying that out of pocket - which I am thrilled to be able to do by the way - what better gift to give a dear son that a return of his health!Given the Doctor in Sacramento is a former "Fellow" of Rheumatoid Arthritis at Stanford, and that CPN is implicated as a possible causative factor for RA - My fiance' will be seeing him about treatments - including potentially CAP - for her RA so she can get off of Humira long term  We are going to have an appointment in January or February for her, and I may "piggy back" a bit on that.I sent the same article the first Doctor I mentioned this morning - he was reluctanct a couple of months ago to treat me without some good evidence it might be called for.  That article may be compelling enough, and even lists tests he can order to confirm cpn - which would be ideal because then the Doctor and the meds should be covered.I am in relatively robust health, especially for being 60 - not falling apart now or any time soon even with no treatment (been treating the symptoms of Bronchitis for 3-4 years, holding it at bay - no really active nasty exacerbations at all in that time) - so waiting a bit more won't hurt.But - I am absolutely going to start soon - Q1 - and will let folks know it goes.  I think it messes with my singing voice too - another good reason to do it - as my Fiance' thinks I should try out for "The Voice!"Best & Highest Regards,Tom 

Proud Parent of Rick - R started CAP in Nov. 13. Small measurable improvements as of 7/14, more by 10/14.  Holding Steady in early 2017.  "I will leave no stone unturned, no theory unexamined, to help my son." Tommi

Sounds like a plan. You and your fiancé can have his and her Doxycycline bottles. Who knows what trouble you could be thwarting in the future. Now you can start your very own blog. Julie

MS: First sx '93 dx '09 no obvious relapses just steady decline since '07. Crippling fatigue, too weak to sit up for extended periods of time. Cane/walkers/electric chair inside, helicopter outside. Started protocol 11/16/13.  1200mg N

Hi Julie,Yeah - but we'll never arrive in the style you do in your helicopter! My Dad died - not too long ago, after 3 bouts of pneumonia in the same year.  He was 80, but I am convinced that he could have lasted 5 - 10 years more if he didn't have CPN.  He had a couple of the other diseases that cpn is implicated in - Crohns & a form of Rheumatoid Arthritis among them.  I'm convinced cpn runs in familes - who are you more likely to get it from - someone who you live with is a good guess.Humira has some potentially nasty side effects, and it would be nice to sidestep those.  While COPD or Heart Disease are something I wouldn't mind not getting. Best & Highest Regards,Tom

Proud Parent of Rick - R started CAP in Nov. 13. Small measurable improvements as of 7/14, more by 10/14.  Holding Steady in early 2017.  "I will leave no stone unturned, no theory unexamined, to help my son." Tommi