I finally got the nerve to post. This is intimidating. Live in WA state. Was in Austin TX for 30 years with a cabin about 1 mile from Willie Nelson on Lk Travis. Diagnosed 1990; now have SPMSi. Have had all the usual treatments plus metal clips in spine with (now dead) battery in left hip (by Metronics) installed 1992 (that was not a happy time). It did not ease my pain AND I cannot have a MRI because of the metal. I don't have a supporting neurologist or GP so I would be very appreciative of help with supportive dr names. I guess that's the pertinent info. Whew! But I sure am glad to have been pointed to this site. Incredible information.
___________________________________________________________
Mary Ann
SPMSi. Dx 1991. EDSSii 6.5. Weldon CAPii; 3/08 NAC 2400, Doxy & Azith. 7th metroi pulse 12/08
Hi Mary Ann: So glad to see
___________________________________________________________
If there is no wind..............row New Hampshire USA on CAPi since 2-4-2006 for MSi Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D
Mary Ann I sent you a
___________________________________________________________
Welcome, I think Michelle
Welcome, I think Michelle is the one with the list of physicans. she should be along shortly. I'm glad that you posted. This is a great group of folks.
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. on NACi 3000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulsing w/flagyli,___________________________________________________________
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80, right arm neuropathy. + cpni, myco, EBVi, CMV. Capi began in 6/07. NACi 2400mg, doxyi 100-bid, biaxin 500mg bid since 7/08, progesterone, synthroid, flagyli pulses
What's a pm?
What's a pm?
___________________________________________________________
Mary Ann
SPMSi. Dx 1991. EDSSi 6.5. Weldon CAPi; 3/08 NAC 2400, Doxy & Azith. 7th metroi pulse 12/08
Mary Ann, your secret is
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 49 pulses NC USA
___________________________________________________________
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
It is a private message.
___________________________________________________________
Welcome M A, I hope you
Welcome M A,
I hope you will be blessed with some better health in time here. don't be shy, mostly, we don't bite.
Some of us bite our lips when we are having some reactions that lead us to, shall we say, less patient moments. I call mine, my alter ego? the Troll Queen!
Blessings for your wellness journey!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 2-6-08 7th pulse 2 X 375 mg 2day+
___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 daysHi Mary Ann I'm new here
Hi Mary Ann
I'm new here too. We can be new together
I can say from first hand recent experience that this place, whilst completely doing your head in initially when you don't have a clue what people are on about, soon starts to make sense. The Protocol and the supplementsi seem to require a degree in Biology but if you take it one step at a time and ask for help along the way, it gets clearer.
Those I've met so far seem to be almost sane too!
Berkshire, UK. Diagnosed MSi Feb 4th 2008. NACi first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.
___________________________________________________________
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008