Hurry Up and Wait - A Taste of My Own Medicine
I really hate this.
I've been spending weeks reading and asking questions and reading and asking questons and being deliberate and careful and now that we want to push the button and run, we get bottlenecked with this whole medical community fear of the legal system. I get it, I explained this to my GP this week and he said it's all about getting sued.
I truly understand that there are 3 ways to do this.
1) You have a doctor in your family
2) You find a doctor that is willing to break with medical procedure
3) You go somewhere like Vanderbilt that has a medically accepted process for doing this.
We don't have 1 and really want 3 and would rather not go with 2. But, I'm open to anything.
I want to find a doctor that is local in Northern Virginia. If not the Pittsburgh area would be good. Then after that something in the Washington DC area. We want to find a place like Vanderbilt we can get into sooner (Kim's having an exaserbation now) if at all possible. We are trying to get copies of Kim's records from her doctor now too.
Has anyone found a doctor around here or a center that is doing this, here? If we go with option 2 does that get in the way of working out option 3 later? If we can convince Kim's Neurologist to give her Minocycline now, should we take it? Does NIH or John's Hopkins or Georgetown do antibiotic treatment like Vanderbilt?
Hey, for fun, I'm decorating a 30 ft pine with lights, I hope we get snow.