Well friends, expect another rush of interest in Cpnhelp.org. I sent the link to my recent article on CFS/FM & Cpn to Immune Support, who publish a regular newsletter on CFS and FM topics. They were very interested in the article and published it, with some introductory commentary, in their Patient Opinion section of the CFS newsletter. You can find the article at: http://www.immunesupport.com/library/showarticle.cfm?id=7938&T=CFIDS_FM&B1=EM042507C Outed again!
25 Apr 2007 08:30 am
25 Apr 2007 09:14 am
Jim, that's a very good
Jim, that's a very good article; it's most informative, and well-written. The secondary porphyric aspect of chronic C. pneumoniae infection is almost unknown. Charles Stratton discusses the critical interference by C. pneumoniae at the mitochondrion / host interface (and the disorders of heme synthesis which result) in an article in Antimicrobics and Infectious Diseases Newsletter. It's very well worth reading. (I thought I had the reference, though I can't now find it.) The functional Vitamin B12 deficiency of chronic C. pneumoniae infections is likewise almost unknown. Smashing!D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. Now normotensive; on intermittent treatment.]
D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]
25 Apr 2007 09:19 am
As a Brit I will reiterate
As a Brit I will reiterate what Joyce and DW
An Itinerary in Light and
ShadowWheldon regime since August 2003, for very aggressive SPMS. Intermittent therapy after one year. 2006 still take this, now two weeks every three months. EDSS was about 7, now 2. United Kingdom.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.
25 Apr 2007 11:03 am
Two thumbs up, way up!
Two thumbs up, way up! Excellent work Jim... On Combined Antibiotic Protocol for Cpn in Rosacea since 01/06
Treatment for Rosacea
- CAP: 01/06-07/07
- High-Dose Vit D3, NAC: 07/07-11/08
- Intermtnt CAP, HDose Vit D3: 11/08-01/09
- HDose Vit D3, Mg, Zn: 01/09-
25 Apr 2007 11:52 am
Jim, Great, informative
Jim, Great, informative article! I am printing it and giving it to our GP - he is very openminded and is learning a lot from our pursuit of AP originally, now CAP. Thanks! I, receive the immunesupport letter, but I didn't read it - is this article in the most recent letter? GoodwifeHubby dx scleroderma Aug '06; Mino 200mg/day Nov '06; Cpn/Mpn Jan '06; NAC Feb '06; Azith Feb 14, '06
Hubby dx scleroderma Aug '06; Mino 200mg/day Nov '06; Cpn/Mpn Jan '06; NAC Feb '06; Azith Feb 14, '06
25 Apr 2007 12:16 pm
I'll refrain from using
I'll refrain from using smashing, instead I say excellent Jim.I was particularly taken by the following extract... "It is ironic that physicians who see nothing wrong in pumping patients full of multiple chemotoxic agents for cancer treatment will balk at the suggestion of far less harmful multiple antibiotic agents, calling it "polypharmacy."This is something that was very obvious to me during Hamish's recent treatment for leukemia. He had heavy doses of chemotherapy, large doses of immunosupressents, his lungs were coated with an antivaral agent, but when he caught a nasty upper respiratory infection (Cpn?) that spread to his lungs and sinuses, they prescibed one week's antibiotics and when it did not clear up after the given course refused to give him more. Another 6 weeks on he is still unwell and weak. We argued for 20 minutes with the hospital doctor and I tried to make him understand that resistance is more likely to build up through intermittent antibiotics than continuous treatment to no avail. Michele: Wheldon CAP1st May 2006 IBS, sinusitis, alopecia, asthma, peripheral neuropathy. 26th March 2007 continuous Flagyl at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMS Cap Started 16 March 2006
Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.
25 Apr 2007 03:06 pm
Yes, excellent, Jim. This
Yes, excellent, Jim. This article explained things that I have wondered about for several years - now that I have some clarity of mind to do that with, I can wonder much more purposefully!
Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 41 pulses NC USA
3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.&am
25 Apr 2007 03:05 pm
Wow, what a great article,
Wow, what a great article, Jim! I am also printing it to take to my new GP. Even if he doesn't have a lot of time, if he reads this it paints the complete picture in an excellent narrative. Very convincing, even if I am a member of the choir!
CAP since 8-05 for Cpn and Mycoplasma P. for MS and/or CFS.
Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath
25 Apr 2007 10:23 pm
My goodness, lovely and
My goodness, lovely and kudos on getting it in print for others to read! It is a clear logical progression of ideas that gets all the main points in without getting overy technical and hard to understand. Well done!
On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5. Currently on: Doxy 200, Azith 3x week, Tini 2x month, all supplements.
"Color out side the lines!"
On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxy 200, Azith 3x week, Tini cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithro
27 Apr 2007 07:13 pm
Excellent article Jim.Miss
Excellent article Jim.Missy
28 Apr 2007 05:26 pm
Thanks Jim, you are the
Thanks Jim, you are the reason I am here. Praise God, more information, my prayer answered.Kudosblessings R
CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<
Jim, I'm so impressed
Jim, I'm so impressed with this piece that I'm emotional, imagining how useful it is going to be in disseminating information on Cpn infection and treatment. You've turned out some terrific work before, but this is spectacular. Thank you for shedding light on those early Cpn research efforts at Vanderbilt, and you're right, it is tragic that those findings were not published back in those days. How much further ahead would Cpn research have moved by now? How much disease progression could have been halted and reversed? How much pain could have been avoided? If I were a Brit, I'd say "smashing!"
Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.
Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity.