Here we go again!

Submitted by JaneK on Thu, 2017-12-14 08:20

I’ve checked, and this is definitely pulse 6 and I finish tomorrow.My BP feels low (i’ll check when i have the new batteries) and i’m expecting the hypotension to be psychosomatic, which concerns me. Why am i prone to self imposed suggestion?  

Prior to dx, i realised reds and greens had become muted, i didn’t lose all colour perception, but, suddenly, these colours are vivid again! overall everything is even more blurry than before ... good, because i love being a guide dog owner and, truly, don’t mind that my reflection is in soft focus! 

i describe the horrible sensations i get as paresthesia, but, now also, get pins and needles, not the usual thawing out of  numb extremities,  and not unpleasant, feeling like something good Is happening. Sadly the horrible sensations remain, but i‘ve been able to control them for some time, so not the end of the world.    as Rica confirms,  improvement is incremental! Incremental but definite!

Jane

Love that attitude!  It will take you many miles.  We have many to go, but we get there!  About the increments - they may be tiny!  (As you know.)

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thanks Rica, you’re probably one of the few who will understand when i say i’m doing this treatment more for my dog, than for me or even my husband. He always thinks i’m beautiful, even without make-up, hairbrush or an iron!

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro