It has been some time since I have updated my blog so here goes. What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress. I apologize for this as I know that my support has made a difference to some. I found myself reading the posts and was getting stressed out & frustrated with it all.
So, I naturally retreated to better cope with my own problems. I just completed my 14th pulse, 1gm a day for 5 days & the last 3 pulses have been quite similar for me. I have had complete exhaustion, more pain & horrible nausea with lots of sweating, even though I have been consuming large amounts of “moppers”. I take 1 heaping tsp of yaeyama chlorella, 6-7 gms of Chitosan, glucose as needed, about 7 – 12 gms of Vitamin C either by capsule & or Emergen C. I also take every supplement on the list except horny goat weed (for men) & Primrose Oil as it plays with estrogen & even some extra supplements!
I am pleased to be killing the beasts, but it has been hard to handle. My recent blood work was not surprising- elevated liver & kidney results, my skin has been yellow post pulse. I just thought I should take more Curcumin to help out?? My cleansing organs have been quite sore during pulses so I have to be careful. The Hemochromatosis doesn’t help this matter either. Our frequent weather changes have been kicking the crap out of me as well. I look forward to living in AZ again this winter for a more level temp which allows me some energy to get more things done, including some walking for fitness. If it wasn’t for that I know I would be worse off than I am now.
For future pulsing, I am going to take my dose down from 1gm a day flagyl to 750 mg for the first few days anyway, play it by ear. My final pill swallow of pulse 14 was one of the hardest things I have had to do; I was just gagging. The flagyl is obviously getting to the critters in my intestinal tract/stomach. I will have to just move forward a bit slower as this is not a race. I started adding the flagyl pulse 1 with 1 250 mg tab & have worked up from there. One has to be sensible, it is not worth risking permanent organ damage, afterall, I could have the critters in the very cleansing organs that have to get rid of the toxins!
So post pulse, I have had a bit more energy these past few days. I did too much on Sunday & with a weather change, I had extreme pain return yesterday afternoon with just a hint of the Troll Queen.
So, overall my progress in my battle with ME, FMS & Lymes has plateaued for the moment. My pain levels, overall, are down about 35% from my previous excruciating level of 2 years ago. My fog has probably improved to about 50%. This doesn’t mean I am out of the woods just yet. From being bed ridden 2.5 years ago to now, I have come a long way. So much so, that really, with this progress, in my mindset in Jan/06; I would have thought I would have been back to work by now. I still experience crashes where I am flat out in bed for a day or even 2 or 3 & so doing anything scheduled is not back yet. However, most days now I do get a shower & teeth brushed 2 times, so this is an improvement for all concern, lol I work around crashes & get some laundry done, clean the fish tank & furnace filter, keep the deep freeze defrosted, make the bed, & swiffer the floor. I still have a cleaning lady come every other week to help do the major stuff. I do a small amount of a few hours a week volunteering for the Church. When I can, I take some pictures- but mostly just around the ‘hood as it still takes a lot of energy to do what I have been doing. I get out with my gf to a movie & something to eat as much as possible- approx ev 2 weeks which is also an improvement from 2.5 yrs ago.
I am quite pleased with these improvements adding to that, my ABS is pretty much gone now as long as I take my Yaeyama Chlorella. My migraines are pretty much all gone, though I have been close to getting one quite a few times. My headaches, overall are down probably about 65% from several years ago. I still have 18/18 Fibromyalgia points but my brain& body is handling it leaving the flares for me to work on. My sinusitis & tinnitus comes & goes with pulsing. I am able to handle my Herpes I with 2.5-3 gms of L Lysine daily instead of pharmaceuticals & only an occasional Famvir. My depression is pretty much handled with 1.5 – 2 gms of Inositol daily. The beauty of Inositol is that when you need a little extra, you take a capsule & don’t have to wait for 3 weeks before it works like pharmaceuticals do. This is such a blessing for people who have depression.
I march on, practicing as much patience as possible. I have put on 35 lbs but I sincerely think this has something to do with what is written in the Potbelly Syndrome & my under performing thyroid. I am presently increasing my thyroid T3/T4 compound every other day & we added 3 very small Cytomel tabs a day. My levels still aren’t up in the upper thirds which is where my FFC doc said they should be for secondary hypothyroidism.
With the weight gain & loss of muscle strength I have been a bit worried from time to time. My BP is 120/70 after a pretty animated discussion with my doc so the heart is doing well; I have an arrhythmia so I was a bit concerned. The thing about chronic illness & ME/CFIDS is you do what you can. That whole jump up, get off your ass & go workout just doesn’t fly with this illness. I am looking forward to getting my basement back, more space so I can get doing some yoga from my disc “Yoga for the Rest of Us”.
The thing is, ONE or TWO problems at a time. One, get rid of the CPn, that is the most important thing right now. The two part is the continuing juggling act I do with pain, pulsing, hormones, depression, weather changes & fitness. I think I am doing pretty well. I really want to get as much as I can back from the abyss so I can have a more active life.
Time will tell.