MediTest
27 Apr 2018
Author
alyson a
Title

Help - we need to find a doc right away!!

Body

Hello,My husband was recently diagnosed with "early MS", and is currently experiencing his first "exascerbation".  His symptoms incude numbness throughout his body, vision problems, and extreme fatigue.  He is being treated with IV steroids and has started on Betaserone.  His MRI shows 10 active lesions and no old lesions.  His neurologist told us this indicated a "triggering event" such as a virus.  Several months ago he had a respiratory infection which he caught from me.  It seemed to hang on for a long time and make him very sick.  I caught this infection from the office.  Interestingly

Comments

Alyson A.,

First of all welcome to the site!!  I am very glad that you found us!  Sounds like you've already read David's pages about the protocol and you're ready to begin.

Wish I could help you with finding a doc--never had much luck myself.  I order the meds online,  they take around 2-4 wks to arrive.  It is great that the supps are en route--I know that David recommends starting with those alone first. 

There are lots of friendly, supportive people here to help you through.  Lots of fascinating data to peruse.  Any questions just ask!

KK2  :)  

Wheldon Protocol for rrms since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGG's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

Hello Alyson,

Just like Kitkat, I've not had much luck finding a doctor locally, but we were lucky enough to be able to meet with Doctor Wheldon, who prescribes for us.   It is comforting I know to have the backing of a medical person, but there are a lot of knowledgeable people here who are always willing to support us and each person undergoing the treatment has valuable information about their experience that helps us all.  

I know how scary it can be in the begenning, but I have always felt lucky that I was able to find a treatment for this dreadful condition.   Cypriane is in the same place as you are just now and may be of help to you on your side of the pond, since she has some experience of trying to find a doctor for her husband.

The supplements alone made an immediate difference to my daughter, especially the N Acetyl Cysteine, Vitamin B12 and Vitamin D.  

Although I get a script for Ella and buy the abx from a regular pharmacy, I am treating myself for a number of long standing ailments and I obtain my medication from online pharmacies.   Not ideal maybe but much more affordable and easily available.

Three things your need when you start off, courage, faith and patience.   It gets better...
 

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments, also spokesperson for Ella started Wheldon protocol 17th March 2006 for RRMS

Sussex, UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Alyson- Your best bet if you don't get any suggestions via private message, would be to find a Lyme-literate doctor, as they are familiar with long-term antibiotic protocols. Your area has a lot of Lyme's disease and ILADS http://www.ilads.org will have listings. They may even have MS experience as neuroborrealis can cause MS-like symptoms. Print out a selection of materials from the which should include David Wheldon's main page http://www.davidwheldon.co.uk/ms-treatment.html#anchor24043, the most cogent and succinct explanation of MS and infection, and I suggest the following from the CPN Treatment Handbook on this site:

http://www.cpnhelp.org/?q=handbookintro
http://www.cpnhelp.org/?q=http://www.cpnhelp.org/?q=simple
http://www.cpnhelp.org/?q=diagnosis_issue

Add a few MS specific pages from the handbook and this from David's site http://www.davidwheldon.co.uk/ms-cpn-qa.html

Also, this sample letter is a fantastic resource whether used as a letter or to draw talking points for making a phone contact. http://www.cpnhelp.org/?q=a_sample_letter_to_local_

You'll find someone!

Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndrome & Fibromyalgia- Currently: 150mg INH, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA

I don't know if this will help. But I went to a holistic dentist named Dr. Breiner in Connecticut.  He was great by the way.  His office may be able to point to an open minded MD for your husband's scripts.  He is in Trumbull. 

Good luck,

 kcapozza

CAP start 9/05 start tini pulses 1/06

Dx MS since 1996

dx ms 1996. started cap 10/05. Started with tini pulses switched to flagyl pulses. Now almost on continous 500mg flagyl but do need breaks. On mino 100mg/day biaxin 1000mg day and NAC 600mg. ldn 2.0mg.

If nothing above works, you might check with compounding pharmacies in your area -- they may have a notion which doctors in your area are 'by the book' technicians, and which are more comfortable with unconventional treatment.

Also: check the fibromyalgia "good doctors" list ( http://www.co-cure.org/Good-Doc.htm ), since they typically are somewhat more accustomed to managing a long-term course of treatment than are 'production' oriented doctors. Ditto for allergists, I hear.

Ron 

On Stratton protocol for CFS starting 01/06 (NE Ohio, USA).

RonOn CAP for CFS starting 01/06 (NE Ohio, USA)Began rifampin trial 1/14/09Currently: on intermittent

A compounding pharmacy helped me find my alternative MD in MI, at the time I was looking for estriol and worked my way backwards, starting with the compounding pharmacy who gave me a list of doctors that may be willing to prescibe as my neuro said no.

I am still with my alternative MD and she prescribed abx - I had to write a letter which is available at this site for others to use if need it to help convince doctor to prescribe.  She monitors liver, kidney, yeast monthly and all is ok and she said she is much more comfortable with this treatment at my last visit.

 

 

 

On Wheldon protocol for MS since April, 2006.  LDN 2004

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Hi Alyson,

JimK has pointed you in a very good direction. I know for a fact there is a Dr. in Connecticut that will treat MS patients with abx. I have corresponded with this individual. I'll send you a PM with his name.

Congratulations for taking this beast on!

Lexy

---------------
"Chance favors the prepared mind." --Louis Pasteur

Husband treating MS with CAP

Thanks to everyone who replied to my post.  I now have the names of several doctors in CT who are willing to prescribe the abx.  Tomorrow I will call for an appointment with one of them.  I'll let you all know what happens!

Any volunteers to put all the suggestions here together into a page for the Handbook: "How to find a doctor to prescribe?" 

Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndrome & Fibromyalgia- Currently: 150mg INH, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA

I'll add this from Sammyjo's blog-

"To find a prescriber for CAP, I went to a Lyme Literate MD directory. These docs are already familiar with long term abxii, and most are open minded, so should be up for LDN scripts too. CAP and Lyme protocolsi are very similar."

The directory:

http://www.geocities.com/playpub/MR-Docs-LLD-US.htm#_Toc129026284

 

Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndrome & Fibromyalgia- Currently: 150mg INH, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA

Hi I have MS and want to provide easily-digestible info for my already over-stretched GP to read before asking him to provide ABx. Is the info from David Wheldon's website the best source for this? If he isn't open to this, is there a way to ask David Wheldon to prescribe?

Thanks

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

Tufty, I would say that is the best info.  There is a pdf on page 2 of the site, which gives a shortened version of the information.

David can't prescribe himself because he retired from practice to concentrate on his writing.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Tufty, David has left medical practice to concentrate on his writing but has left all the relevant information on his web site.  The idea was that all the information would be available for practitioners to read. Your GP, if interested should have no trouble in using it.  However, mine came to a talk at the hospital but never sent any patients and always asked me why I still needed roxithromycin.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.