Help with peripheral neuropathy
Just new to Help with Cpn. I'm having multiple problems and don't know what to do. Have been sick for thirty years. First bout of profound fatigue and brain fog was 1984. Developed multiple chemical sensitivites in 1994. Tested positive for Cpn in 1998. Started high dose doxy back then, which failed to maintain any improvement after two years. Discovered Marshall Protocol around 2005 and gained some improvement but stopped antibiotics after four years as i couldn't get reliable medical information on the treatment. Around 2010 I started developing painful bladder syndrome/interstitial cystitis that was initially relieved by azithromycin. Then I discovered the Wheldon protocol and decided to try that. Doxy 200mg/day; Zith 200mg Mon, We'd, Fri; pulsed Flagyl 3tabs/day one week every month. After 18 months the azithromycin stopped helping with the bladder pain so I added Noroxin, 400mg twice a day, to the combination, which helped for a while, then it stopped helping too. Over the last six months I've started getting peripheral neuropathy. I'm fairly certain that it was initially caused by metronidazole. The numbness/tingling would stop as soon as I stopped the metronidazole. Then the numbness started coming back but stopped when I stopped the Noroxin. I tried Rifampicin two weeks ago but the feet numbness worsened significantly after only three days. I'm taking multiple vit B supplements, bio b12, pre-methylated folate, nerve protection vitamin formula, antioxidants, vit D, all the good stuff, but it looks like the nerve damage is permanent and getting worse. Now the numbness seems to come on after taking any of my other remaining antibiotics - doxycycline and azithromycin. Without antibiotics my symptoms all flare up, notably fatigue, generalised pain and depression. The bladder pain and discomfort become absolutely unbearable, even with opiate painkillers. I'm frequently having suicidal thoughts at the moment, although I'm trying to stay positive. Meditation helps a little bit. Can't take any antidepressants due to horrific side effects. I can't find any doctors in Australia who have specialised knowledge in treating chronic Cpn. I'm wondering if there are any antibiotics that don't cause peripheral neuropathy that I can take. I've only taken 250mg of Zith in the last week but my tingling feet seem to be getting worse not better. Can anyone offer some practical guidance here? I know this is very complicated but a safe antibiotic protocol would be most welcome. Thanks.