Hi all Cpner's-I've taken the plunge and put my story and pic on www.remedyfind.com : in for a penny, in for a pound! The profile will be used for the Remedyfind's November email newsletter for Fibromyalgia, and then also the December newsletter for Chronic Fatigue. Brett, the site owner, asked me for this quite a while back and has been following cpnhelp with interest, so it's timely now that i have some real improvement to show.I could use your help to make a good showing for the cause. If you don't know it, take a look. www.remedyfind.com is a site consisting of patient ratings for all sorts of treatments in various diseases, encompassing common meds to alternative treatments. It started with CFS and FMS, and now includes MS and many other conditions. I found it a useful reference point over the many years when I was desperate to find something helpful, and it's a great, high integrity and cleverly organized resource. Brett's done a great job, and is a CFS sufferer himself.How you could help:
- Register at www.remedyfind.com
- For your disease area, rate the antibiotics you are using in the CAP. Brett will eventually get the CAP listed under antibiotics as it's own category, in the mean time rate each one individually with the caveat of "when used in a Combined Antibiotic Protocol." See my ratings and profile (which is what will be sent out in the newsletter) at http://remedyfind.com/profile.aspx?UserID=60185 No one has rated antibiotics for most of the diseases we are treating for here at cpnhelp.
- Consider adding your story to your profile on the site. If you are willing, contact Brett through the contact page and offer your profile for the disease newsletter appropriate. I think it would have a major impact for some the MS stories to get out in this form, as it hits a very selected audience. I subscribe to the CFS, FMS and MS newsletters, and let me tell you, they are mostly stories of people languishing with little to show for their treatments. We have something better to offer! The same goes for other represented disorders.
- Sign up for newsletters that look appropriate to you. You will see mine next week. Should bring a bunch to cpnhelp for a look!