Hello, I am glad I found this amazing site (thank you, Ken). I just finished reading Kim's blog, and I am amazed and awed. Although I was on the Vanderbilt protocol for 3 years, I never noticed such amazing improvements--that could be because my disease is a bit milder?
My bladder does not function (I have been self-catheterizing 5 to 7 times a day for years), I have numbness and weakness in my hands and legs, balance problems, and, most of all, extreme problems with fatigue--8-9 hours of sleep every night plus two naps a day is about right for me.
Wow, now that I have put my symptoms down in black and white, my condition doesn't sound so mild! ;)
I have been pondering "what I should do next." I will continue reading the blogs of people on this site and I know I will learn a lot.