Have I been doing something wrong?

Submitted by Sarah on Tue, 2015-03-24 17:18

Even when I was taking antibiotics I never 'detoxed' and never really felt the need.  I don't sweat very much and I can't really stand spending too long in an infra red sauna. 

I felt weighed down with charcoal so just took chlorella, which I know doesn't suit some people but I actually liked it. 

I do scrub myself from time to time with a dry brush, but not in any particular direction but that is about it.

Life is too short: now I am able to use my right arm again I want to spend as much time as I can with producing works of art.  There is nothing wrong with me apart from the fact that my walking is not as good as I would like, so unless I get run over or killed in a plane crash, I guess I will live to see my century, so quite a lot of time still left but there are so many things to do, that I really don't want to get used to saunas and suchlike...................Sarah

These were my Appeldoorn tulips abo t seven years ago but planted in the wrong place so they followed the sun around like sunflowers do.  They never got snowed on though!  Sarah Cry

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, truly beautiful -- but I understand your concern. You have stopped the progression of the disease and recovered much of your loss. You want more. i would suggest that your cns may need reparation aid. There are plenty of mice now running around who have received such aid. Keep a lookout for them. Some of them recovered by taking the B vitamin, biotin. It is being administered to humans in a trial study at 40,000 times the RDA. It is water soluble with no as yet detectable side effects. And it is inexpensive. I am using it. It's worth a try.

http://multiplesclerosisnewstoday.com/2015/01/19/medday-provides-update-on-pipeline-progress-for-primary-secondary-progressive-multiple-sclerosis-drug/

 

http://www.biocentury.com/biotech-pharma-news/emergingcompany/2014-11-24/meddays-md-1003-could-reverse-disease-progression-in-advanced-ms-a12

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Lucky, how do you know it helps?

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Hello Nancy, I'm afraid that you didn't detect the irony in my words, because I am not concerned.  I know that I will never be perfect, but I still do get slight improvements even after finishing this treatment in 2007.  I was horrified when I eventually saw my correct scan, having been  shown someone else's by the neurologist: I know this because it wasn't my head: the forehead was too low, and the film was all scratched and didn't have any name or date on it.  I didn't see my real scan until I had had the second MRI done, which showed big and unexpected improvements, but I was still horrified that all this could have been going on inside my head for years.

Now: biotin.  I do take some biotin in my b complex tablets whenever I take them bt I'm afraid that any b vitamin makes  me want to go to the loo, so if I took that much I would be running up or dowstairs to the loo every five minutes, so I wouldn't get much work done!

By the way, thanks for your comments about my tulip picture but I did do it about five years ago: I put it here to cheer Mac up after her tulips got seven inches of snow dumped on them.......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah that's crazy ... Showing you the wrong MRI !!! Was it a mistake on the consultants behalf Or what?

oh by the way, the picture is very life like and well painted! i do pencil drawings myself, never could handle the brush well... 

D

The Greatest Risk of all is Not taking the Risk...

Darren, yes it was crazy and I think it was no mistake.  He was just about to go on his family summer vacation and hadn't even ordered the scan yet for me, although it was way overdue.  David's colleague at the hospital pushed it forward so I guess we took him by surprise.  He had already said that a nursing home was on the way, so I guess he thought there was no hurry.  I have never had a scan of the spinal cord despite the fact that I really needed one, but I was just written off.  He is a devout Methodist and I don't think that religion and medicine match.  That is why I now rub it in by sending him a Christmas card of one of my paintings or drawings every year.......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Oh, and the General Medical Council as well: they thought it wasn't important............Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, your fine. You have got well and just need to stay healthy now. Don't worry about hotbaths and saunas unless for fun and entertainment.

7th mo on CAP. NAC 2400, doxy 200mg, azith 250mwf, pulse met 500, chorella 1600

Thankyou 4plex: I intend to stay healthy but hot baths and saunas would just make me niggly!.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.