Glad 2016 is gone.
It started out ok then I heard a good friend had cancer again. He died in March. I caught the flu in April and on the 16th I was admitted to hospital unable to move from the waist down. I have not walked since except a few steps in the hydro pool. I was in hospital in isolation for 10 days, 3 days after I was admitted one of my very much loved dogs died unexpectedly, I was devastated. Then I went to rehab for 13 weeks. All rehab taught me was to stand and slide board, but not how to slide board to a car. So I was trapped at home. They did nothing to try to get me walking again, if they had maybe I would be able to take at least a few steps to transfer. Their attitude was ‘you have ms so this is your new life’ . I had to keep repeating ‘I walked with a 4 wheel walker the day I went to hospital, I did clinical Pilates the day before I went to hospital.’ They sent me home able to stand at a rail while my husband changed chair for commode/shower chair and back again. The rails were too high but they left me. So 2 weeks after getting home I was back in hospital with an injured arm. 2 weeks there and back to rehab for 2 weeks to learn how to stand with a standing hoist, that did not happen. They did not want to send me back to rehab but to aa care home. My husband escalated it so they took me back. I came home not standing or able to slid board. The physiotherapist they had organised came 4 days after i got home and STOOD me up. She has been working hard to help me get back to some independence. I came home on the 28th of august. I pulsed in April then took 1 metro on the 3rd January to see how I coped. Usual, headache, inflammation in fingers and toes. I may do 1 or 2 days every few weeks rather than full pulses every month. I kept taking roxy and doxy while in hospital. So 4 years and 3 months on things are much worse in many ways. I still hope.