This is a long overdue update on my journey of treatment for health issues that fall into the "Generally Falling Apart" category and sort of a continuation of my post A Day to Remember, But I'd Rather Forget. Please forgive me for the length. With the help of Tamiflu, last week my husband Steve experienced an apparent healing crisis in clearing what our doctor believed was an infection with an untypable flu (neither A nor B). Well, the doc believed I had the same flu, so I've been taking Tamiflu right along with Steve since March 31. I've been very draggy since mid-February and had the worst sinus infection of my life in mid-March (and I've had many bad sinus infections). About the same time the sinus infection hit, I suddenly went highly arthritic in both thumbs. The doc thinks this is reactive arthritis from the flu virus. Steve's healing crisis appears to be done, leaving him very tired and weak. Mine started Monday morning, and I allowed the fever to run its course with no attempt to control it. Interestingly, my fever topped out at the same level as Steve's---101.4*F.
I've been holding off from updating my progress, because I've been waiting for certain health situations to be resolved or demystified. First, I'll tell you that it's clear that both our doctor and I underestimated my Cpn infection, and I stopped the CAP too soon (January 25). Perhaps that was due to our attitudes toward my health issues, given their pedestrian nature. How ridiculous is that?! My father died at age 62 from his 3rd heart attack. His younger sister is Alzheimerish with a history of inflammatory bowel issues. From the knowledge I've acquired since signing on here two years ago March 29, there's no doubt in my mind that both of them were/are Cpn victims, along with my older sister, all of her offspring (including one case of Lupus), my cousins through my affected aunt, my male cousin's wife who has MS, and myself. There are others in the family whom I believe are chronically infected, but the infection is manifested in less severe ways.
In January, I also learned that I'd been battling Mycoplasma pneumoniae as well as Cpn. Even so, I felt pretty well at the time, so I tried quitting the CAP under pressure from our doctor. That well feeling only lasted for about 2 weeks. Since then I've experienced undue fatigue and recurring arthritic pain in my lower back and hips more intensely than before starting the CAP. Of course, it wasn't long before the onset of the thumb arthritis and sinus infection.
Those are the problems I've been able to feel. I've been even more concerned about the problems I can't exactly feel: higher than ever cholesterol, high triglycerides, high blood sugar, higher than ever blood calcium, high liver enzyme counts, and osteopenia. My blood pressure has been good for a change. Before I started the CAP, I was having problems with spinal overgrowths irritating nerves. Imaging and examination also revealed bone spurs, a heel spur, and osteophytes. Mineral bone density scans from the recent past had shown above-average density...except for one which showed mild osteopenia of the left hip (I had not taken note of this before). My gynecologist ordered a new bone density scan in December that showed I have osteopenia of the lower spine and osteoporosis of the left hip. Those are areas corresponding to my arthritic pain in the past. The gyno referred me to an endocrinologist who had a new scan done and downgraded the left hip condition to severe osteopenia.
Something changed during my time on the CAP, but there were other factors at play during that time and before. I had stopped regular milk consumption in Spring '06 when Steve went casein-free. In November '06, my HRT was stopped abruptly by my gyno because I hadn't weaned myself off of it as he had advised. I had stopped supplementing calcium and D3 in December '06 after learning I had hyperostosis. I had stopped drinking whey protein shakes shortly after that. I started the CAP in May '07 and took 4-1/2 months of oral chelation concurrently with the CAP. I understand more now than I did several months ago, but I'm still mystified by having osteopenia and hyperostosis at the same time.
Doctor X advises me that I have a particular affinity for depositing calcium at inflammation sites. Plus, the inflammation that goes along with the CAP can cause a bit of osteopenia too (don't let that worry you/I believe this is very minor). He says the elevated blood lipids and elevated calcium are conditions that go hand-in-hand. I learned on my own that chelation calls calcium out of your bones as well as your arteries. It's no secret what happens to women's bones when the estrogen supply is cut off. A couple of weeks ago, I turned in a 24-hour urine sample, and the results of the testing showed abnormally high calcium content. I'm to have more blood drawn this week for another step in testing toward determining whether or not I have hyperparathyroidism. There it is, the thing that I've suspicioned since even before starting the CAP---hyperparathyroidism. I sincerely hope I don't have it, because the only remedy is removal of the malfunctioning parathyroid gland. If I do, though, I want the bad one (of four) removed as soon as possible. Until I know for sure that I don't have hyperparathyroidism, I will continue to abstain from calcium and D3 supplementation despite the recommendation of my gynecologist. If I do have it (or even if I don't have it), would anyone venture to take a guess what I think is actually behind this idiopathic condition in many cases? That's right! Our old nemesis Clamydophila idiopath pneumoniae. Just my humble opinion.