Wow-- the brain fog, been meaning to begin documentaton so I can track progress and it seems I remember at all the wrong times and can't get to it or don't have the stamina at the time I remember either.
Really can't remember when "true" symptoms appeared but have always been super busy with career, kids, outside activities and many many stressors. The stressors increased in 2003 when I lost my job, began work for a bi-polar verbally abusive physcian and put myself in a spiral of deprecating "prove myself" work behavior. Then add a 13 week horrilbe ICU stay for my mother to finally lose her, other major family issues and 3 miscarriages in 2 years.
If I had to guess, it probably all began with I got the sickest I have ever been during Thanksgiving week 2 years ago. I was out of work and spent the week at my in-laws and almost ended in the ER but having friends in the medical industry I got a Zpack called in for me and I recovered slowly. I would go through periods of feeling like I had a low grade fever, aches and would come home from work to confirm for weeks I held a temp only in the evenings around 99.5 or 99.9. Tired but running around like a mad woman...45 hr weeks, baseball practice, soccer practice and a gueling competitive cheerleading practice/performance schedule with the kids. Not to mention my husband was at his wits end with my "laziness" --slept alot on weekends, no interest in sex, lethargic, depressed type of person I was.
Nov 2006... I've always been a natural approach person even taking 1.5 yrs of training after work to get my MS degree in Oriental medicine heading toward an Acupuncture/Herbalist license. So I booked an appt with a local ND who did some electro something or other and seemed VERY concerned about my overall immunei system and basic ability to function. I went on a 21 day juicing/soup type diet with many supplementsi and did feel better but not a WOW on the feeling better scale. I saw an ad in a local wholistic magazine for a internal medicine specialist who was a PHD, MD who focused on getting folks off pharmacueticals, working with hard to solve issues like heavy metals/CFSi/Fibro MS etc so I thought...what the heck...he's in my health plan, cheaper than the ND as it's just a co-pay now.
April 2007...Off I went to Grace Medical Association where I med Dr. Smart Idemudia (yes, that's his name but he goes by Dr I). He was a calming factor and began by really listening to me. Since I had already been diagnosed with low Thyroid and put on Synthroid which lasted 3 days due to the crawling sensation...(I went to natural supplementsi after that with not much luck), he put me on Armour thyroid and for six weeks it helped some...the first couple the best then I didn't see much improvement.
May 2007...went to dermatologist due to the past 5 or so years having huge cyst like acne form all along my jaw line and while I didn't want to go on antibioticsi I was even more tired of my face and my image. So I was put on mild antibiotics-Soladyn a new form of Minocycline.
June 2007...Back to Dr I cause I was feeling worse instead of better, my memory was a joke in my house to everyone including the kids and very upsetting for me. Luckily it hadn't affected work too badly but I would say something and it wasn't what I had intended to say and couldn't remember things I had just been told. (hello....now I see, it was the antibiotics working on the EB's and making me feel horrible). Put on Niacini, Co Q 10.
May 21st...my 15 yr old gets in a fight with her step father and never comes home...moves in with her dad and barely speaks to me since then. My emotions are very erratic and embarrassing but the additional stress seems to have pushed me over the edge. Suidical thoughts are common.
August. 2007...Tons of tests this time for heavy metals, yeast, checking for adrenal function and viruses. Came back positive for EBVi, adrenals looked good, no heavy metals, white blood cells and NK's very low as well. I sat and cried in his office as I was happy to have a "something wrong"...made them make copies of the labs so I could show my husband I wasn't making this stuff up and not crazy or depressed only. Orders' given for more tests. Told to take NACi. Didn't know why and didn't go get it and too tired to ask any questions. Still very emotionally unstable and again, suicidal thoughts very common.
Sept 2007 ...tests for food allergies come back...mustard family and horribly allergic to yeast. Tested positive for mycoplasma pn. (even while on the antibiotic) but negative for all chlaymadia's, negative for lyme's, my vitamin/enzyme bioavailablity was doing okay so leaky gut wasn't a huge factor, positive for yeast. Told about this website, put on Nystatin for a month, NAC 1xday for 7 days and then 2xday. Told me I may or may not have all the other virusus as they are hard to detect and that we would discuss the protocolsi that a Dr. Stratton had that worked and to come here to learn. Began the Nystatin on Sept 4th and the next two weeks were very flu like aches, out of breath to do any exertion, extreme emotional swings, brain fog and sleep issues. My first week brought extreme nausea as ell. Sept 15th was my son's 7th birthday party in our back yard and I must have over did things as Sunday the 16th I was barely able to get out of bed to make it to the couch to veg all day. These past two weeks have made me realize that walking through Walmart can kick my tail that evening or the next day and I watch what I do or rethink any outings with friends/family as I cannot physically handle it or fear I can't. I have surprised myself by not crashing at times but I never know when those are. Got on this website and WOW, information overload but I've studied and learned and read so many things. I think I understand the "monster" within as best I can and now it's time to kick some axx. So very much feel like a cancer patient that takes chemo...you know it's going to treat you bad but you take it knowing it's for the best, but thankfully without the toxic side affects or as much.
Sept 24th 2007... for about 2 hours I had a brief window of what I would call the "old me". I didn't hurt anywhere, my emotional state was one of happiness and I had forgotten what that felt like and it was so liberating. I overdid but am thankful I got to experience that old feeling of well being and emotional stability. It was like God showing me "this is you", remember that while you face the upcoming battle.
Sept 25th I added another 600 mg of NAC to the nightly dose.
Sept 27th..it's been two nights of the additional dose and my arms are very heavy and the achy, hard to move limbs and joint pain is back with flu like tiredness at night but not good sleep...gets worse as the day progresses. I might be pushing things but I wanted to be at a higher level of NAC before my next appt in early October as I'm pretty sure we'll begin Doxyi then.
The way I feel changes so dramtically from day to day I didn't expect so I begin this blog to track my progress and journey down this path. Very thankful for this community.
Lisa--Aug 07 Positive for EBV, Mycoplasma P., CFS/FM 3 weeks into NAC 1800 daily/Nystatin/Solydn/Armour Thyroid/Co Q/Niacin/